Saturday, September 06, 2008

When it Comes to Kwame's Fall, Governor Granholm Says It Best


In light of Thursday's resignation by Detroit Mayor Kwame Kilpatrick, the September 5th Detroit Free Press devoted its entire first section to the meteroric rise and hard fall of the embattled politician who brought both pride and shame to the Motor City. 

Reporters, columnists and the world's top news sources weighed in on the story.  But it was Governor Jennifer Granholm, saved the job of removing Kilpatrick from office herself, who best summed up the key lesson of this sad story with her statement in the article, "Let this be a lesson for leaders" (Ben Schmitt, Free Press Staff Writer).  

"Commentators and historians, I expect, will use the lessons of these difficult months to teach those young, future politicians about the important of integrity and honor and duty to the public," she said. "When a public official violates that sacred trust, the violation and its consequences affect more than that individual. It affects us all." To read more, visit: www.freep.com.

Kwame Kilpatrick's example holds valuable lessons for us all.  

JudyWinter.com
Author. Speaker. Advocate. Special Needs Issues
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

YOU GO GIRL! Michigan Debate Boot Camp & The White House Project


In May, I attended a weekend-long Michigan Go Run! Political Leadership Training Intensive, part of the White House Project based in New York City, a great experience I shared on this blog.  

According to the literature, "The White House Project is a nonpartisan, nonprofit, 501 (c)(3) organization that aims to advance women’s leadership in all communities and sectors—up to the U.S. presidency—by filling the leadership pipeline with a richly diverse, critical mass of women." (logo used with permission).

In short, they help cool, competent, incredibly motivated and talented women of all ages, race, and experience realize the changes they envision for their communities, and the world.  They do it by sharing key tools women need to more effectively run for office and serve alongside their male counterparts.

The White House Project takes eager, willing little diamonds in the rough and helps turn them into shiny political jewels capable of impacting real change.

But you don't need to be running for political office to benefit from the wisdom. Whether or not I decide to one day seek political office remains to be seen.  At this time in my career and advocacy life, I'm keen on taking part in efforts and professional training that I believe will help me better serve the special needs population, a population greatly impacted by the need for political change at the highest levels. I need and want to know more about how the political machine operates to more effectively advocate within its ranks.  

The training I've received so far has already proved valuable in my work, whether I'm doing a conference keynote or defending my stand on the key issues impacting the special needs population. I've been reminded of where my true strengths lie and about how far I have already traveled. Good leadership training is always worth the time and effort.  I believe strongly in pursuing life-long educational opportunities that help take you to the next level of advocacy.

The capable White House Project staff and competent outside training professionals nurture, challenge, educate, cajole, share personal stories, and even entertain- and the food is always good!  The commitment to this important effort is clear.  After feasting on the political training bounty, women attendees walk out standing a bit taller, more focused, and reenergized, believing just a bit more strongly in their ability to impact change in the world (or in one community).  They leave with valuable skills and an insider's glimpse into how the wheels of the powerful, fascinating political machine turn.  All take a greater appreciation for why such training is critical to their dreams of realizing needed change.

Yesterday's smaller, hands-on group training left nowhere to hide.  A dozen women representing a wide range of experience and pet causes were expected to step boldly up to the political-training plate and perform on the cuff, before receiving critical feedback (ouch!), along with no-holds-barred suggestions for improving our messages- great training for the real-world political arena!  In the early hours exercises most looked a bit like deer caught in the headlights (think tiny little fish in big choppy political waters).  At the end of the day most were left feeling they'd hit a training home run, better prepared to face any sharks they might encounter in those dicey political waters. 

The $50 training cost was a steal.  Huge thanks to Michigan Field Director, Shannon Garrett, and her competent team for ensuring time well spent!

The White House Project is a terrific effort that provides top-level training.  It's an experience I strongly recommend for anyone involved in working for important policy change, whether in their backyard or at the state and national level.  Such efforts are especially valuable at this time in history when so many women are in the forefront of the big political race or behind the scenes driving successful campaigns at all levels. 

With a little insider knowledge and training, you begin to see why some people more easily get caught up in the power and intoxication of the political world. It is fascinating, and egos need to be frequently checked.

Yesterday's intense training was exhausting and time well spent.  Fact is, I'm still a bit tired, but in an empowering kind of way. We were warned to prepare for an intense, long day and it was just that.  But I left with renewed commitment, improved skills and a reminder of how such skills and training help ensure that women are better prepared to take their rightful place in politics, too.

I'm all about taking action and being part of the solution.

"Add Women. Change Everything." 
To learn more, visit: www.thewhitehouseproject.org.


JudyWinter.com
Writer/Speaker/Advocate
Special Needs Issues

Wednesday, September 03, 2008

Shout Out! -Photographer W. Spencer Parshall


I admit that I'm madly in love with photography these days. With a camera in hand, I find the days pass quickly and my mood improves dramatically.  

I feel giddy.

Photography makes me feel like I do when I write purely from the heart. 

It's a love affair that began years ago, before I shelved it to pursue my love for writing full force.  Recently, I've begun shooting again with a much better camera and I couldn't be happier. I look forward to seeing where it takes me with a focus on using the lens to tell special needs stories in a brand new way as a photojournalist.

My renewed love affair with the camera has made me even more appreciative of the remarkable talents of photographer friends that I plan to feature from time to time on this blog, beginning with W. Spencer Parshall. That's one of his many wonderful photos of France above, used with his permission.

I've known Wally for years, since doing a feature on him for a Michigan newspaper. He was boldly planning his escape from the corporate banking world to fulfill his life-long dream of living the life of a full-time freelance photographer, complete with lots of unknowns, a cozy little studio and busy art fair schedule.  I was still pursuing feature/column work and dreaming of book publication.

I'm happy to say that the artist gig and risky choice by Wally turned out just fine (and I got my book published!). The man's outstanding work is today popular with the discriminating art show circuit crowd and many others. 

This talented photog is also one of the nicest, most unassuming people you'll ever meet, always generously sharing the details of his craft, all of which makes it especially easy to sing his praises. 

That's me with Wally at a 2008 Labor Day art show in Michigan this past weekend, along with one of my shots of his booth.

I celebrate Wally's success and talent with this well-deserved shout out! He's an example for others hoping to realize artistic dreams.  You can find out more about the man and his work at:

www.wsparshall.com.  

Tell Wally that one of his biggest fans sent you!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations 

Join the Campaign to Stop Use of the R-Word!

r-word.org

Here's an Important Back-to-School Tip!

As another school year gets underway, talk to your kids about joining the campaign to Stop Use of the R-Word.  

Do it as a family!  Kids (and adults!) today casually use the word 'retard' to put others down, with no clue as to how offensive it is to their peers with intellectual disabilities (the current terminology for this population).  
Few people realize the painful history behind use of this powerful, limiting word. Talk to your child about building others up with words (including friends), not knocking them down at another's expense.  
 
Take time in your family to talk about the value of individual differences, especially in an increasingly diverse and global society.  Let your children know clearly what kind of behavior you expect from them.  This is a one of those great teachable moments.  Capture it!

Words DO hurt.

Change the conversation!

JudyWinter.com
Author. Speaker. Advocate- Special Needs Issues
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

Tuesday, September 02, 2008

Back-to-School Memories of 'RicStar' 2008

For many families, today is filled with back-to-school busyness that includes spotless, squeaky shoes, carefully selected debut outfits, fresh haircuts and shiny new backpacks stuffed with paper and pencils and the latest technology. 

For others, today may also be filled with heightened special needs anxiety and a new definition of those three simple letters I, E & P.

But for a little while at least, the focus of many Americans isn't on the hurricane's path or the wisdom of a VP nomination, unexpected teen pregnancy, or even world peace.  For many families, today's news is all about school.

Some are shedding first-day tears, including parents. Many towns and cities are facing sneaky weather patterns with temperatures far too sultry for the cool new jeans and long-sleeved hoodie your teen insists on wearing.  Some kids are refusing to come out from under the covers, demanding more summer and later bedtimes, while others are dreading the cafeteria food.

Many parents are dancing spirited daytime-freedom jigs.

The annual end-of-summer rite is one huge part of the dance of letting go that parents face the moment their innocent babies are born, especially challenging when your child has special needs. 

When my son began kindergarten, I began a tradition of writing him an annual back-to-school letter.  Today, I honor that memory through this blog and post.  

Today represents yet another emotional milestone for me. My son passed away too soon at age 12 in 2003. That's Eric above at his locker during his last year at school.  Today would have been his first day as a senior in high school. Had the cerebral palsy not happened at all, Eric would have been starting his Sophomore year of college.  

My son would have turned 18 later this month, with all the excitement and promise of the age, and no doubt, lots of girlfriends and text messaging.  I miss the what might have beens and the stolen moments.  I miss him.

Today is one of those annual events from which any parent who's lost a school-aged child cannot hide. The back-to-school reality stings sharply, catching me off guard and forcing out tears I'm way too good at holding back. It's one of those days when I feel my son's absence strongly, all because my son didn't board a little yellow school bus this a.m., and I didn't get to buy him cool new shoes and #2 pencils.

But I was fortunate to wish a friend's daughter a great day as she boarded hers, an unplanned treat. The size and color of the bus doesn't matter, being included last minute in this important end-of-summer ritual does.  In return for my good wishes of, "Have a great first day, Adrienne!" this young woman shared huge smiles with me, her first-day excitement clearly evident.

On this bittersweet day, that was exactly the medicine I needed.  No doubt my son's at work again, making sure his mom takes part in today's cool festivities, too, however simple the act.

On this first day the new school year, I remember and celebrate you, RicStar!  I miss you this day, and always.
______________________________

For those of you still fortunate to have your kids in your lives, make it a great school year.  I know the school culture and challenges can be incredibly frustrating and at times make you want to pull out your hair, or worse.  But the rewards, the lessons, and your child, are so worth your efforts.  The memories you are creating and the milestones you are cementing are priceless.  Don't forget, there are many caring educators in the world, too.  My wish is that you're lucky enough to have at least one in your children's lives.  If not, be bold enough to fight for necessary changes.  Now, let the educational advocacy begin!

As you begin another year of special needs educational challenges, remember my # 1 tip:

Believe in your child's value- no matter what!  
It will make you fearless- not a bad trait to embrace when you're facing the educational system.

Wish your kids a great school year for me, and give yourself a big hug, too- and take lots of pictures!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

Sunday, August 31, 2008

"We Love Detroit!"-the 2008 Detroit Belle Isle Grand Prix




I had a great time this holiday weekend attending the Detroit Belle Isle Grand Prix, my first ever! Here are two shots out of the 700 I captured. I love this Porsche Team car- too bad it didn't win; but it wasn't for lack of effort. (More photos later after intensive editing)!). Sometimes a girl's just gotta play, something I plan to do more of in the future.

All the "We Love Detroit" signs and the motor-city spirit were contagious, especially with Mayor Kwame nowhere in sight.  The event was well organized and the people friendly.

I was in photographer's heaven! But my hearing's not so good today...

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

It's Not Over Yet! -Support the September ParaOlympics Games in Beijing, too!

The Olympics aren't over yet, people!  It's time now to support the 4,000 elite Paralympic athletes  (those with disabilities) now in Beijing, China preparing to take to the world stage and showcase their athletic excellence and abilities, too.  The games, held on September 6th through September 17th, showcase a wide range of sporting events and disabilities.  The games are held in the same year and city as the traditional Olympics.

The Paralympics is governed by the International Paralympics Committee (IPC) based in Germany.  According to paralympics.org the vision is,  'to enable Paralympic athletes to achieve sporting excellence and inspire and excite the world."

Sound familiar all you fans of the Olympics?

Check it out- and good luck athletes!!

For more, visit:  www.paralympic.org

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

McCain & Palin & Down Syndrome, Oh My!


The surprise announcement of Alaskan Governor Sarah Palin as John McCain's partner on the Rep. ticket has gotten many tongues in the special needs world wagging,  even salivating.  

Palin recently gave birth to baby Trig, who has Down syndrome.   The potential for the tremendous exposure for the diagnosis and other special needs created by having a family in the White House raising a child with Down syndrome is too good to overlook.  Here's my take:

As exciting and ground breaking as having such families represented in the White House would be, it should not be the key reason anyone votes any ticket into the most powerful office in the world.  Nor should the fact she is a woman be the sole criteria.

Palin is also a staunch conservative, antiabortionist and lifetime member of the NRA. Do her political and personal values mesh with yours?  Are you comfortable with her political experience?

Palin is about to seek a demanding office as second in command at a time when she faces the beginning of a challenging parenting journey, one which anyone who has parented a child with special needs knows, is often filled with tremendous challenges and rewards all its own. It's far too early in the parenting game to know how Palin would handle combining this new family challenge with the demanding role of VP.

What this attention-grabbing announcement can do, as it continues to do with spirited arguments over use of the R-word in Tropic Thunder, is to give the media and the rest of us, a terrific opportunity to generate intelligent, thoughtful discussion about challenges facing individuals and families with a wide range of special needs.  It creates needed awareness for the overall cause.

Such valuable awareness and resulting conversation can help lead to lasting change in health care, education and equal access to valuable resources and services, decisions impacted at the highest level of government. That is the real beauty of this news and where I believe our focus should be.

We should not elect a baby to office, regardless of the potential for priceless, on-going special needs awareness- no matter how cute!
__________________________________

In my efforts to contribute to responsible media efforts that inform on this subject during this election-buzz time, I will be sharing key facts about Down syndrome, starting now (there's more in my book!). Above is a photo of my friends Gail Williamson, exc. director of the Down Syndrome Assoc. of Los Angeles (DSALA) & her talented, actor/son, Blair.  Used with permission.

Did You Know? 

Down syndrome occurs in
1 in every 733 live births?
(source: NDSS.org)

For more information & inspiration, visit:

The National Down Syndrome Society (NDSS):  www.ndss.org 
or: Heart & Halo Talent, a division of the Down Syndrome Association of Los Angeles (DSALA)  www.dsala.org 

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

Friday, August 29, 2008

Michael Phelps & ADHD & Grandoggy Griff


These days, everything Michael Phelps touches turns to gold, as in eight gold medals in swimming at the 2008 Olympics in Beijing, China. 

(That's grandoggy Griff going for the canine gold in our pool above and patiently awaiting his medal, -- yummy dog treats-- at right!)

Did You Know?   
As a child, Michael Phelps faced tough daily challenges of Attention Deficit Hyperactivity Disorder (ADHD) and was often teased and bullied? His saving grace was swimming, and the inspiring commitment and love of his mother, Debbie Phelps, who believed strongly in her son.

This is a powerful story in many ways.  But perhaps no message is as strong for the special needs community as the reminder of the power of a parent's unconditional love and the critical importance of focusing on and nurturing a child's individual gifts and abilities regardless of a challenging diagnosis.

It's a great message to embrace as another school year gets underway.

Congratulations Michael and Debbie Phelps, and thanks for your golden example.

For more on ADHD, visit:  www.adhd.com

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

Computer Got Your Tongue? Disability & Technology

In a promising development for those with severe motor challenges, Georgia Tech researchers announce they are working on a tongue-powered system called the Tongue Drive System "that could manipulate wheelchairs, home appliances and control computers." 

Still in early testing stages, this news should be of interest to those looking to technology to increase independence options.  

My son may well have benefitted from such innovative technology, options we were researching fully before his death in 2003. Technology can and does open up the world of possibilities for those with disabilities.

Here's one link for the article, 'Disabled encouraged by work in Atlanta; challenges remain,' by Greg Bluestein Associated Press Aug 25, 2008:

http://www.miamiherald.com/business/technology/story/655859.html


JudyWinter.com
Breakthrough Parenting for Children with Special Needs:Raising the Bar of Expectations

Thursday, August 28, 2008

Maureen McCormick (aka Marcia Brady) Boycotts Tropic Thunder

Did you know that Maureen McCormick of Marcia! Marcia! Marcia! Brady fame has a brother with an intellectual disability? It's true! She's added her name to those refusing to see the Ben Stiller film Tropic Thunder, telling the media and fans how tough it was hearing the r-word used to put down her brother when they were growing up.

Marcia was never my fav Brady kid.  I liked Jan the underdog (I love championing the underdog!). Marcia always seemed too perfect. But I like her now!  Thanks for speaking up, Maureen.  In today's world, celeb voices do help advance the cause. Maureen gets additional kudos for supporting Best Buddies (www.bestbuddies.org).

(Photo courtesy of Special Olympics/used with permission).

Here's the link to the MSNBC story:
http://www.msnbc.msn.com/id/26338000/


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

Wednesday, August 27, 2008

Words of Wisdom from Oprah- Sept. 2008



Words of Wisdom-Sept. 2008
(Formerly known as Fav Quote of the Month)


"Life isn't about what you have;
it's about what you give."
-Oprah Winfrey


Judy Winter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

Minute Vacations-September 2008

Minute Vacation-September 2008
 Sunset on Sultry Summer Evening
Farmer's Field in Michigan


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

Shout Out! Artist at Work-A Success Story & Autism
















Above: Clippowaza and Luciaflying Cow by D.J. Svoboda. 
Images used with permission of artist.

If you visit my website at JudyWinter.com, you'll find my call for success stories from those living with special needs.  D.J. Svoboda is a talented young artist who recently contacted me and shared his story and his cool, whimsical artwork.  Check him out, and then share your own stories with me!  

Thanks, D.J.!
________________________________

"My name is D.J. Svoboda and I am a Autistic Artist.

I have created The Imagifriends based on difficult situations I have faced growing up with Autism. They are brightly colored characters who help and support one another. They live in a wonderful place called Imagiville where everyone is accepted " just the way they are" and no one is ever picked on or mistreated.

I want to use my art to help encourage others with Autism and to let them know that they too can help make the world a better place. I have just had my first book published about acceptance for those with Autism. 

You can learn more about me,my book and my mission by visiting my website at www. myimagiville.com.

Have a very wonderful day, everyday!"
______________________________

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

Did You KNOW? Democratic National Convention & Disablity



Did you Know?

People with disabilities represent nearly 4 percent of the delegates at the 2008 Democratic National Convention.  (source: CNN)

It's progress.  But I can't wait to see that number rise.



JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

Back-to-School Buzz. Consider This!



It's back-to-school time in an economy challenged nationwide. Please consider supporting efforts in your community to provide backpacks and school supplies to children who need them.  

It can and does help them fit in and get off to a great school-year start, especially important for kids with special needs at higher risk for teasing and bullying.  

You can help level the educational playing field just a bit.


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

Monday, August 25, 2008

Stop Using the R-Word

r-word.org

Words DO hurt...Please take a moment to add your support to this important campaign.

JudyWinter.com
Author. Speaker. Advocate: Special Needs Issues
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

Time is Running Out For Great Summer Adventures!!


























Hope it's been a great summer for you and your family; it's going quickly!!  The good news is there's still time to enjoy all the seasonal magic, even as the days get shorter by the minute!

But you've gotta be quick, before backpacks, early morning bus calls, and IEPT meetings (sorry...) start taking over your life again. Memories created in these waning days of summer can help see you through another challenging year of parenting.  Here are a few photos from some of my recent summer adventures, including kids at the beach, dog days, big sailboats and cool kites on Mackinac Island, summer flowers and dazzling sunsets, street festivals and of course, romantic weddings. 

So many adventures and so little time.

Enjoy them all! Then get the gang back outdoors quickly, before it snows. Word on the street, and in the Farmer's Almanac, is it's going to be a rough winter everywhere!  

So take lots of pics and video to enjoy later on when you're stuck indoors for weeks on end, or facing another IEP (sorry again).

Summer leaves us far too soon...

RicStar's Camp/Music Therapy Included in Blake's Story Video by the State News at Michigan State University



Here's a cool update involving one of our terrific RicStar's Camp kids, and the value of music therapy and good parenting.  Check out this great video and family advocacy example! Thanks to the State News @ MSU! 

If you want to learn more about RicStar's Camp, check out my former blog entries or visit the RicStar's Camp link at my website: JudyWinter.com. It's an awesome place to be each summer, but you've gotta sign up early! 

Music and music therapy do change lives....


http://www.statenews.com/media/00/00/02/90/29028_GAR_afamilyeffort.slide/


Judy Winter
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Maria Shriver takes on Trophic Thunder in LA Times piece


Another timely entry regarding the R-Word/Tropic Thunder furor.  Check out Maria Shriver's Sunday essay in the Los Angles Times and add your own words to the debate.   The fact that so many people don't get what the argument is all about, just proves how much our voices need to be heard, and how far we still have to go.  This isn't about political correctness; it's about human dignity and equality for millions of people worldwide.  Words DO hurt, especially when MISused.

Well said, Maria.

(Photo courtesy of Special Olympics-used with permission)

http://www.latimes.com/news/opinion/sunday/commentary/la-oe-shriver22-2008aug22,0,1982289.story

Judy Winter
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter