Sunday, December 04, 2011

Love My Spartans!




Ouch! That one made the GREEN heart bleed. But it's still been an amazing ride and it's not over yet. Thanks, Coach Dantonio and team, for a terrific season. Still bowl bound, somewhere. This team was Rose-Bowl worthy. Big progress.

Go Spartans!



Saturday, December 03, 2011

Lives Worth Living- Day 16-Craig








Craig tells the best jokes of anyone I know and he's always the first to step in to help. others. He makes RicStar's Camp more fun.

I never get the punchlines first, ever.



Friday, December 02, 2011

Saturday, Dec. 3rd, Honors the United Nations International Day of Persons with Disabilities




Find out more, here.

I look forward to the day when we recognize and celebrate the lives and contributions of those with special needs every day.

We're making progress.

Photo Judy Winter 2011

Thursday, December 01, 2011

The X Factor 2011 Auditions & Emmanuel Kelly & Special Needs





For all you parents who work so hard each and every day to create brighter futures for your children with special needs, this post is for you. For those of you who have chosen to take a child out of an orphanage and put them into a real home filled with love, there's a blessing in this for you, too.

Seventeen-year-old Australian, Emmanuel Kelly, is focused on ability; and he can sing, too.

Imagine.

Watch it here.

Thanks, Gail Williamson, for sharing this.

Lives Worth Living- Day 15-Blair Williamson









I've been writing and speaking on special needs parenting issues since my son's birth in 1990. I began at a time when few people, organizations or media were publicly addressing the challenges and rewards of raising children with disabilities, and they certainly weren't focused on individual abilities and potential or human value.

It was still an era of shame and ignorance, and I was a starry eyed advocate hell bent on change.

As a writer and mom, I knew I wanted to be an agent of positive change for my son and other families facing the tremendous daily challenges of special needs parenting.

One of the first advocates I made contact with was Gail Williamson of the Down syndrome Association of Los Angeles (DSALA). We quickly become friends. Her son, Blair, is a talented, working actor in L.A. who has Down syndrome. Those of you familiar with my blog know I have written about Gail and Blair in past posts. They are also included as one of the parenting success stories in my book, Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations, for which Gail also wrote the introduction.

They're two of my favorite people, high praise considering I've met some amazing folks during my twenty year plus special needs ride.

Because of our friendship and their place in my own author/advocacy beginnings, I've decided to feature Blair as my Lives Worth Living Day 15 with several photos depicting the richness of his life, instead of just one. It's been a full life given birth by his amazing mom. Pun intended.

The photos show Blair most recently on a jet to Washington for an event with GLEE's Lauren Potter, his recent love of photography, with his girlfriend, Susie, dancing at his cousin's wedding, at which he also gave her away, and with his remarkable mom, Gail, whose belief in her son early on changed the course of his life dramatically, and her own.

I hope you enjoy each image and learn from Gail and Blair's example.

I know I have.

All photos courtesy of Gail Williamson. Used with permission.

Therapy Dog Jack-New Gig Update





Jack and I spent the morning with our fav new friends at our local elementary school, where we got read lots of great stories. Jack made the kids smile, and they us.

YouTube PSA Alert! -Special Needs/Bullying & the American Association of People with Disabilities (AAPD)


UPDATE 12-3-11: The video I hyped below has since been made private. Have no idea why and unable to find a public viewing of it. So sorry. If that changes again soon, I will repost. Well worth being viewed by all.
_______________________________

LOVE, LOVE, LOVE this PSA about bullying and kids with special needs from the American Association of People with Disabilities (AAPD), a terrific resource which, according to its website, promotes equal opportunity, economic recovery, independent living and political participation for people with disabilities.

Too often we discuss bullying without mentioning how many kids with disabilities face this inexcusable behavior on a daily basis.

Speak up, loudly, and then pass this on.

Photo of Remarkable Grace/RicStar's Camp Judy Winter 2011

WWJD? Not This.


Doesn't sound like something Jesus would do.

Read Interracial Couple Banned from Kentucky Church here.

The gospel according to self interest.

Photo Judy Winter 2011

Wednesday, November 30, 2011

Words of Wisdom from Lauren Potter-December 2011 & Lives Worth Living-Day 14






For the final monthly quote of 2011, I've chosen words from an actress who's had one terrific year. Lauren Potter has found fame on the popular FOX program, Glee. But it's what she's done since by adding her name to such important causes as ending bullying and use of the r-word, that makes her a special needs advocate to watch, and my choice for Lives Worth Living-Day 14.

The actress, who has Down syndrome, is making waves in all the ways that count. Responsible use of celebrity, and focused on ability.

According to news on Disability Scoop, actress Lauren Potter has also been tapped by President Obama to be part of the President's Committee for People with Intellectual Disabilities.

I like Lauren Potter, a lot.

"I want to encourage kids to speak up, to tell their stories." -Lauren Potter

Image courtesy of IMDb

Judy Winter


Playing Photog- Big Winter Storm 2011




Media Alert! People Magazine-Jaime Foxx Celebrates His Sister with Down Syndrome


Did you know Jamie Foxx has a sister with Down syndrome? It's true. Her name is DeOndra Dixon and she's the 2011 Ambassador for the
Global Down Syndrome Foundation.

I love the fact that so many people today, including celebs, are talking about and celebrating special needs siblings instead of pretending they don't exist.

Shame be gone.

Read the People magazine article here.

Photo RicStar's Camp Judy Winter 2011

Tuesday, November 29, 2011

The Compassionate Friends 2011 Annual Worldwide Candle Lighting








The Compassionate Friends Annual Worldwide Candle Lighting honors and remembers children who have died. This year's event will be held on Sunday, December 11th at 7 p.m. local time. Please share this post with those you believe could benefit from the healing act of remembering a child who has died. I love selecting a special candle for my son for this special evening of reflection.

For more information on this organization that supports bereaved parents, and about this beautiful holiday tradition born in 1997, click here.

As always, my candle remembering my son, Eric, will be burning brightly, too.

Photo Judy Winter 2011

Worth Repeating- Best Buddies International






"Best Buddies is a nonprofit organization... that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities (IDD)."

Find out how you can get involved in this terrific organization and mission, here.

True inclusion happens peer to peer.

Photo courtesy of Best Buddies.

Worth Repeating: 2011 Toys R Us Differently Abled Toy Guide w/Eva Longoria Cover


Find the post/links here.




Creating Holiday Magic for Kids with Special Needs 2011




Reminder: My tips for Creating Holiday Magic for Kids with Special Needs can be found here.


Photo Judy Winter 2011

Lives Worth Living- Day 13-Johnnie Tuitel


Children's book author, motivational speaker, and loving dad, Johnnie Tuitel, lives life full out. Johnnie has cerebral palsy and uses a wheelchair to travel from one adventure to the next. He's the popular annual emcee/mentor at RicStar's Camp, where all three of his terrific sons volunteer.

He's a funny dude, too.

Photo Judy Winter 2011

Monday, November 28, 2011

Former American Idol Contestant James Durbin A Role Model for Kids Who Are Bullied



Former American Idol frontrunner, James Durbin, has become a role model for kids who are bullied. In the video link below, Durbin helps educate others by talking with Dr. Drew about living with Asperger and Tourette syndromes. He also surprises a young fan living with the challenges of Tourettes.

Responsible use of celebrity. I like James even more now.

Watch it here.

Focused on ability.

Photo Judy Winter 2011/Chicago Thanksgiving Day Parade

Lives Worth Living- Day 12-Daniel J. Svoboda




My friend, Daniel J. Svoboda, is a very talented artist who happens to have autism. Check out his whimsical, creative drawings and holiday cards called Imagifriends here.

Photo Courtesy of DJ Svoboda

Monday, November 21, 2011

HAPPY THANKSGIVING 2011!


My goal this week is to spend less time on work and technology and more time with friends and family. That said, here's my Thanksgiving post a bit early. It's all about reflecting on my blessings from this past year. While I know that such a positive focus can sometimes be tough to celebrate when you're facing big challenges of special needs and tough life trials, I hope my words will move you to try.

This year, I'm thankful for my daughter and son in law and the fact that I was well in time for their beautiful wedding. I'm thankful for the friends and family who love them and us enough to have joined us for the magical September ride on Lake Michigan. I'm thankful that my creativity and passion for my special needs work/advocacy has returned in full measure and then some (sometimes bordering on manic). I'm thankful for my surgeon who helped ensure that these good things happened and for all the friends and family who saw me all the way through a long, challenging recovery. I'm thankful I can bless/forgive those who, for whatever reason, chose not to. I'm thankful that I still hate math and love fashion and have experienced a full recovery. I'm thankful my loud laughing fits have returned. I'm thankful my beloved dog, Jack, could play in drifts of crunchy fall leaves instead of snow on this morning's walk and that I still haven't had to put Trax on my shoes. I'm thankful that I live in a community that has relatively little crime and residents willing and able to pay the salaries of those who keep us safe and answer our cries for help.

I'm thankful that Jack and I get to volunteer our time to work with kids and just maybe, make a difference in their lives. I'm thankful for their blessings and hugs and deeply moved each time I see their hands stroking his fur and the smiles on their faces and their joyous cries of "Jack's here!" when they see us coming down the hallways. I'm thankful for all the amazing people who've come into my life this year and shared their talents with me as I worked really hard to reclaim my life and creative self and figure out my future, including one terrific photography teacher. I'm thankful to my local newspaper for all the photo publishing opportunities they've given me this year, including two covers, and to media nationwide that stills see the value in spreading my timeless story. I'm thankful my desire to write has returned.

I'm thankful I chose to focus on possibilities, not limitations or self pity, even when it was tough. I'm thankful for women like Summer and Aura who feed my passion for fashion/design locally so I don't have to travel so far to indulge in creative fixes. I'm thankful for Summer's beautiful smiling face and her amazingly generous ways and the beautiful Pashminas that kept me looking/feeling good in the hospital and after. I'm thankful for enough food to eat and abundant choices, knowing not everyone is as fortunate. I'm thankful my husband and I agree on how important and necessary it is to share our many riches with others in need as often as possible and how good we feel when we do so. I'm thankful we've survived 35 years of marriage and the death of a child and still want to take road trips together. I'm thankful he was my rock during recovery. I'm thankful that when I look into my closet and see how overstuffed it is, I know I need to share with others less fortunate.

I'm thankful I have a solid sense of right and wrong and choose not to compromise my morals or ethics for greed or self gratification. I'm thankful that my age and tough life experiences over the years have helped me keep my professional success in healthy perspective. I'm thankful for my voice and communication gifts and my willingness to use that voice when others choose to remain silent. I'm thankful for those who support my work and me, and bless those who choose not to, for whatever reason, knowing there is a lesson in that, too.

I'm thankful for each day's encounters knowing everyone has a story to tell and a lesson to share if we only stop talking and listen. Did I say I'm thankful for the wedding and our wonderful new son in law? I'm thankful for Facebook and blogs and the ways in which they allow us to connect with others and reconnect with those with whom we might otherwise lose touch. I'm thankful for Jack, my own personal therapy dog/protector and the way he cuddles in the morning.

I'm incredibly thankful that RicStar's Camp, the wonderful music haven we created to honor our son's life and legacy nearly ten summers ago, is still changing lives. I'm thankful I don't have to cook dinner on Thursday. I'm thankful you took time to read these words. I'm so, so thankful, I could burst. Hope you are, too.

Happy Thanksgiving, and out.

Photo Judy Winter 2011