Tuesday, February 07, 2012

Special Olympics & Best Buddies to Converge on Capitol Hill




Family members, coaches and leaders of Special Olympics and Best Buddies International from forty states will converge on Washington, D. C. on February 8th for the annual Capitol Hill Day to help ensure that the needs of and equality of people with disabilities are at the forefront of important upcoming political discussions.

The groups will also be advocating for passage of the Eunice Kennedy Shriver Act of 2012 to honor the founder of Special Olympics, who died in 2009.

The contingency will meet on February 8th at 5:30 p.m. E.T. at the Capitol Reflecting Pool in Washington, D.C.

Read more here.

I will go with them in spirit, and continue to advocate on their behalf.

Courtesy Images.

Judy Winter

Random Thoughts -Profanity & The Voice


Love the show, but what was up with all the profanity on The Voice last night?

Cheapens a terrific show, and takes away from all the great stories they share about the contestants, and isn't the show supposed to be about them? Hmmmmm.....

Please, stop.

Photo of RicStar's Camp participant by Judy Winter

Judy Winter



Monday, February 06, 2012

Nike Just Does It-New Shoe for those with Prosthetic Limbs


Love this! Leave it to marketing/sporting-gear genius Nike to create a shoe for athletes with prosthetic limbs. It's called the Nike Sole and Nike worked with international marathoner, Sarah Reinertsen, first woman to finish the grueling Hawaii Ironman with a prosthetic limb, to make it happen.

Find out more about this cool creation here.

Lives worth living. Focused on ability.

Media Alert! -New York Times & Employment of those with Disabilites


Good reflection by a professional without a disability speaking to a student crowd filled with them. I like her honesty, too, but not the employment rate among those with disabilities, which is just 17.9 percent vs 63.7 percent for the general population.

Shameful.

Read A Chance to See Disabilities as Assets by Peggy Klaus here.

Media Alert! Wonder Dogs & Special Needs Kids-New York Times


Powerful story in Sunday's New York Times about one service dog's success reaching a seriously disconnected and raging child with Fetal alcohol syndrome (FAS). The piece is a reminder of the challenges of hidden disabilities in foreign adoptions (and U.S.), the devastating effects of the deadly mix of alcohol and pregnancy worldwide, one mom's determination to reach her son, and the unwavering spirit of canines who love and perform unconditionally.

Makes me even prouder of the work that my dog, Jack , and many other remarkable service/therapy animals, do each day. Jack gives the piece two paws up. Me, too.

Read Wonder Dog here.

Find 4 Paws for Ability, which provided the service dog in the story, here.

Thursday, February 02, 2012

What's Your Take? -New Mobility Magazine Selects Artie Abrams of Glee as its Person of the Year


Nothing like a little controversy to get the special needs juices flowing. That's what New Mobility magazine has generated with their cover of Artie Abrams from Glee as its Person of the Year.

For starters, Abrams is a fictional character on the ever-popular program, Glee. He's portrayed by able-bodied actor Kevin McHale, who's become a teen pop-phenom in a role that many actors with disabilities feel should have gone to someone with the cast member's disability. In short, many believe that casting of such roles with able-bodied actors takes away the too-few opportunities to make a creative living by actors who live the realities of disability each day. I believe that's the harsh reality.

On the other end of the discussion is the reality that the role, regardless of who's in it, has generated huge awareness and discussion and perhaps greater understanding and acceptance of those with special needs by the millions of viewers watching the show each week, and that's priceless.

So what's your take? Should a television actor without a disability who's portraying someone with special needs be honored in this way? Does Abrams/McHale's performance and the attention to the subject matter warrant such recognition, or does this choice add fuel to the justification of taking away key acting roles from those with real disabilities? Weigh in. Raise your voice and write the editors of the magazine and tell them exactly what you think.

New Mobility editorial staff admits that their intention was to rattle cages and create controversy with their choice of the cover teen.

Mission accomplished.

Read the piece here.

Special Note: Lauren Potter's role of Becky Jackson on the Glee has also become a phenom. Potter plays a character with Down syndrome, a disability the actress has.

Courtesy cover.

Special Needs Casting Alert-Teenage Boy with Cerebral Palsy for New Kate Winslet Film Labor Day


I've been asked to put out the word for casting for the new Kate Winslet/Josh Brolin film Labor Day (Paramount Pictures), based on the New York Times bestseller by Joyce Maynard.

Here's the brief scoop. There's a role for a teenage boy, age 12-17, with cerebral palsy and an intellectual disability who uses a wheelchair. Filming will be next summer on the East Coast, so the gig will not interfere with school.

Find out more here, but act asap. Deadline is February 14th.

Major studio/film/director. Major stars. An actor with the disability in the required role.

Major progress.

Photo of RicStar Camp participants Judy Winter 2012

Disability News I Like


The White House has announced a nine-city disability tour this spring to address disability issues regionally.

Find out more here.

I like.

Photo Judy Winter 2012

Tuesday, January 31, 2012

Hear Yee!-Registration Now Open for 2012 RicStar's Camp


Registration for RETURNING campers is now open for the 10th Annual Eric 'RicStar' Winter Music Therapy Camp at Michigan State University's Community Music School (aka RicStar's Camp). Camp registration will open to all new campers beginning March 1st.

The 2012 RicStar's Camp will be held Thurs. June 14 thru Sat. June 16th. Fees are the same as 2011. Financial aid available. You must return a completed 2012 Registration form and payment to hold your spot.

Reminder: Register early! Camp always fills up quickly.

For more info, including opportunities to sponsor a deserving camper, signing up teens without disabilities for our popular Buddy Up Program, becoming a guest musician or an adult volunteer, please click here.

Music changes lives, especially here. But we can't make the magic happen without you.

Lives worth living. Focused on ability.


Photo Judy Winter 2012

Monday, January 30, 2012

Reminder-Last Call for VSA 2012 Entries for Young Soloists

Final call!!
Application deadline is tomorrow January 31st.

Equal time for musicians!! The VSA 2012 International Young Soloists Award Program is looking for entries from musicians, ages 14-25, with disabilities. Cash award and an opportunity to perform on the John F. Kennedy Center for the Performing Arts stage in Washington, D.C.!! Find our more here.

Focused on ability.

Photo RicStar's Camp by Judy Winter 2012

Best Buddies International-YouTube Friendship Video


Among other important work, Best Buddies International provides opportunities for one-one-one friendships between individuals with and without disabilities. Check out the YouTube video of one such friendship between Bridget and Eric, friends for two years.

Watch it here.

Courtesy logo.

Thanks, Oprah! I'm Lovin OWN's Super Soul Sundays


Wasn't so sure when it first started, but now I like what Oprah's been doing with her new network OWN. After channel flipping through the vast wasteland of Sunday morning television a couple of weeks ago and landing on OWN, I'm now hooked on Super Soul Sundays, and I'm pretty fond of Oprah's Master's Class too.

Thanks, Oprah, for continuing your quest to offer rich, intelligent and powerful discussions that help motivate me and feed my soul, and that of millions of others.

The woman gives great TV.

Photo Judy Winter 2012


Words of Wisdom from Iyanla Vanzant- February 2012


"Create what you want, instead of being stuck in what you don't have." -Iyanla Vanzant

Photo Judy Winter 2012

Kudos to Hallmark & A Smile as Big as the Moon



Okay, I admit I'm a sucker for all those sappy Hallmark Hall of Fame Specials. I like how they transport viewers to a simpler, gentler, more civil time, with no guidette or wayward housewife in sight. But last night's A Smile as Big as the Moon about a Michigan special education teacher who fights to take his class of students with diverse needs to Space Camp, captured my heart more than most. I savored every single moment of the program, and yes, it made me cry. Best of all, this wasn't just Sunday evening feel-good family television, this was based on a true story.

My son would have loved this story, all the kids in it, and going to Space Camp. I would have been in the thick of things helping make that happen, and then writing about it, too. Instead, I was cheering loudly at my television.

Kudos to Hallmark, one great Michigan teacher, and everyone involved with this terrific program.

More, please.

Courtesy image.

Media Alert! -NY Times-Ritalin Gone Wrong


Major op/ed feature in yesterday's New York Times about the use/abuse of Ritalin and other drugs. With millions of kids now being medicated, this piece is well worth the read and valuable discussion. It's written by L. Alan Sroufe, professor emeritus of psychology of the University of Minnesota Institute of Child Development.

Do the drugs really work or do they create bigger problems than they solve?

There are no quick fixes.

Sunday, January 29, 2012

REMINDER: Tonight-Special Needs Media Alert! Hallmark Hall of Fame

Can't wait to watch the new Hallmark Hall of Fame movie, A Smile as Big as the Moon, airing this Sunday, January 29th, on ABC at 9 p.m. E.T. The film's based on a true story/book about Michigan special educator and football coach, Mike Kersjes, who fights to realize a dream to have his special education students take part in Space Camp, a highly competitive educational opportunity that promotes the study of math, science and technology.

Extra perks? John Corbett, Aiden Shaw, of Sex & the City fame, plays the teacher, while many of the actors appearing as special education students, actually have special needs. Big progress.

Read more about the terrific movie here.

Education at its finest, and focused on ability.

Courtesy Image.

Judy Winter

Friday, January 27, 2012

Minute Vacations -Happy 175th Birthday, Michigan!


Haven't shared a Minute Vacation with you in a while, so here you go, a brief escape from the big and little demands of the day. This shot is of the Mackinac Bridge (aka Mighty Mac), which joins the Upper and Lower Peninsulas of my beautiful state of Michigan, which celebrated a birthday yesterday.

Happy 175th Birthday, Michigan! Your beauty still dazzles.

You can enjoy the Bridge WebCam here. But it is prettier in the summer.

Want to visit this incredibly beautiful state,? Click here. We are about more than just automobiles. Although, our cars are cool, too. They help drive the economy big time.

Photo Judy Winter 2012

Good Resource -Disability.gov



Disability.gov is the federal government website with lots of good information on national and local programs, communities services and valuable links for additional resources of importance to those with special needs, and to those who care about them and disability issues.

There's even a blog with guest bloggers.

Check it out here.

Courtesy logo.

Judy Winter

Thursday, January 26, 2012

Lives Worth Living -Blessing Offor, Musician


Recently, I posted the 2012 VSA Call for Musicians with Disabilities. In case you need a little extra motivation to enter, here's an update from VSA, regarding Blessing Offor, recipient of the 2010 VSA International Young Soloists Award.

Offer, who now has his own CD, 'Guilty Pleasure,' performed on the Kennedy Center Millennium Stage one year ago today.

Watch Offor's performance here. Music changes lives.

Life worth living. Focused on ability.

Courtesy photo.

Judy Winter

Lives Worth Living -Stephen Wiltshire-Artistic/Autistic Savant


I admit I only recently became aware of the incredible work of artist, Stephen Wiltshire (thanks Facebook friends!). Wiltshire paints and draws the most remarkable cityscapes with painstaking detail after studying them, sometimes only briefly. Wiltshire, who didn't speak fully until age nine, is also autistic.

The amazing story of this 38-year-old artistic savant is much too rich and beautiful for me to do justice to in a short blog post. Check it our for yourself, here. Well worth your time.

Life worth living. Focused on ability.

Photo of Chicago street artist by Judy Winter 2012

Kudos to Richard Redlin & New Web Series About Disability StarringLauren Potter


Hoping to create greater awareness of actors with disabilities, Richard Redlin, an actor with a disability, has created the new interactive online web series Leader of the Pack, a quirky comedy featuring kids with and without special needs. Redlin wanted to tell a great story, but with a more diverse cast.

The series will launch February 1st and stars Lauren Potter of GLEE fame. Potter has Down syndrome and has become a popular and vocal advocate for those with special needs.

Check out Leader of the Pack here.
Check out the Facebook page here.
Read why Lauren Potter agreed to star in the webcast here.
Check out Executive Producer/Creator Richard Redlin here.

Progress in Hollywood. Kudos to Richard Redlin and everyone involved in this ground-breaking series.

Courtesy photo.

Random Thoughts -Take it Inside, Governor Brewer


Don't really care what your beef is with the President, Governor Brewer. Pointing your finger at Barack Obama's face, especially in front of eager reporters recording every dirty look and angry word, is neither politically/media savvy nor cool.

Take it inside, please, and have a private conversation.


Photo Judy Winter 2012

Transportation Security Administration Launches TSA Cares



The Transportation Security Adminstration (TSA) has launched TSA Cares, a toll-free helpline to provide information and assistance to passengers with disabilities and medical conditions and their families before they fly.

Learn more here.

Friendlier skies on the horizon????

Photo Judy Winter

Wednesday, January 25, 2012

Gabrielle Giffords Officially Resigns From House of Representatives


Watch Gabby Giffords official resignation.

Love this woman. What a remarkable spirit she is, and an example for all. Can't wait to see where this new path takes her.

The world needs more Gabby Giffords.

Cool Photos- Eddie Tuduri of TRAP


Love this photo of Hani Naser of Hani Naser Band, and drummer, Eddie Tuduri, founder of the The Rhythmic Arts Project (TRAP), an international effort which uses percussion to facilitate learning in individuals with intellectual disabilities. Tuduri, who has played with such legends as Ricky Nelson and The Beach Boys, founded TRAP after breaking his neck in a surfing accident that left him temporarily paralyzed. The drummer used his music expertise to help himself recover, an event which dramatically changed the trajectory of the rocker's life.

Learn more here.

Photo courtesy of TRAP. Used with permission of Eddie Tuduri.

Special Needs Activism- Johnnie Tuitel Fights for Rights of Airline Passengers with Disabilities

Update on my friend, Johnnie Tuitel, who was removed from a US Airways flight in September 2010 after they deemed the popular author/speaker too disabled to fly. Johnnie is now working with lawyers and legislators to change a law that currently prevent him from suing the airline for damages. He's also creating a new Facebook page to support his venture entitled, Let Em All Fly. In case you missed it the first time around, I've included my original post on Tuitel's air-travel fiasco below.

You can watch an interview on Johnnie's latest advocacy efforts on behalf of all those with disabilities who fly, here.

Find out more about Johnnie Tuitel the man, here.
_______________________________________________________________
Former Post: October 15th, 2011

Just when I thought it was safe to take a day off from the blogsphere, a story comes up that hits far too close to home to ignore.

It's a disturbing story about US Airways allegedly taking a man off a late September flight because he was deemed 'too disabled to fly.' An agent then advised the passenger that he could only take the flight with an able-bodied companion who could assist in case of an emergency, a policy stated on the airline's website.

The man they removed from the aircraft is my good friend, Johnnie Tuitel, a motivational speaker, entrepreneur and author of the popular 'Gun Lake Adventure Series,' which features a child with cerebral palsy as its hero. The series is loosely based on Tuitel's life. The author is a family man, a college graduate who has traveled by air 500,000 miles the past two years alone to make a living and help support his family. That family includes three great sons, all of whom volunteer each year at the camp I co founded to honor my son's life called RicStar's Camp. Johnnie Tuitel serves as our camp emcee each year, and as a powerful example of ability for the campers. This year, his unselfish actions earned him our 2010 RicStar Award for Outstanding Community Service.

I met Johnnie years ago. Once you meet him, you never forget him. It becomes easy to ignore the wheelchair. As a journalist who'd recently turned her focus to special needs parenting, I was immediately fascinated by Johnnie's life story and his example of overcoming tough odds to live a productive life. Meeting him helped me see what was possible for my own son in light of his significant physical disability. I met Johnnie Tuitel at a time I most needed his example. Johnnie helped energized me for the advocacy work ahead. I've been forever grateful and we've become great friends.

After publishing a newspaper column as part of a series I did profiling successful adults with disabilities, I decided to also include Johnnie's story in my book. His story and spirit are equally remarkable. Johnnie has spent his entire life challenged by the physical realities of cerebral palsy. Given his big personality, that's not an easy reality. But Johnnie lives life to the fullest and doesn't waste time on 'why me?' He forges ahead, as he will after this recent event. He's smart, funny, hard working and charming, with a tremendous commitment to helping others as he heals from his own sense of loss of mobility. The author doesn't believe life owes him anything because of his disability. That's why this story hits so hard.

The man I know beyond the wheelchair is someone who would most likely help the crew get others off the plane safely in an emergency before even thinking of himself. Then, he'd crawl out if he had to, probably making jokes and laughing on the way out. He has spent his life fighting hard to promote human rights/dignity/independence for himself many others with disabilities, impacting countless numbers of individuals in life-saving ways. If anyone can turn this outrage into effective advocacy and necessary change, Johnnie Tuitel can and will. That's my friend.

Johnnie finally reached his destination to speak at the 2010 National Self Advocacy Conference in Kansas City on Delta, but he missed his professional gig.

I feel the sting of his outrage and the injustice, too. I'm again reminded of how far we've come, and how far we still have to go to ensure the rights of those with special needs.

I'm 'Team Johnnie,' all the way.

See the story/video here.

UPDATE Oct. 11-Fox News
UPDATE: See Johnnie Tuitel on CNN here.




Special Needs Media Alert! Hallmark Hall of Fame

Can't wait to watch the new Hallmark Hall of Fame movie, A Smile as Big as the Moon, airing this Sunday, January 29th, on ABC at 9 p.m. E.T. The film's based on a true story/book about Michigan special educator and football coach, Mike Kersjes, who fights to realize a dream to have his special education students take part in Space Camp, a highly competitive educational opportunity that promotes the study of math, science and technology.

Extra perks? John Corbett, Aiden Shaw, of Sex & the City fame, plays the teacher, while many of the actors appearing as special education students, actually have special needs. Big progress.

Read more about the terrific movie here.

Education at its finest, and focused on ability.

Courtesy Image.

Judy Winter

Monday, January 23, 2012

VSA 2012 Call for Musicians with Disabilities

Equal time for musicians!! The VSA 2012 International Young Soloists Award Program is looking for entries from musicians, ages 14-25, with disabilities. Cash award and an opportunity to perform on the John F. Kennedy Center for the Performing Arts stage in Washington, D.C.!! Find our more here.

Focused on ability.

Photo RicStar's Camp by Judy Winter 2012

Sunday, January 22, 2012

Life Worth Living -My Take on Gabby Giffords Resignation


So many people now making comments on social networking sites and in the media appear to feel sorry for and badly about Giffords announced resignation from Congress, while others have been calling loudly for just that.

But not me.

Because my family life also was completely turn upside down by the unexpected disability of my second child two decades ago, I see this development a bit differently than most. Like Giffords, my tough reality rocketed me into a challenging universe filled with amazing career and personal opportunities and special needs activism that I'd never envisioned for myself. I, too, left a job I loved, a glamour job in public television, unsure of anything except the need to help my son have a better life, a 24/7 commitment.

The need was immediate. Our futures uncertain. My future career path a huge question mark. That reality still stings. But I know I made the right decision, one that significantly impacted the quality of my son's life, and my own. It was never easy, but it was ultimately so rewarding. The toughest job I've ever held, with the greatest teacher I've ever known.

Since that day I walked out on my dream job (a no-choice choice), I've since had more impact on others than I ever would have if my life course not been so dramatically altered. I believe that's exactly what Giffords will do without the frustrating and sometimes selfish and painstakingly slow confines of the political process to impede her. I, for one, can't wait to watch it all unfold. Disability changes everything, and there is still healing to be done. She deserves time to prepare for this new chapter of her amazing life.

Gabby Giffords survived for a reason. I know.

Remarkable woman. Life worth living. Watch out world.

Watch the beautifully stated announcement here.

Thursday, January 19, 2012

Wednesday, January 18, 2012

Life Balance -New Shoes!


Love my new Gaga-like shoes. I wear them while sitting at my desk and stare. They provide me with creative, youthful inspiration. A shoe muse, if you will. But I can't walk in them, which clearly makes this aging-wanna-be-baby monster fashionista a bit of a woos.

Time to change into my cute Borns and go run errands.


Photo Judy Winter 2012

Peter Dinklage Dedicates Golden Globe to Martin Henderson


With regards to the rights and dignity of those with special needs, one part of this post celebrates how far we have come. The other, how far we've still to travel.

When Peter Dinklage, a successful and talented actor, who also has achondroplasia, a form of short-limbed dwarfism, accepted his Golden Globe this week for Best Performance by an Actor in a Supporting Role, he dedicated his win to Martin Henderson and then advised people to google the man. Turns out Henderson is an aspiring actor in England and was recently the victim of senseless act of something called 'dwarf tossing.' A stranger picked the actor up against his will and threw him to the ground resulting in partial paralysis.

I will never get used to such unforgivable, senseless examples of man's inhumanity to man, ever. But I will always raise my voice loudly against them.

Read more here. And kudos to the talented Peter Dinklage.

Special Needs Media Alert! -Push Girls to Debut in April


This new program
produced by Gay Rosenthal for the Sundance Channel about four Hollywood models who use wheelchairs, sounds promising, especially since Rosenthal also created the popular 'Little People. Big World.' I'll be checking it out when it debuts in April. Special note: three of the four women acquired their disability due to auto accidents, a sobering reminder that disability can happen to anyone at any time (not to mention the real dangers of distracted drivers and driving while drunk).

Now, if we could just get the media to quit using the outdated terminology 'wheelchair bound.' People don't live in wheelchairs. They use them to get from Point A to Point B.

A special needs activist's work is never done.

Find out more about 'Push Girls' here.

Courtesy photo.

Judy Winter
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
Winter Ramblings Blog
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