Wednesday, January 18, 2012

The Power of Technology & Autism & Personal Expression


Until age 11, a young girl with autism was locked inside a body and disability, unable to express herself in ways that others understood, until technology changed everything.

The ABC 20/20 Medical Mysteries segment featured below explains how Carly was able to break out of her body and communicate with others, especially her family, and show her intelligence. The resulting reality is both beautiful and life changing. The story reminded me of the first time my son, Eric, was able to express his own independent thoughts by using a computer, a memory which still brings tears to my eyes. He was finally able to prove that his wheelchair use and physical challenges did not also automatically equal an intellectual disability. Game changing. People treated him differently.

In the future, we had hoped state-of-the-art technology would give our son the freedom to pursue and showcase his love of music and song writing and attend college, dreams cut far too short.

Technology has opened up the world for so many people with disabilities, as has the unconditional love and perseverance of so many remarkable parents and some exceptional professionals. Bless them all.

Watch 'Autistic Gril Expresses Unimaginable Intelligence' here, and become inspired and further motivated regarding your own personal goals.

Photo Jenna Winter

Judy Winter

Heads Up-Free IEP Seminar in Detroit Jan. 25th


FREE IEP Seminar in the Motor City next week, in case you live nearby or plan to be in town. You can hit the 2012 North American Auto Show and Eastern Market, too!

Find out more about the seminar here.
Photo Judy Winter 2012

Child model with Down syndrome inspires thousands



I've already posted about how the Internet has been abuzz over a recent Target ad (love them!) that includes 6-year-old Ryan Langston, who has Down syndrome. The ad has received kudos because of the way in which Ryan's disability was never highlighted. In short, he was presented as just another model. This is an example of a growing and popular trend of using children with special needs in advertising, media efforts which have inspired many.

After working for twenty years to increase awareness of the value of kids with special needs, and their families, I can't tell you how excited I am to see this huge progress being made in the tolerance, acceptance and awareness of our kids in the media, not to mention greater appreciation and respect for the often overlooked purchasing power of their parents.

One note regarding the video below, I was left wondering why Ryan is not being educated in a regular school and classroom, especially given his status as just another kid in the media. Food for thought.

Learn more about Ryan's story here.
Child model with Down syndrome inspires thousands

A life worth living.

Judy Winter

Tuesday, January 17, 2012

2012 Call for Young Artists with Special Needs for CVS-VSA 5th Annual Competition







Calling all Young Artists with Special Needs!!!


Two of my fav resources, CVS Caremark’s All Kids Can CREATE program and VSA (the international organization on arts and disabilities) have again joined together to offer the 5th annual opportunity for young artists to see their work in action, and on display for all to see.

This year’s theme, What Inspires Me?, invites children to showcase their answers through original artwork. Appropriately enough, the contest kicked off yesterday on Dr. Martin Luther King, Jr.'s birthday. Artwork submitted before April 8, 2012, (click here) will be featured in an online gallery and considered for display in the “What Inspires Me” exhibition debuting at the Dr. Martin Luther King, Jr. Memorial Library in Washington, D.C. in August 2012. One hundred and two pieces of art―two from each state and the District of Columbia―will be part of the exhibition. Last year’s call for entries resulted in more than 4,700 submissions from across the country and featured paintings, photography and sculptures.

Children are invited to stretch their imagination by using traditional art materials as well as non-traditional ones, such as wrapping paper, newspaper or aluminum foil. In addition, teachers who submit their students’ artwork are eligible to receive one of four $1,500 cash awards to use in their classrooms.

The deadline for the 2012 All Kids Can CREATE Call for Art is April 8, 2012. To submit artwork, click here.

“CVS Caremark is proud to partner with VSA for the fifth year on the All Kids Can CREATE campaign, furthering our commitment to inclusion and giving children of all abilities a unique opportunity to express themselves through their artwork,” said Eileen Howard Boone, Senior Vice President of Corporate Communications and Community Relations, CVS Caremark. “The artwork celebrates each individual student and raises awareness in schools and in local communities about the importance of inclusion.”
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You know I like this stated mission, so get busy expressing your creative self and help change perceptions about what artists with special needs CAN do.

All Artwork from 2011 contest courtesy of CVS Caremark. All Kids Can. Used with permission.
Top: Shades of Grey-Martin Luther King, Jr. by Isabelle, age 11
Middle: A Color World by Jacob, age 12
Bottom: African Elephant by Tucker, age 5

Special Needs Kudos -Ricochet the Surf Dog


Update on that remarkable surf dog, Ricochet.

He's been one busy pup.

Watch it here.

When one door closes.....

Random Thoughts- Mood


Moody landscape. Gentle rain tapping on skylight. Jack curled up on my office chair, snoring gently. Sporting purple form-fitting post-holiday sweater dress with confidence (me, not Jack). SNAP! Breathing in steam of fragrant Ginger Peach tea from oversized mug cradled in my hands. Public Radio on loudly for inspiration and renewed spirit.

Perfect writer's day.

Photo Judy Winter 2012

Unearthed Treasures #5


Another unearthed treasure, a test shot taken years ago by the terrific Donna Terek, now a staff photographer for the Detroit News. The shoot was part of a Parents magazine photo essay of kids across the country with special needs and included Eric.

I love it!

Photo by Donna Terek

Celebrating a Decade of RicStar's Camp!


Getting in the mood for all the upcoming hoopla over the 10th year of the Eric RicStar Winter Music Therapy Camp!!! More soon, including info about 2012 camp registration.

Focused on abilities!

Photo Judy Winter 2012

Special Needs Thump on the Head to Virginia State Delegate Bob Marshall


There's so much I need to share with you today. Let's get started with some news from Martin Luther King, Jr. Day, news that both infuriated me and also seemed particularly timely.

While speaking at a conference against funding for Planned Parenthood, conservative Virginia State Delegate Bob Marshall (R), allegedly said, "God punishes women who have had abortions by giving them children with special needs," a statement that has fueled national outrage. Read that reported news here. Marshall denies that he either said or believes that statement and blames a student journalist for taking liberties with his words.

I watched the conference snippet and what Marshall said was, "the number of children subsequent to a first abortion with handicaps has increased dramatically. Why? Because when you abort the first born of any, nature takes its vengence on the subsequent children."

Say what???

Vengence is a particularly potent term here, one Marshall now says he regrets using. In his defense, not that I am defending the guy, (however, I do believe in fairness and accuracy in the media), studies back the reality that having an abortion can have serious future medical challenges, including increased risk of having a child with a disability, which was supposedly Marshall's poorly worded point. But his word choice and emotional presentation left his insensitive statement open to angry, defensive interpretation. Now, he's trying to stop the resulting firestorm that has ensued and save his political career.

On the plus side, this has generated opportunities for more valuable discussion and awareness of special needs, and revisited that stubborn belief by many that having a child with special needs is some sort of parenting curse, a outdated, cruel stereotype that needs to die. There is no shame in having a child with a disability. I repeat, no shame, unless you allow it to be placed there.

I watched the video that included Marshall's remarks and found them insulting and insensitive. Watch it here and add your take. Guilty as charged? Or, were liberties taken by an inexperienced reporter?

For the record Mr. Marshall, I've never had an abortion, but I was blessed, not cursed, with a remarkable child with cerebral palsy for nearly thirteen years. Like most parents, I didn't do anyting to create my unexpected and challenging parenting reality, but I did everything in my power to raise Eric as a child of value. In all his apparent imperfection, my son became my greatest life teacher. Eric could have taught you a great deal, too.

I believe strongly that someone needs educating, and it's not the people to whom Mr. Marshall appears to have hurled insults. Choose your words more carefully next time, Mr. Marshall. True leadership and compassion is what this country really needs, now more than ever.

Being a bit more media savvy wouldn't hurt, either.

Photo Judy Winter 2012

Monday, January 16, 2012

Honoring Equality for All on Martin Luther King, Jr. Day 2012


I have a dream, too, Dr. King.

When we speak of equality and dignity and human justice for all in your name, especially on this important day in history, we must remember to add those with disabilities to the equation and valuable discussions.

Their struggles and lives matter, too. Yet too often, they are ignored in these discussions.

Here's a past post about my take on this important day. I still stand by these words today.

Judy Winter

Wednesday, January 04, 2012

Unearthed Treasures #4





Quite possibly my favorite photo ever of my kids taken on my daughter's graduation day from high school. I know that Eric would have been an incredibly handsome and kind and compassionate adult, much like his beautiful sister. Try not to miss photo ops with your children. You'll be happy to have them.

One cherished image.

Photo Judy Winter 2012

Judy Winter

Special Needs Media Alert- LA Times & Joey Travolta & Inclusion Films


Inclusion Films, is a new workshop effort in Hollywood that trains adults with developmental disabilities on the in/outs of the film industry. It's spearheaded by Joey Travolta, brother of John. It's not the first effort for Travolta championing those with special needs. He's run acting workshops for those with disablities and produced the Keri Bowers/Taylor Cross film Normal People Scare Me, about living with autism. "I've found my true calling," Travolta says of serving this population.

Read the Los Angeles Times piece Inclusion Film Opens Doors in Hollywood, here.

Kudos to you, Joey Travolta, for all the ways in which you are using your name, talents and, important industry contacts to change the lives of those with special needs.

Responsible use of celebrity, and huge progress.

Logo courtesy of Inclusion Films.

Judy Winter

Esquire & George Clooney's New Canine Buddy


George Clooney knows that shelter dogs rock. Read cover-boy Clooney's take on his new canine buddy, Einstein, and politics, too, in the January issue of Esquire, here.

Jack gives this article and Clooney, four paws up. I just look at the actor's photo and sigh.

Please adopt!

Photo Judy Winter 2012

Jack -2012 Therapy Dog Update


Jack and I just got renewed for a third year representing Therapy Dogs International. So we're off to begin a new year of therapy dog adventures and changing kids lives, and they, ours. First day back after a long holiday school break and lots of sugar buzzes? Wind chill? Inside recess? Jack is going to be a very busy boy.

Let the lovin' begin.

Photo Judy Winter 2012

Noah's Dad and Target Advertising


Target has a long history of including kids with special needs in its advertising, efforts I've applauded in the past. What I like about a recent blog post entitled Target is Down with Down Syndrome: 5 Things Target Said by Saying Nothing at All, about the retail giant's marketing decisions to not make a big deal about using a model with DS in its advertising, is the kudos come from the father of a child with Down syndrome, aka Noah's dad.

I'm a big believer in the valuable role played by dads in all families, but especially in families that have children with special needs. Great dads rarely receive enough praise for what they do. I'm thrilled their voice/perspective/advocacy is out there in the blogging world, too.

Read one dad's take on special needs parenting, and about Target's recent marketing efforts, here.

Dads are Very Important Parents (VIPs), too.

Photo Judy Winter 2012

Developmental Disabilities & One Question-Sproutflix Documentary


At a time of year when so many of us cite lofty New Year's resolutions, most of which will never come to fruition, I find this simple 7-minute documentary by Sproutflix worth a look. It's another effort by Sprout, the non-profit committed to providing innovative programming for those with developmental disabilities and part of their Make a Movie Program.

Sprout also puts on the annual Sprout Film Festival in New York City each year, an admirable effort I've posted about in the past. The production crew for this short film included individuals with intellectual challenges and asked one question of 35 people with developmental disabilities:

If You Could change one thing about yourself, what would you change?

Watch the thought-provoking video here.

How would you answer this One Question about your own life?

Making the invisible visible.

Photo of Blair Williamson courtesy of Gail Williamson.

Sunday, January 01, 2012

Happy New Year Everyone!!


A good friend who suffered big losses during the holidays has announced that she will welcome her first grandchild in 2012. I like this first bold beautiful imprint on the new year.

Thanks to the Universe for balancing life out, congrats Sharon and John, and Happy New Year to everyone!

Shiny new life slate for all, overflowing with possibilities.

Friday, December 30, 2011

Fun Photos -Happy New Year's Eve 2011!

Judy Winter 2011

Special Needs Media/Advocacy Alert-Lauren Potter & the President's Committee for People with ID




From Lauren Potter's mother, Robin:
Please join me in congratulating Lauren as she is sworn in for her appointment to the President's Committee for People with Intellectual Disabilities on Tuesday, January 3rd, 2012, at 10 a.m. at the Mayor's Office at Riverside City Hall. We are SO proud of our girl!
_________________________________________________________________


Can't wait for Tuesday. Huge congrats to you, Lauren Potter! All signs point to you continuing to be an excellent, vocal and highly visible advocate and spokesperson for those with special needs. Great way to begin 2012.

Cause for celebration, and progress.

Photo of Lauren Potter with Blair Williamson courtesy of Gail Williamson.

Unearthed Treasures #3

Another unearthed print treasure of Jenna and Eric, and one of my favorite photos of them ever.

Worth a thousand words, plus.

Thursday, December 29, 2011

Words of Wisdom from Dr. Seuss-January 2012



"Be who you are and say what you feel, because those who mind don't matter, and those who matter, don't mind." -Dr. Seuss

Photo Judy Winter 2012

My new FAV Special Needs Mommy Blog-Flappiness Is


There are several informative and entertaining special needs parenting blogs being written today by moms and dads who are walking this often dicey walk. One of my new favs is flappiness is: Navigating the World of Early Childhood Autism with One Special Little Boy by Leigh Merryday, the parent of two young children under age six, including one with autism.

Can you imagine this mom's daily challenges?

I recently featured her blog post An Apology From Your Child's Former Teacher, a post which has generated lots of reaction, pro and con. Merryday's words are especially helpful for those parents of kids challenged by autism. But I find this mom's insightful, honest and humorous posts worth the read by all who care about children with special needs, and by those trying to better understand its big challenges and many rewards.

Merryday doesn't sugarcoat her daily reality and she's not afraid to tackle controversy, which I believe helps her better educate others. And that, helps create needed change. Kudos to you, Leigh Merryday.

Read flappiness is here.

Photo courtesy of Leigh Merryday. Used with permission.

Lives Worth Living Day 22- Rynita McGuire & Arthrogryposis


Thirty-four-year-old, Rynita McGuire, was born with Arthrogryposis Multiplex Congenita, a rare condition that results in multiple fixed joints throughout the body and significantly limits physical movement. But that reality hasn't stopped her from living life full out, including getting a college degree from Western Michigan University, painting in a college studio, and becoming a DJ.

Read an article focused on McGuire can do, here.

Life worth living.

Photo Judy Winter 2011

Monday, December 19, 2011

Lives Worth Living- Day 21-Sophie



Sophie is a loving therapy dog who lost back function after she fell off a truck. Like many humans with such injuries, Sophie now gets around using a set of wheels. This determined dog makes a difference in many lives, including at RicStar's Camp each summer, where she is a big draw and an inspiration.

Remarkably resilient and loving, and a life worth living.

Photos Judy Winter 2011

Judy Winter

Worth Repeating: 2011 Toys R Us Differently Abled Toy Guide w/Eva Longoria Cover


Make better good choices for those with special needs. This annual guide helps you do just that.

Worth Repeating: Creating Holiday Magic for Kids with Special Needs




Reminder: My tips for Creating Holiday Magic for Kids with Special Needs can be found here.

If you prefer, you can watch me deliver them on video here.


Huffington Post Reporter Shines Light on Depression


Huffington Post science reporter, Cara Santa Maria, helps shine a light on an important and often-hushed subject, depression. Watch it here.

Two minutes plus of valuable awareness.

Photo Judy Winter 2011

Media Alert! - Zach Anner Adventures: Part 2 Tonight on OWN




Zach Anner is back in action on the Oprah Winfrey Network (OWN) tonight with back-to-back episodes of Rollin with Zach, including Chicago travels. Find out more here.

Photo Chicago Judy Winter 2011

Saturday, December 17, 2011

Holiday Photos -Santa Jack 2011





Jack made me work like a dog for this shot; pun intended. Something about how I promised I'd never dress him up, especially at Christmas. I lied.

He does look good in red, doesn't he?

Happy Holidays!


Photo Judy Winter 2011

Unearthed Treasures





My son's life was lived out before digital. So, while I'm thankful I took lots of photos to document his far-too-short short life, I've only recently felt healed enough to begin scanning priceless memories. The result has been unearthed treasures, especially of Eric and his terrific big sister, Jenna.

Merry Christmas to me.

Photo Judy Winter 2011

Friday, December 16, 2011

New Book Alert-David Finch and Asperger Syndrome & Lives Worth Living-Day 20



David Finch wrote a New York Times essay, Somewhere Inside, a Path to Empathy, that included his take on being an married adult with Asperger syndrome. His words became the basis for his new book, The Journal of Best Practices: A Memoir of Marriage, Asperger Syndrome and One Man's Quest to be a Better Husband. Finch was first diagnosed with higher-functioning autism five years after he got hitched to Kristen, a speech therapist. The book chronicles how the diagnosis has impacted their marriage and his life.

Dave Barry, author of 'I'll Mature When I'm Dead: Dave Barry's Amazing Tales of Adulthood,' writes of Finch's book: "His often-hilarious efforts to understand and cope with his condition will resonate with every guy whose wife has ever asked him, “What the hell were you THINKING?”

I think this is only the beginning of such stories about new adult diagnosis. Wonder how many relationships and marriages Finch's words might save, and how many adults will see themselves in his diagnosis. Probably more than one woman will be saying to herself about her husband, "Okay. Now I get it."

Read more about Finch and his work here.

Courtesy image.

Judy Winter

Thursday, December 15, 2011

Fun Photos- Falala





Love shooting unexpected holiday photos, especially urban shots, like this one in Chicago.








Worth Repeating -Best Buddies International



I love this, a lot. That's why I keep repeating it.


"Best Buddies is a nonprofit organization... that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities (IDD)."

Find out how you can get involved in this terrific organization and mission, here.

True inclusion happens peer to peer.

Photo courtesy of Best Buddies.

Worth Repeating-Book Review -Come to the Edge by Christina Haag


Since many people buy books for holiday gifts, here's a repeat of my recent post of a fav read of mine this year: Come to the Edge by Christina Haag, which also has a brand new book cover. My guess is the new publishing choice of John John on the cover of the now bestseller is sure to sell more copies, and I understand why.

Here's My previous post/review:
Most of us have read books that leave us wanting more when we've turned the last page. 'Come to the Edge' by Christina Haag is such a book. Throughout its pages, the actress skillfully chronicles her life, which includes a passionate five-year love affair with John F. Kennedy, Jr., and a diagnosis of breast cancer at age forty four.

I agree with some reviewers that have taken the author to task for jumping around a bit too much, making it challenging at times to follow the storyline. But the writing is stellar and Haag offers the curious a fascinating, always respectful glimpse into the Kennedy's privileged world without turning tabloid. She captures 'John John's' unending, contagious and sometimes dangerous zest for life, and the excruciating pain of her own great loss. The result is a beautiful, haunting and tragic love story, and a great read.

One only the author could tell.