Thursday, November 10, 2011

Worth Repeating-Join the Anti Bullying Campaign


A few years back, I wrote a major feature on bullying for the Lansing State Journal before it became a hot topic. What amazed me then, maybe even more than the courage of the students who spoke out honestly for the article, were the adults who said to me after reading the piece, 'these kids need to get a thicker skin.' I've never forgotten that.

Today, bullying is still a subject dear to my heart, in large part because kids with special needs are at increased risk for such unwelcome comments and actions because of their differences. We can and must change this mean-spirited, ugly and deadly culture. It takes all of our voices to impact the needed change. No child should be subjected to such treatment in our school hallways, online or at home.

Please, take a moment and add your voice here and helps change a child's life. Talk to your children and let them know in no uncertain terms that bullying is not okay. Peer behavior and leadership is huge part of the solution to this problem, but adults must set the example.

I repeat what I wrote in an earlier post today. Silence changes nothing.

Let's get loud.

Courtesy logo

Winter Ramblings Blog a Favorite of CVS Caremark- All Kids Can


Thanks for including me as one of your favorite special needs blogs, CVS Caremark! That's in addition to already including me as one of your expert voices for the CVS Caremark All Kids Can initiative on Facebook, part of a five-year, $25 million commitment to making life easier for children with disabilities. Kudos to CVS for their strong commitment to this often underserved population and for their invaluable mission of "creating opportunities for children of all abilities."

You like me, and I like what you're doing, too.

You can find my Tips for Professionals Working with Special Needs Families, here.

Keep checking back. More CVS posts to come.

Lives Worth Living- Day 9








Good News! -The X Factor's Rachel Crow's Got My Vote


I'm a sucker for any story about a child overcoming the odds, especially when they are huge with talent and personality like Rachel Crow. The adorable, and she is adorable, 13-year-old X Factor contestant reportedly had a tough start to life, including as a crack baby. Fortunately, Rachel was adopted out of a bad situation into a better life while still an infant. The young teen is a little spitfire, in a really good way. I love her.

She's got my vote.

Read the story and watch Rachel in action here.

Photo Jenna Winter 2011

Wednesday, November 09, 2011

Dr. Weil Talks His Own Depression on Dr. Oz Show


This is worth sharing. For those of you challenged by depression, or those who care about someone who is, this is for you. Dr. Andrew Weil was on the Dr. Oz Show today speaking for the first time about his own life-long challenges with depression. Weil shared a 4-Week Happiness Plan that included what many people can do with diet, supplements, and nature's antidepressants to improve their mood (for mild to moderate depression), sometimes dramatically. The information is part of his new book Spontaneous Happiness.

Weil cites that the numbers of people with depression and on medication, including children, are staggering and continue to grow. Yet, as a society, we often aren't comfortable talking about mental health issues in part, because of shame and misinformation. That's why I'm sharing this post with you today.

Here's hoping Dr. Weil's discussion helps create greater awareness of this important subject that impacts so many people. Kudos to Dr. Weil and Dr. Oz for putting the discussion center stage, where it belongs.

That will help change lives.

Photo Judy Winter 2011

Book Review -Come to the Edge by Christina Haag



Most of us have read books that leave us wanting more when we've turned the last page. 'Come to the Edge' by Christina Haag is such a book. Throughout its pages, the actress skillfully chronicles her life, which includes a passionate five-year love affair with John F. Kennedy, Jr., and a diagnosis of breast cancer at age forty four.

I agree with some reviewers that have taken the author to task for jumping around a bit too much, making it challenging at times to follow the storyline. But the writing is stellar and Haag offers the curious a fascinating, always respectful glimpse into the Kennedy's privileged world without turning tabloid. She captures 'John John's' unending, contagious and sometimes dangerous zest for life, and the excruciating pain of her own great loss. The result is a beautiful, haunting and tragic love story, and a great read.

One only the author could tell.

Creating Holiday Magic for Kids with Special Needs 2011


Since all those festive commercials seem to be in full force already, I've decided to post my annual holiday tips early, too. My hope is that the tips that are part of Creating Holiday Magic for Kids with Special Needs help make your celebrations a bit more joyful, no matter what traditions you honor. Feel free to share these tips, but please credit JudyWinter.com/2011. All rights reserved.
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Creating Holiday Magic for Kids with Special Needs 2011:

-Interact with family members with special needs, and encourage others to do the same. If the child uses a wheelchair, kneel to eye level and address the child directly. Allow other kids in the family to buddy up and assist the child with special needs in hanging ornaments, frosting cookies, setting the table, or passing out presents. Help that child participate whenever possible, while teaching other kids in the family valuable, lasting life lessons.

-Practice forgiveness whenever possible. Most family members don’t intentionally set out to exclude children with special needs. They often require education, support and positive examples to bring them up to speed. By focusing on creative solutions, families can help realize holiday magic for kids with special needs, too— and that’s in keeping with the spirit of the season.

-Buy age/skill-level appropriate gifts for the child with special needs. Regardless of how well intentioned, inappropriate gift selection for children with special needs hurts. When in doubt, ask parents for gift ideas, or obtain a copy of the child’s holiday wish list. Reserve baby toys (and baby talk) for babies! Key Note: Toys 'r Us offers an annual Toy Guide for Differently-Abled Kids, 'a toy selection guide 'for parents and friends of children with disabilities,’ to ensure the holiday toy wishes of kids with special needs come true, too. The 2011 guide with Eva Longoria on the cover can be downloaded here: Toys R Us.

-Communicate! Don't assume others can read your mind. They can't. Instead, arrange family meetings to discuss your child’s needs and how to best address them. Provide needed training and brainstorm ways to include the child with special needs in family activities. For example, if a he/she uses a wheelchair, address accessibility issues and plan activities in locations that don’t involve stairs. Speak up now to help prevent bigger misunderstandings and hurt feelings later on. Family members, you can reach out and initiate problem solving, too. Our children are always worth our best efforts, and your support to these families is priceless.

-Redefine your expectations. Throw all those visions of a perfect Hallmark family holiday right out the garland-draped window! Instead, ask what memories you want to create for all of your children. Having a child with special needs does not mean you must forgo memorable and fun holiday moments and traditions. Think creatively! It's worth the effort.

-Inclusion is the name of the game! Kids with special needs are children first, with big dreams and long holiday wish lists, just like other kids. Whenever possible, include the child in holiday festivities and activities like tree trimming, baking cookies, shopping for gifts, and attending church services (use the cry room if needed). Include that child in family holiday photos and videos, too.

-Address food allergies and noise/touch sensitivities and make allowances for them. The seasonal bounty this time of year can result in overload for many children, especially those with sensory, auditory and food issues. Kids with food allergies may not be able to eat all the traditional goodies most of us eagerly gobble up. Discuss alternative choices and inform family members about any life-threatening food allergies so they don’t offer the offending food to the child.

Wishing you the happiest of Holidays!

Photo Judy Winter 2011

Tuesday, November 08, 2011

Lives Worth Living- Day 8






The always enthusiastic Jenna, with RicStar's Camp volunteer, Emily.





Photo Judy Winter 2011

Vote for J.R. Martinez on Dancing with the Stars!


From my friend, Gail Williamson of the Down Syndrome Association of Los Angeles (DSALA) and Heart and Halo Talent:

"I attended the Tri Union (SAG, AFTRA, Equity) Diversity Awards last night at the Nate Holden Theatre. J.R. Martinez was one of the honorees. A lovely man who came right over to accept his award after getting a perfect score for his dance on ABC's Dancing with the Stars. J.R. has the stuff, but not the fan base to vote for him like some of the better known dancers who aren't as good. It's time for those of us who support diversity in the media to step up and help a guy out. Next Monday night, vote on every phone you have for him. Tell your friends to vote for him."

My words: I don't believe you should vote in diversity in a contest or life where it is not earned or deserved. But in this case, not only is J.R. Martinez an amazing, spirited and gifted man and a great example of ability to others, but I think he's the best dancer, too. And wasn't that the initial premise of this show anyway?????

Read J.R.'s inspiring story here.

Then please, vote.

Courtesy photo.

Jack's New Therapy Dog Gig


Today is Jack's first day of elementary school as a Therapy Dog. I know this former shelter dog is going to generate lots of smiles and giggles in the classrooms and hallways, and petting is absolutely guaranteed.

Hopefully, this gentle and charming canine will have positive impact on student behavior, self esteem and their reading, writing and arithmetic. No doubt, at least one student will ask 'what happened to his tail?' (It's the breed). Lucky me, I get to go with him and join in all the magic.

Who said school isn't fun? Wish us luck!

You, too, can change someone's life by volunteering. There's no shortage of need.

Photo Judy Winter 2011

Monday, November 07, 2011

Media Alert! -Pres. Obama Names Lauren Potter of Glee to President's Committee for People with Intellectual Disabilities




According to news on Disability Scoop, actress Lauren Potter has been tapped by President Obama to be part of the President's Committee for People with Intellectual Disabilities. Potter, 21, is one of the stars of the hit FOX program Glee. She has also added her voice to the campaign to end use of the word retarded in everyday language. The talented young actress and activist has Down syndrome.

Read the news here, and cheer along with me.

Focused on ability.

Image courtesy of IMDb

Lives Worth Living- Day 7



















My good buddy, Dan Saur, and his terrific family, Chuck, Sue and Nick.

Photo Judy Winter 2011

Sunday, November 06, 2011

Street Art-Detroit's Eastern Market





After my last post, I feel the need to post something of beauty. I think this street art I discovered yesterday at Detroit's Eastern Market fits the bill nicely.

Media Alert -New York Times Addresses Questionable Deaths of Those with Disabilities in State Care


Some stories are very difficult to read and share, as is the case with today's New York Times piece about the questionable deaths of 1,200 individuals with disabilities in state care in New York. For those who have children of all ages with special needs, this is the kind of story that reinforces their worst parenting nightmares about the horrors of possible outside placement for their loved ones, even when a placement is needed and the groundwork must be done to find a good one. It's also another reason so many families are today taking part in building/running group homes their children live in.

Hard to read,? Absolutely. But at least, we are no longer hiding these atrocities. That will help create needed change, including how we train and pay those entrusted with the care of such individuals. We need to see this population as 'people first,' with value, not as the unnamed and easily dismissed disabled, as has been the case in this country, and the world for far too long.

My heart broke reading this story, both for families who are part of this tragedy, and because I know that for the grace of God, this could easily be any parent's story.

Shameful. We must do better.

Read In State Care, 1,200 Deaths and Few Answers, here.

Photo Judy Winter 2011

Judy Winter

Random Thoughts-Parents of Kids with Special Needs


I'm convinced that if elected to office, involved, loving parents of kids with special needs would get important things done in an efficient and timely manner. They have neither time nor energy to waste, and most give of themselves to others unselfishly 24/7, aware that what they do in each moment impacts the future of a child, and their own. They'd see what needed to be done and they'd roll up their sleeves and get to it. No excuses.

There are no harder working, more dedicated individuals anywhere.

My hat is off to each one of them.

Photo at Detroit's Eastern Market by Judy Winter 2011

Judy Winter

A Parent's Guide to Tweens and Teens with ADHD







Did you know that a recent study found that teens with Attention Deficit Hyperactivity Disorder (ADHD) are considered at greater risk for participating in risky behaviors? Here's a link with helpful tips and resources for parents on how to better address the needs of tweens and teens with ADHD.

Find it here.

Photo Judy Winter 2011

Lives Worth Living Photos - Day 6




Evan and his terrific mom. A parent's belief in their child, and all that unconditional love, is powerful indeed.



RicStar's Camp by Judy Winter 2011

Reminder -Dates for 2012 RicStar's Camp Announced


Dates for the 10th annual Eric 'RicStar' Winter Music Therapy Camp, a.k.a. RicStar's Camp, have been announced. Camp is open to individuals of all ages and all disabilities and their siblings. Our focus is on ability.

Camp will be held Thursday, June 14th through Saturday, June 16th. Put it on your calendars and stay tuned for future details about registration.

RicStar's Camp has been changing the lives of children and adults with special needs through music for a decade. Huge milestone.

Eric must be smiling. I know I am.

Photo Judy Winter 2011

Worth Repeating - Best Buddies






"Best Buddies is a nonprofit organization... that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities (IDD)."

Find out how you can get involved in this terrific organization and mission, here.

True inclusion happens peer to peer.

Photo courtesy of Best Buddies.

Reminder-Judy Winter's Parenting Tips on YouTube




I'm pleased to share with you that tips for four special needs parenting topics that I filmed for the PBS program A Wider World are now on YouTube. You can view them all at the links below, and please share with others you know could benefit. I'll add more links as they become available.





Photo by Erik Taylor Photography

Thursday, November 03, 2011

Lives Worth Living Photos - Day 5







My remarkable and accomplished friend, international motivational speaker and disability activist, Al Swain, at the ADA 20th Anniversary celebration at Michigan's Capital. One of the most gracious people I've ever met.

Photo Judy Winter 2011

Judy Winter

Special Needs Kudos! -Trent Glaze Scores Touchdown




Trent Glaze is a member of the Fairfield Union High School football team in Ohio and recently scored a touchdown. Not usually national news. But Trent has muscular dystrophy and uses a wheelchair. This young man, who wants to coach one day, is solidly focused on ability, as are others around him.

For this story, I give props to the media, Huff Post News, for avoiding use of the all too commonly used and limiting words 'wheelchair bound' and instead writing 'student who uses a wheelchair' in the headline promoting the piece on their website. (Unlike AOL & ABC which highlighted the story using the same old language). Words do matter.

Score! And progress. More needed.

Kudos to you, Trent Glaze. Ability rocks.

Watch the future football coach in action, here.

Photo Judy Winter 2011

Wednesday, November 02, 2011

Christopher & Dana Reeve Paralysis Resource Center & Smart Phones






Just announced, the 2011 Christopher & Dana Reeve Foundation's 2011 Guide to the Best Apps for Individuals Living with Paralysis, including IPhone, IPad, IPod touch, Android, Blackberry and more.

Find the guide here.

Simpler times? Photo Judy Winter 2011

Lives Worth Living Photos - Day 4















Words of Wisdom from Sarah Ferguson, The Duchess of York -November 2011







"Listen to everyone's advice, but make up your own mind."

Random Thoughts-Trees






I feel badly for kids today who don't have the marvelous experience of playing outdoors for hours on end, their overactive imaginations blazing, no technology or parents in sight. The creative seeds of my life as a writer were planted years ago when as a child, I was rocked in the strong arms of tall, magnificent trees. There, I would daydream away summer hours until stern last calls for dinner, the final light of day or the appearance of the night's first lighting bug, or it got too cold. It was true freedom and the young muse flowed freely. I owe a lot of my creative success as a writer to those early tree moments. No wonder they still hold my heart.

Maybe I'll ignore technology, grab a pad/pencil and go climb one today. But I'll no doubt choose a lower branch than would my carefree, naive younger self.

Photo Judy Winter 2011

Monday, October 31, 2011

Lives Worth Living Photos - Day 3











Smart, cute, determined Katie.


Kim Kardashian Filing for Divorce After 72 Days? Please.






Sometimes, I just can't hold my tongue. This is one of those times. I'll be brief.

Maybe it's because I'm in the midst of trying to think up new ways to provide scholarships for all the great campers at RicStar's Camp as we prepare for year 10, or maybe it's because it seems people bolt out of marriages these days at the least sign of discomfort and my hubby and I have joined forces through 35 years of tremendous challenges, including special needs parenting and the death of a child, but news of Kim Kardashian's divorce after 72 days and 10 million dollars and an inability to agree about where to live makes me a bit ill. That money could have done so much good for so many people in need. Thank God there wasn't a child involved in this one.

Here's a novel idea. Get married for the right reasons.

Feel free to share your thoughts.

Photo of me and my hubby. Still together after all these years.

Media Alert! -2011 Toys R Us Differently Abled Toy Guide w/Eva Longoria


The 2011 Toys R Us Differently Abled Toy Guide, with Eva Longoria on its cover, is now available online. Longoria's sister, Elizabeth, was born with Down syndrome, making this a great fit for the superstar special needs sib. Longoria shares the cover with 5-year-old Elijah De Lo Corda, who has Down syndrome.

Find the guide here.

Kudos to Toys R Us for publishing this valuable guide for nearly twenty years, a resource which helps take some of the guess work out of purchasing age/skill level appropriate and fun gifts for kids with physical, cognitive or developmental disabilities. What a blessing for the families and their children. The end result? More smiles on the faces of the lucky receivers.

Kudos to the Desperate Housewives star for honoring her sister by advocating for important resources for those with special needs. You can find out more about Longoria's charity designed to enhance the lives of those with developmental disabilities, Eva's Heroes, here.

Love it when celebs use their celebrity for good, especially when it benefits the lives of those with special needs. Thanks, Eva!

Image courtesy of Toys R Us.

Thursday, October 27, 2011

Media Alert! -American Horror Story & Jaime Brewer




From my friend, Gail Williamson at the Down Syndrome Association of Los Angeles (DSALA):

'This is my son (actor), Blair, and his friend (actress), Jamie Brewer. Jamie is a recurring character on FX's American Horror Story (an acquired taste). Tonight Jamie does her first stunt and we are all so proud of her. Go Jamie!'

Ditto, Jamie.

Check out Heart & Halo Talent for actors with Down syndrome, here.

Photo courtesy of Gail Williamson/DSALA.