British scientists have found direct link between genetics and Attention Deficit Hyperactivity Disorder (ADHD).
Thursday, September 30, 2010
CRF Announces Winner of Best Dad on Wheels Contest 2010
The Christopher and Dana Reeve Foundation has announced that Ben Hayes of Auburn, Maine is the winner of the 2010 Best Dad on Wheels Contest. You can find out more about Hayes and read the winning entry here.
Congratulations, Ben!
Photo by Judy Winter 2010: Participants in Michigan's 20th ADA Anniversary Celebration.
Minute Vacations -October 2010
Cider & Donuts & Classic Cars
Uncle John's Cider Mill
St. John's, Michigan
How well I remember the many times I briefly escaped the demands of special needs parenting simply by taking a drive in my car. Those short escapes worked wonders, and I always came back ready to take on the next challenge.
Where would you go if you could hit the open road right now?
Photo Judy Winter 2010
Saturday, September 25, 2010
Special Needs News -Eunice Kennedy Shriver Day 2010
I'm thrilled that my son's birthday now falls on the same date as Eunice Kennedy Shriver Day.
Judy Winter
With the exception of Christopher Reeve, whose birthdate is also today, I can't think of a better person with whom to share September 25th.
It's an honor that helps heal the sting of my great loss.
Photo courtesy of Special Olympics. Used with permission.
Happy 20th RicStar!
Happy 20th birthday, my beloved Eric! You'll live on in my heart forever.
xoxoMom
Monday, September 20, 2010
Breakthrough Parenting Top 5 Special Needs Pick on Fox Morning News-Boston Parenting Segment
Happy to be included in this morning's Fox Morning News- Boston parenting segment as one of Top 5 special needs books as selected by author/parenting expert Lynne Griffin.
When it comes to special needs parenting, great resources can make a world of difference.
Thanks, Lynne!
Wednesday, September 08, 2010
MDA 2010 Tribute to Mattie & Jeni Stepanek
Of the many wonderful people I've been honored to interview during my career, Mattie Stepanek and his remarkable mother, Jeni, remain two of my favorites. Enjoy a well-deserved 2010 tribute to this young peacemaker and poet by the Muscular Dystrophy Association (MDA) here.
Gone too soon.
Photo 'Free' Judy Winter 2010
Tuesday, September 07, 2010
Back to School -Letting Go 2010
Big hugs to all those parents learning to let go of their babies for the first time this morning, and to all those still trying.
Judy Winter
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
Winter Ramblings Blog
Flickr Page
Tuesday, August 31, 2010
Minute Vacations -September 2010
Basilica of the Sacred Heart
Where do you find your strength?
Words of Wisdom from Neale Donald Walsch -September 2010
"Life begins at the end of your comfort zone."
Tuesday, August 24, 2010
NY Times Essay Explores Role of Adult Sibs in Special Needs Families
When Lorna Wyckoff's mother died ten years ago, part of her inheritance included partial responsibility for her adult brother John, who is intellectually challenged.
Wyckoff's examines that reality in a bittersweet essay in Sunday's New York Times Style section, sharing how she came to terms with this challenging new responsibility. The piece is a reminder of the valuable, complex and often life-long role played by sibs in special needs familes.
You can read My Brother's Keeper (Assembly Required) here.
You can read My Brother's Keeper (Assembly Required) here.
Judy Winter
Wednesday, August 18, 2010
The Story of Richard Prangley on PBS Wider World/You Tube
Of all the inspiring special needs stories that I have heard or told during the past twenty years, and there have been many, few have touched me as much as the life story of Richard Prangley.
Prangley was wrongly institutionalized as a child and labeled a 'low-level imbecile' and 'unable to learn' by professionals. What Richard experienced after being committed by his family at age six to the former Coldwater State Home in Michigan is both horrific and inexcusable. But what this man has done since being freed from that setting at age 21, including becoming a passionate lobbyist for the developmentally disabled at high levels, is nothing short of remarkable, and a real tribute to the power of the human spirit to triumph over the toughest life circumstances.
Richard's story was first skillfully and honestly captured in 1998 by popular Lansing State Journal (LSJ) columnist, John Schneider, in the book 'Waiting for Home: the Richard Prangley Story.' The two men have remained close friends since the day they first met in the LSJ newsroom more than thirty years ago.
You can view the two-part feature of Richard's remarkable live story on YouTube, here. Thanks to Elizabeth Kelly of the PBS program, 'A Wider World,' for doing an outstanding job translating a fascinating and complex life story for television.
I'm blessed and honored to call Richard Prangley, John Schneider and Elizabeth Kelly my friends. I'm thrilled to have been part of the effort to bring this inspiring story to the PBS program 'A Wider World,' and happy to share it with you on this blog.
Richard Prangley is one of the finest human beings I've ever met, and he has much to teach us all about the power of forgiveness and true faith. I suggest you share his story with everyone you know, and refer to it when you need a boost in your own daily life, especially when challenged by the daily realities of special needs.
I do.
Photo: Richard Prangley, Judy Winter and Elizabeth Kelly at RicStar's Camp 2010, where Richard received the 'RicStar' Award for Outstanding Special Needs Advocacy.
Friday, August 13, 2010
Back-to-School Special Needs Prep -Letter to Eric
It's that time of year again when the back-to-school buzz is everywhere you turn.
But when you have a child with special needs, back-to-school prep is about more than shopping for shiny new backpacks, squeaky markers and the right bluejeans. It's about good student-teacher fits, working successfully with your child's team members, and meeting challenging IEP goals, while trying to realize some cherished parenting dreams. It's a highly emotional rite of passage for millions of families of children with special needs.
Not all back-to-school needs can be met at Walmart.
So I'm again pulling a sacred letter from my writing archives to provide you with some back-to-school inspiration to help calm your frayed parenting nerves. Letter to Eric was written to my son in 1995 as he left the safety of our family nest to test his fragile wings at our neighborhood school. It was an unnerving time, and an exciting one, too. Inclusion was a rarity and I was incredibly naive about the challenges and roadblocks that lay ahead of us. But I knew what I wanted for my child, and that first day of school milestone turned out to be the beginning of a challenging and rich journey filled with powerful life experiences that continue to fuel my work as a writer/speaker/advocate today.
Unfortunately, Eric passed away in 2003 at 12, ending our back-to-school adventures. But each fall, I feel Eric's strong presence, smell his sweet hair, see his enchanting smile, and remember with deep love and gratitude the back-to-school adventures of a lifetime that we took together.
May the heartfelt words of one adoring mother inspire you in much the same way as they continue to touch me. Perhaps you'll begin your own letter-writing tradition, something I highly recommend.
Now, pass the Kleenex......and have a wonderful first day of school!
______________________________________________________________
LETTER TO ERIC
August 28, 1995
Dear Eric:
Today, as you begin kindergarten, I’m writing you a letter, a tradition I began with your big sister, Jenna, seven years ago.
The first day of school is a fall rite of passage, like brilliantly changing leaves, crisp evening air and earlier bedtimes. For our family, it also represents hard-won success. Some professionals believed the physical challenges of cerebral palsy would prevent you from learning in a regular school environment. Armed with cold, hard statistics, they warned of a life of segregation. But our family doesn’t bank on statistics. We invest in the human stuff, like love, faith and hard work.
We chose a different road.
From the moment you first dramatically graced our lives, we’ve focused on your ability. In turn, you have exhibited a spirit of survival that astounds me. We’ve endured too many moments of grief and ignorance. Yet, what I remember most is your first smile and giggle, your first word and your success at a regular preschool.
You are a wise and handsome child, with inquisitive brown eyes that miss nothing. Much of your ability to positively impact others has come from their first impressions of you as a cute child. Your long and lanky frame holds just thirty hard-won pounds, but you are far from being a lightweight in this life. There have been critical hospital stays, invasive procedures and moments when your life was in peril. But today, we celebrate school and a powerful lesson in letting go.
Today, our family is no different.
In your back-to-school outfit of GAP overalls, white Mickey-Mouse T-shirt and black Oshkosh shoes, you charm me. But there will be challenges. The ground we tread is fresh, presenting a challenge to those uncomfortable with inclusion, a word promising equal educational opportunities for all children. Some people won’t understand our fight and won’t want too. Yet, other educators will also teach from their hearts.
This will be a year of new challenges. When people assume physical challenges include mental impairment, you’ll be the first to forgive. I pray that others in this new world take time to discover how gifted and talented you really are. I want to meet the new friends willing to look past your wheelchair and into your eyes—and into your soul. I eagerly await book fairs, walking down school hallways and making red finger Jell-O at Christmas.
As your special bus disappears from sight, I’m a wreck. In a rare moment, I doubt. Are you ready? Am I ready? Your bus is equipped for wheelchairs and separates you from your able-bodied classmates. Someday, that too must change.
You grin at me through the tinted bus window. You are more ready than I am.
As the bright, yellow school bus disappears from sight, as its larger version did with Jenna many memories ago, I’m overcome with emotion. Safely inside, I release the tears of far too many harsh moments spent in the presence of people wrongly judging your value. But my tears of frustration and anger give way to unconditional love for the wise little soul who has become my greatest life teacher.
You are much wiser than most.
As you begin this new journey, son, you must continue to grow increasingly independent, just like other children. But I promise that dad and I will be right beside you ready to dry your tears on the roughest days, and thrilled to champion the dreams that others will try to tarnish.
Forgive them.
On this exceptional day, words can only begin to express what I feel in my heart, Eric Richard Winter. Thank you for coming into my life and teaching me more than I ever thought I had to learn. I’m incredibly proud to be your mom.
With much love always,
Mom
p.s. Have a wonderful first day in kindergarten!!
Judy Winter
So I'm again pulling a sacred letter from my writing archives to provide you with some back-to-school inspiration to help calm your frayed parenting nerves. Letter to Eric was written to my son in 1995 as he left the safety of our family nest to test his fragile wings at our neighborhood school. It was an unnerving time, and an exciting one, too. Inclusion was a rarity and I was incredibly naive about the challenges and roadblocks that lay ahead of us. But I knew what I wanted for my child, and that first day of school milestone turned out to be the beginning of a challenging and rich journey filled with powerful life experiences that continue to fuel my work as a writer/speaker/advocate today.
Unfortunately, Eric passed away in 2003 at 12, ending our back-to-school adventures. But each fall, I feel Eric's strong presence, smell his sweet hair, see his enchanting smile, and remember with deep love and gratitude the back-to-school adventures of a lifetime that we took together.
May the heartfelt words of one adoring mother inspire you in much the same way as they continue to touch me. Perhaps you'll begin your own letter-writing tradition, something I highly recommend.
Now, pass the Kleenex......and have a wonderful first day of school!
______________________________________________________________
LETTER TO ERIC
August 28, 1995
Dear Eric:
Today, as you begin kindergarten, I’m writing you a letter, a tradition I began with your big sister, Jenna, seven years ago.
The first day of school is a fall rite of passage, like brilliantly changing leaves, crisp evening air and earlier bedtimes. For our family, it also represents hard-won success. Some professionals believed the physical challenges of cerebral palsy would prevent you from learning in a regular school environment. Armed with cold, hard statistics, they warned of a life of segregation. But our family doesn’t bank on statistics. We invest in the human stuff, like love, faith and hard work.
We chose a different road.
From the moment you first dramatically graced our lives, we’ve focused on your ability. In turn, you have exhibited a spirit of survival that astounds me. We’ve endured too many moments of grief and ignorance. Yet, what I remember most is your first smile and giggle, your first word and your success at a regular preschool.
You are a wise and handsome child, with inquisitive brown eyes that miss nothing. Much of your ability to positively impact others has come from their first impressions of you as a cute child. Your long and lanky frame holds just thirty hard-won pounds, but you are far from being a lightweight in this life. There have been critical hospital stays, invasive procedures and moments when your life was in peril. But today, we celebrate school and a powerful lesson in letting go.
Today, our family is no different.
In your back-to-school outfit of GAP overalls, white Mickey-Mouse T-shirt and black Oshkosh shoes, you charm me. But there will be challenges. The ground we tread is fresh, presenting a challenge to those uncomfortable with inclusion, a word promising equal educational opportunities for all children. Some people won’t understand our fight and won’t want too. Yet, other educators will also teach from their hearts.
This will be a year of new challenges. When people assume physical challenges include mental impairment, you’ll be the first to forgive. I pray that others in this new world take time to discover how gifted and talented you really are. I want to meet the new friends willing to look past your wheelchair and into your eyes—and into your soul. I eagerly await book fairs, walking down school hallways and making red finger Jell-O at Christmas.
As your special bus disappears from sight, I’m a wreck. In a rare moment, I doubt. Are you ready? Am I ready? Your bus is equipped for wheelchairs and separates you from your able-bodied classmates. Someday, that too must change.
You grin at me through the tinted bus window. You are more ready than I am.
As the bright, yellow school bus disappears from sight, as its larger version did with Jenna many memories ago, I’m overcome with emotion. Safely inside, I release the tears of far too many harsh moments spent in the presence of people wrongly judging your value. But my tears of frustration and anger give way to unconditional love for the wise little soul who has become my greatest life teacher.
You are much wiser than most.
As you begin this new journey, son, you must continue to grow increasingly independent, just like other children. But I promise that dad and I will be right beside you ready to dry your tears on the roughest days, and thrilled to champion the dreams that others will try to tarnish.
Forgive them.
On this exceptional day, words can only begin to express what I feel in my heart, Eric Richard Winter. Thank you for coming into my life and teaching me more than I ever thought I had to learn. I’m incredibly proud to be your mom.
With much love always,
Mom
p.s. Have a wonderful first day in kindergarten!!
Judy Winter
Back-to-School Special Needs Advocacy & Wrightslaw
With another school year about to descend, parents of kids with special needs need to educate themselves about their children's rights in order to advocate effectively within the often complex educational system.
For special education law and advocacy, Wrightslaw is a popular go-to resource for many families and professionals. It's valuable information presented in language even you and I can understand. In short, it's user and family friendly.
Hopefully, you won't need a judge.
Tuesday, August 10, 2010
Word of the Day -Feisty
...as was this cute little squirrel I met on the lovely campus of the University of Notre Dame. He didn't want me playing paparazzi with his furry little self.
Leisure Time!-DSALA Announces 2nd Annual "Moms Need Moms" Cruise
The Down Syndrome Association of Los Angeles (DSALA) is sponsoring their 2nd Annual 'Moms' Need Moms" Cruise for parents or family members who care for children with Down syndrome and other developmental disabilities. The three-night cruise is aboard the Carnival Paradise to Ensenada, Mexico. Departs Friday, January 28; returns Monday, January 31, 2011.
For more details and to register, contact DSALA.
Thursday, August 05, 2010
Back to School Clothing Issues and Special Needs/Terri Mauro
Yesterday, I shared my annual Back-to-School Quick Tips for Kids with Special Needs on this blog. Terri Mauro (about.com) cites my list and then adds some good tips of her own regarding b-t-s behavior challenges and clothing issues.
Photo: Judy Winter 2010. A Michigan high-school honor student shares his voice and advocacy at the 20th anniversary celebration of the Americans with Disabilities Act (ADA) in Lansing, Michigan, July 26.
Judy Winter
Great Resource-Great Opportunity from DSALA
Thanks to my friend, Gail Williamson, exc. director of the Down Syndrome Association of Los Angeles, (DSALA), I've just learned about one terrific resource-- the Dolphin Human Therapy Grand Cayman (DHT-GC) in the Cayman Islands. DHT-GC offers dolphin-assisted rehabilitation for children and adults with a wide range of special needs, incuding autism, cerebral palsy and developmental disabilities.
DSALA currently has a special offer from DHT-GC for a complimentary, 11-day Dolphin Human Therapy program, good until October 31, 2010, for children or adults with developmental disabilities. This generous offer also incudes discounts in lodging and car rental valued at $7,000. For more info, you can contact Gail at gail@dsala.org.
Photo of Ava Burns courtesy of DSALA. Used with permission.
Tuesday, August 03, 2010
Quick Tips! -Back to School Tips for Kids with Special Needs
Back to School QUICK TIPS for Kids with Special Needs by Judy Winter / All Rights Reserved.
We know we shouldn’t judge others based solely on outward appearances and physical beauty. But in today’s celebrity-obsessed culture, looks do matter—especially as kids try to claim a coveted place in those unnerving and rigid school social hierarchies. For students with special needs who are at greater risk for teasing and bullying, that’s a tough reality. The social challenges facing these students as they try to fit in with their typically developing peers makes the annual back-to-school preparation rite especially important.
Here are five simple back-to-school tips for parents to help their children with special needs get off to a great school-year start—allowing them to navigate the often unnerving school hallways with a tad bit more confidence.
• Get your child a good haircut in a current style.
• Go back-to-school shopping with your child and allow him/her to select a cool backpack, necessary school supplies, and clothing.
• Outfit your child with stylish, up-to-date clothing, including a sharp new first-day-of-school outfit. If your budget is strained, shop discount stores, sales racks, second-hand shops and garage sales in upscale neighborhoods. Make preparing for the school year FUN for everyone involved.
• Pay close attention to your child’s personal grooming every day—that includes clean hair, clean body and clean clothes. It does matter.
• To help reduce stress and alleviate those first-day jitters, visit your child’s school before the school year begins and allow him/her to meet the teacher, principal and bus driver. Talk about what to expect on the first day of school in advance, especially with younger children.
As with other families, the choices made by parents of kids with special needs are key to determining that child’s educational and life success. Celebrate your child’s abilities everyday—and have a great school year!
We know we shouldn’t judge others based solely on outward appearances and physical beauty. But in today’s celebrity-obsessed culture, looks do matter—especially as kids try to claim a coveted place in those unnerving and rigid school social hierarchies. For students with special needs who are at greater risk for teasing and bullying, that’s a tough reality. The social challenges facing these students as they try to fit in with their typically developing peers makes the annual back-to-school preparation rite especially important.
Here are five simple back-to-school tips for parents to help their children with special needs get off to a great school-year start—allowing them to navigate the often unnerving school hallways with a tad bit more confidence.
• Get your child a good haircut in a current style.
• Go back-to-school shopping with your child and allow him/her to select a cool backpack, necessary school supplies, and clothing.
• Outfit your child with stylish, up-to-date clothing, including a sharp new first-day-of-school outfit. If your budget is strained, shop discount stores, sales racks, second-hand shops and garage sales in upscale neighborhoods. Make preparing for the school year FUN for everyone involved.
• Pay close attention to your child’s personal grooming every day—that includes clean hair, clean body and clean clothes. It does matter.
• To help reduce stress and alleviate those first-day jitters, visit your child’s school before the school year begins and allow him/her to meet the teacher, principal and bus driver. Talk about what to expect on the first day of school in advance, especially with younger children.
As with other families, the choices made by parents of kids with special needs are key to determining that child’s educational and life success. Celebrate your child’s abilities everyday—and have a great school year!
Monday, August 02, 2010
Special Needs Kudos -The International Mental Health Research Organization (IMHRO) Supports Those With Mental Health Challenges
After the son of award-winning Napa Valley winemakers Garen and Shari Staglin was diagnosed with Schizophrenia in 1990, they founded the International Mental Health Research Organization (IMHRO) to help fund monies for valuable mental health research for the 1 in 5 Americans who face such challenges.
Check out this terrific resource and the Staglin's family story here.
Parents are their children's best advocates.
Parents are their children's best advocates.
Photo Judy Winter 2010
Thursday, July 29, 2010
Word of the Day- Sunsets
...because there are so many beautiful ones this time of year!
And for that, I am incredibly grateful.
Photo Judy Winter 2010
And for that, I am incredibly grateful.
Photo Judy Winter 2010
Words of Wisdom from Maya Angelou - August 2010
"I believe that every person is born with talent."
-Maya Angelou
Photo Judy Winter 2010
Special Needs Kudos! -Give the Kids the World Village
Kudos to 'Give the Kids the World Village,' which provides kids with life-threatening illnesses and special needs and their families, week-long, cost-free fantasy vacations at their 70-acre accessible theme-park resort in Florida. Jenna Bush did a piece on it this morning on The Today Show.
Check out this terrific destination here.
Photo Judy Winter 2010
Check out this terrific destination here.
Photo Judy Winter 2010
New Website for Mobility Challenged
I ran into my friend and budding disability advocate, Johnny Agar, at Michigan's 20th ADA celebration. This sharp, determined 16-year-old, who has cerebral palsy and uses a wheelchair, told me about his new website Johnny's Pass designed to help those with mobility challenges find a wide range of accessible venues. You can help him grow this valuable venture.
Check it out here and share your own experiences with Johnny. A whole new generation of activists have been born. Love that.
Go Johnny!
Photo: Johnny being interviewed by the press during Michigan's 20th ADA anniversary celebration. Judy Winter 2010.
Special Needs Progress
I remember when the media rarely covered special needs. Now I can't keep up.
Progress.
Photo: Michigan's ADA 20th anniversary celebration/Judy Winter 2010
Wednesday, July 28, 2010
Best Dad on Wheels Contest 2010
The Christopher and Dana Reeve Foundation and the Paralysis Resource Center (love them!) is looking to celebrate great dads with the 2010 Best Dad on Wheels Contest. For more info, click here.
Dads are VIPs, too, especially in special needs families.
Photo of my favorite dad on wheels, children's book author and motivational speaker, Johnnie Tuitel of Grand Rapids, Michigan and his three terrific sons, Nick, PJ and Joel at RicStar's Camp. Judy Winter 2010.
Judy Winter
White House ADA Celebration July 26 2010
For those of you interested in viewing the 20th anniversary ADA celebration at the White House, here it is.
Photo Judy Winter 2010
Monday, July 26, 2010
20th Anniversary of the Americans with Disabilities Act (ADA)
"Let the shameful walls of exclusion finally come tumbling down." -George H. W. Bush at White House signing of the Americans with Disabilities Act (ADA) July 26, 1990.
We're still working on that noble mission, Mr. President, and I'm so proud to be part of that effort.
We're still working on that noble mission, Mr. President, and I'm so proud to be part of that effort.
Friday, July 23, 2010
20th Anniversary of the Americans with Disabilities Act (ADA)
Monday, July 26th, is the 20th Anniversary of the Americans with Disabilities Act (ADA), which in part, has helped reduce barriers to employment and education. I will be celebrating at my local level and I hope you will, too. It's good to look at how far we've come to get energized for all the work that still remains.
I find it especially interesting that the ADA was passed the year my son was born and so few were talking about the value of those with special needs. That injustice has fueled my work on special needs for the past two decades. I'm thrilled that today, so many terrific men and women are working hard to ensure the rights and better life opportunities for those with disabilities. Bless them all.
Photo Judy Winter 2010
Tuesday, July 20, 2010
Winter Rambligs Chosen as Top Ten Blog for Special Needs Parenting by She Knows Parenting
Huge thanks to Abbi Perets of She Knows Parenting for selecting my blog Winter Ramblings as one of her Top 10 Blogs for Parents of Kids with Special Needs. You can see her other helpful recommendations by clicking on the link above.
When it comes to special needs parenting, knowledge and great resources are power.
When it comes to special needs parenting, knowledge and great resources are power.
I'm honored to share what I've learned.
Baby's Babble May Help With Early Autism Diagnosis
Given the critical importance of early diagnosis for autism, the results of a recent study about using technology to uncover a possible connection between baby's talk and autism is especially good news.
Friday, July 02, 2010
Happy Independence Day 2010- AKA the 4th of July!
HAPPY INDEPENDENCE DAY!
For all the challenges we face, we still live in the most amazing country in the world. Take a moment to savor your precious freedom.
Photo of the Liberty Bell
Washington, D.C.
Judy Winter 2006
For all the challenges we face, we still live in the most amazing country in the world. Take a moment to savor your precious freedom.
Photo of the Liberty Bell
Washington, D.C.
Judy Winter 2006
Did You Know? Tips to Help Prevent Spinal Cord Injuries While Having Summer Fun
Did You Know? that 200,000 people in the US are living with spinal-cord injuries, the result of sporting/recreational activities? With summer fun in full swing, the Christopher/Dana Reeve Foundation & Paralysis Resource Center offers some valuable tips on staying safe.
Yes, disability can happen to you. Be proactive.
To learn more, click on the logo above.
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