Sunday, June 15, 2008

Presenting Faces of Ability at RicStar's Camp 2008!











There are times when a picture is indeed worth a thousand words. In this case, I present you with fourteen-thousand words that help capture the magic of the 6th Annual Eric 'RicStar' Winter Music Therapy Camp held last weekend at MSU's Community Music School, including one of a tiny and very cute certified camp therapy dog. What a remarkable weekend it was! It's amazing what happens when people focus on individual abilities... For more about RicStar's Camp, visit http://www.judywinter.com/ or http://www.cms.msu.edu/.

Also, here's a link to a good camp article in MSU's newspaper, The State News:http://www.statenews.com/index.php/article/2008/06/music_mends_disability_rift__

Enjoy!

...and Happy Father's Day to all those terrific dads out there!!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Tuesday, June 10, 2008

RicStar's Camp Rocks!




For a number of reasons, I'm running way behind on my blogging efforts. I still have lots of good things to share/comment on from several recent events. But those ramblings will have to wait another week or two.

Right now, I need to talk about the pet project near and dear to my heart!

This week is all about my son's terrific camp: the 6th Annual MSU Eric 'RicStar' Winter Music Therapy Camp, of which I am co founder and co chair (copyrighted camp photos above by Eric's big sister, Jenna Winter). Part of the Community Music School, the outreach arm of the MSU College of Music, this amazing camp honors my son's terrific musical legacy, and his life, in the best way possible- by opening its doors and welcoming nearly 100 individuals of all ages with a wide range of special needs and immersing them in music.

Music meant everything to Eric, so this effort has proved a great way to honor his memory, while giving individuals with special needs a rare opportunity to experience firsthand the power of the arts and music therapy, something of which I am a huge fan (you can read my past post on music therapy on this blog). Research supports the power of music therapy to create positive changes in the lives of those with special needs.

RicStar's Camp is a fun-filled, three days of music making and movement, where the focus is on individual ability. Everyone is equal once they walk through our doors. Camp is already full again this year, but if you'd like to know more, visit my website: http://www.judywinter.com/ and click on RicStar's Camp, where you can also view the camp dvd.

Perhaps, you'll be inspired to begin a camp in your own hometown!

If you want to attend RicStar's Camp in 2009, I strongly suggest you sign up early!!! Scholarships are available to those showing need. We work very hard all year long to make sure that attending camp is possible for all. If you'd like to know more about supporting our scholarship efforts or volunteering visit: http://www.cms.msu..org/.

More about this year's wonderful event after the fact...

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Michigan Go Run! 2008 calls Women to Take their Rightful Places in Office

Two weekends ago, I faced a tough decision— see the much-anticipated Sex and the City movie and discover if Carrie and Big tied the knot, or become part of the first Michigan Go Run Political Leadership Training 2008, to which I’d already been accepted. I hoped to become more politically savvy in my work as author, national speaker and advocate on special needs issues.

Many families are unaware of how policy/funding issues impact their children. Parents have little time to tackle system-wide advocacy while addressing tremendous daily demands. I have time, passion and skills to advocate for them, so I put on cute-but-comfortable shoes, passed up popcorn and Manolo Blaniks, and joined 124 other women for training.

Michigan Go Run’s! slogan is Go Run. Go Lead. Go Girl! It’s an effort of The White House Project, a non-partisan, non-profit organization based in New York City that trains, supports and empowers women of diverse means to run for office. “When you ADD WOMEN, you change everything,” the website proclaims. Accomplished founder and President, Marie Wilson, was on-site overseeing her charges. The author’s credentials include co-creator of national ‘Take Our Daughters to Work Day’.

Most attending were well informed, championing causes as diverse as our backgrounds. Several are running for office this year; others plan to join them soon. Key training included media, fundraising, and campaigns. At times, the experience was a bit like a church revival, an intoxicating blend of too little sleep, too much caffeine and high energy from a unified force serving notice. If we bottled the energy, passion, and vision of those present, I think we might fuel our cars and turn our state around.

Highlights included:

Public servants were panelists/speakers, including State Representatives Joan Bauer, Barb Byrum, and others who openly shared rewards/challenges of political life, term limits, and the working to resolve the state’s budget crisis.

The number of women of color in attendance was impressive, their vocal commitment to change, contagious.

I was deeply moved by a young college student who told of growing up in a tough Chicago’s South Side neighborhood, where she learned early that education was her ticket out. She’s now passionate about impacting change that helps ensure equal access and affordable education and heath care for inner-city youth.

Several twenty something women expressed frustration over negative perceptions of their generation, fueled in part by overtly sexualized, narcissistic media messages, including by MTV. These women want more. Audrey works for the Grand Rapids Obama campaign and plans to run for office.

Melannie, a spirited young Michiganian employed by Sotheby’s in NYC, volunteers for the Younger Women’s Task Force (YWTF.org) a grassroots movement that organizes young women to tackle issues. Once the job market improves, Melannie may return to Michigan and run for office.

This valuable weekend training left me with a shiney new Certificate of Accomplishment, an 'invitation' to run for office, and some great new friends from across the country. It also left me inspired, energized and refocused on my calling as a storyteller/advocate who through journalistic/speaking skills creates needed awareness, while challenging policy makers to implement needed change for social justice.

Recent times have been tough, but if Michigan Go Run! is any indication, our future is in great hands—the hands of Michigan’s remarkable, capable women.

To find out more about The White House Project, visit http://www.thewhitehouseproject.org/


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Thursday, June 05, 2008

Do You Ever Wonder Why...? June 2008

DO YOU EVER WONDER WHY...?

...People who complain the loudest seem to do absolutely nothing to make the world a better place?

Do you ever wonder what worldwide problems we could solve if people took all that negative energy and turned it into positive action that addresses serious issues at hand? Hmmmm...

Just rambling...


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Honoring Robert Kennedy 2008

How can it be that today marks the 40th anniversary of the assassination of Robert Kennedy, a remarkable leader who offered such promise for curing our nation's ills?

Where has that time gone? What exactly do we have to show for it?

In some ways, it's as if time stood still after that fateful day four decades ago when a single horrendous act stalled forward progress on solving the serious challenges facing our country, including those impacting human rights.

When Bobby Kennedy died at age 42, many in this country could barely go through the motions of daily living, driven to their knees by the staggering loss of so many great leaders in short order, including John Kennedy and Martin Luther King. It was a tough reality in our history from which many in this nation have since struggled to fully comprehend and recover.

Forty years of stunned silence and grieving and the resulting lack of political interest has created a country now seriously off course, one desperate for true leadership. The meteoric rise of Barack Obama and this week's historical claim to the Democratic Party's nomination, is especially timely. The inclusion of Caroline Kennedy on Obama's search team is now another boost connecting past and present, a soothing balm for deep wounds from another time that have never fully healed.

Robert Kennedy remains one of my heroes. Working tirelessly to carve his own legacy while standing in the shadow of his larger-than-life brother, John, Bobby Kennedy took on tough issues of civil rights and social injustice. He boldy acted on his outrage and fought for change in ways few ever have. Like Martin Luther King, Kennedy paid the ultimate price, a sign of a true leader, one willing to fight to the death to do what is right and just for the people he/she serves, regardless of personal cost. That kind of leadership is rare.

In today's San Jose Mercury News (Robert Kennedy: A life cut short, a lasting legacy), Jerry Abramson, former leader of Students for Kennedy says of Robert Kennedy, "He challenged our complacency. He was a good listener and never spoke down to people. He was a remarkable leader."

There is now a reawakening, an excitement in the air that hasn't been felt in far too long. Ethel Kennedy says of her husband and Obama, "they were cut from the same cloth. they reached out to people and inspired them."

Robert Kennedy will be forever missed, never forgotten.

Dare we hope for that much again?


For more information on the life/work of Robert F. Kennedy and how you can continue his vision of social justice, visit: the Robert F. Kennedy Memorial website: www.rfkmemorial.org.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Thursday, May 29, 2008

I'm a Big Fan of...! Griff the Corgi, Cool Shoes & Sex & the City!! June 2008

Here's my June 2008 gush:

I'M A BIG FAN OF...! my grandoggy Griff- the fluffy Corgi, cool shoes, and Sex and the City! So with the eve of the big movie just a day away, here's a photo by my talented photog daughter that honors all three!

It's exhausting trying on Jenna's high heels, huh Griff?

Wearing heels would make you look taller little man, but it would be tough for you to herd critters in them...

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Minute Vacations- June 2008

Judy's Minute Vacation for June 2008
Ponds at Frederick Meijer Gardens
Grand Rapids, Michigan

Don't you just love summer's endless adventures?!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Judy Winter's FAV Quote of the Month- June 2008

"What we need is more people
who believe in the impossible."
-Theodore Roethke

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

The White House Project/Michigan Go Run!

Many people have little clue as to how politicized many of the decisions affecting children with special needs are. Decisions on funding and policy in our communities are often made at the highest levels and filter down into our backyards, impacting our ability to easily navigate systems and help our children realize their full potential.

Without the proper understanding and education about this process, it can be tough for anyone to advocate effectively for lasting, needed change for this deserving population.

That's why I am thrilled to have have been accepted into this weekend's intensive Michigan, Go Run! Political Leadership Training Program. Part of the White House Project, this exciting effort is committed to helping women realize their important, valuable roles in the political arena, giving them the training, tools and support needed to realize their lofty dreams of public service. This weekend's event promises to help me better prepare myself to reach my big goals of impacting policy change on special needs at a high level nationwide and beyond. Running for office? Still undecided.

I have been fortunate to use my skills and passion to accomplish some important work on special needs these past two decades. It's work of which I am proud. I now want and need to learn more to take my advocacy to a new level. Eventually, I hope to become a childcare ambassador who travels internationally to document as a writer/photographer/advocate the stories of children worldwide facing the tremendous, often untold challenges of special needs. I want to realize big change worldwide and bring more attention to the cause on a larger stage, using my journalistic chops and my heart for the subject at hand to drive home important points and impact long-overdue change.

This weekend promises to be the start of an exciting and challenging new journey for me. I believe women hold the power to change the world. Their voices are needed now more than ever before in our history, especially as they impact our nations' most vulnerable citizens, its children. For me, that equation must include special needs awareness.

To find out more about the White House Project, visit: http://www.thewhitehouseproject.org/.

Wish me luck! I'll share more soon.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

DID YOU KNOW? Kitties are Good for Your Heart!


DID YOU KNOW that hugging your furry feline does more than just cover all your fav black clothing in fur? It's also great for your heart!

According to an article in the June issue of SHAPE magazine, it's true! The issue cites a University of Minnesota study that proclaims that owning a cat can reduce your risk of dying from heart attack by up to 40 percent!!!! MEOW!!!

I love cats, always have (and now I love my granddoggies, too!). For the first time in my life, after losing two long-time furry buddies to old age/disease in one year, I'm some how existing without a cat in my life (soon to be rectified), except for my buddy Pirate, the neighborhood cat who regularly stops by for purrs and petting. I've never understood why people are so afraid of black cats. My experiences with them have been nothing but delightful.

Above is a photo of Pirate and our last furry family pet, Chloe, an adorable, sweet ragdoll we rescued from the shelter as a pet for my for my daughter when she was very young. Chloe the cover girl added so much to our lives and we all miss her. The house is strangely quiet without her dignified presence and beautiful face, so I am especially grateful for Pirate's spirited, daily visits (and I don't have to clean a litter box!).

To improve your health, take a daily walk, and cuddle away! But please refrain from dressing up your cats. It may look cute, but I'm pretty sure the resulting stress is not good for their hearts. They are purr-fect just the way they are!


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Cast a Vote for Special Olympics!

Here's a easy way to advocate and help support the great efforts of Special Olympics. This request comes from my friend Kirsten Suto Seckler, Director Global Marketing & Awareness at Special Olympics headquarters in Washington, D.C. Please take a moment and vote! Some days it's pretty darn easy to make a difference!! Thanks, all!

You know I love Special Olympics.....
_________________________________
From Kirsten:

The Red Sox are in the process of voting for Kid Captains - great kids who are doing good. The winning kid gets to visit Fenway Park in Boston later this year, and will have the opportunity to provide input on the charitable endeavors the Red Sox will support through their kids program.

William W. wants the Red Sox to focus on Special Olympics and the lessons kids learn from acceptance and inclusion. William's sister Annie is 15, has Down syndrome and is a Special Olympics athlete.

Please take a moment to vote for William W. in 4 easy steps...
1) Visit:
http://boston.redsox.mlb.com/bos/fan_forum/kn_captain_ballot.jsp
2) Click Vote now
3) Click the box next to William W. (last on the list)
4) Fill in your information.
One of our new goals is to reach out to as many kids as possible and what better way than through the Red Sox. Voting ends on June 22.

Thanks! Kirsten
_________________________________

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Wednesday, May 28, 2008

Dancing and dis-Ability

I'm back! So get ready for a series of new posts/photos in the next couple of days as I share some highlights/photos of my recent travels, other key news and more upcoming adventures. I'm still sorting it all out and how best to share, but I want to get back on track today by sharing this beautiful video on dance and Ability on 'You Tube' sent to me by my good buddy, Jeanie.

So much for the dis in disability... Enjoy! http://www.youtube.com/watch?v=DArfA2kvP3Y
...and BRAVO!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Wednesday, May 07, 2008

Happy Mom's Day 2008!


I am about to hit the road and will be spending Mother's Day in NYC. But I couldn't leave without giving an early shout out to all those terrific moms who lovingly take on this challenging and rewarding role each day. The work you do is so incredibly important and valuable; the world would fall apart without you. Too often, this amazing role goes unappreciated and unrecognized and it is at times even harshly judged. I personally think that many mothers of kids with special needs should be nominated for sainthood!

Sunday is your day, moms! Enjoy it, and don't you dare spend it cleaning the house or making PB&J sandwiches!!!

Here's my short, sweet, early Mother's Day Greeting to you all.

Moms are true VIPs! No one has greater impact on a child than you do. Thank you for all you do each day to nuture future generations and world leaders. Like the tulip above, you make the world more beautiful, one child at a time.

Hugs!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Monday, April 28, 2008

Minute Vacations- May 2008





Judy's Minute Vacation for May 2008
New York City

In honor of the long-anticipated Sex and the City movie opening this month, plus my upcoming travel (and my birthday!), here are a few photos of the Big Apple from one of my recent trips, including one of my favs of a budding fashionista and her stylish mom!  (Carrie would be proud!).

Start spreading the (May) news....

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Do You Ever Wonder Why....? May 2008

DO YOU EVER WONDER WHY?...

So many parents today ramble on incessantly on cell phones while out in public with their children enjoying pizza, visiting the monkeys at the zoo, or shopping for Barbie and Ken at the toy store?

A lot of these conversations don't sound all that critical to me. I know, because unfortunately, I can often hear them. Is such casual chatting or even work talk really more important than those all-too -fleeting moments with our kids? Just what kind of message are we sending our children? Aren't they worth more than a phone call or text message?

How about we just say 'no' to technology for a few minutes each day and instead, really connect with one another face to face?  Just because kids are scarfing down salty french fries and double-pepperoni pizza, doesn't mean they're not hungry for your attention, too.

Just rambling...

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Judy Winter's FAV Quote of the Month- May 2008

"My religion is very simple-
my religion is kindness."
-Dalai Lama

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

I'm a Big Fan of...! May 2008

Here's my May 2008 gush...

I'M A BIG FAN OF SPECIAL OLYMPICS!

I love Special Olympics. That's why I profiled the organization and Timothy Shriver in my book. Few have done as much to improve the lives of those with special needs, specifically intellectual disabilities (ID), as has this terrific organization.

While others ignored their lives and their challenges, Eunice Kennedy Shriver took it upon herself to create a new world of experiences for those with ID in her own backyard. The lessons she began have impacted the world is ways too big for simple words. Suffice it to say, that the gentle seeds Shriver planted and nurtured years ago have blossomed beyond imagination worldwide. Thanks to her continuing, dedicated efforts and those of her son, Timothy Shriver and all the families, volunteers and athletes who refuse to let the perceived limitations of others limit them, this outstanding organization has changed millions of lives, and outdated perceptions, worldwide.

Thank you, Special Olympics, for the amazing work you do each day, and for the terrific example. For more information, visit: www.specialolympics.org.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

The Human Side of Autism Spectrum Disorder (ASD)

Much has been said and written about the challenges of autism spectrum disorders (ASDs). Much of that discussion has come from professionals, parents and organizations focused on research and cure, especially for autism.

In yesterday's Lansing State Journal (Gannett/lsj.com), writer Betsy Miner offered a rare look at ASD from the perspective of someone living with the diagnosis. Skillfully, and with heart, Miner interwove journalistic facts and focus without getting in the way of sharing one woman's powerful life story.

The resulting feature, 'Solving the mind's puzzle,' is a worthy read. Here's the link: http://www.lansingstatejournal.com/apps/pbcs.dll/article?AID=2008804270462


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Tuesday, April 22, 2008

Celebrating Earth Day 2008!


It's Earth Day 2008!

For information on how you can celebrate (and save) our planet, visit: http:/ww2.earthday.net. We all play an important role in healing the earth. I'm going to go hug some trees (among other things).

I love trees...and all nature.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter


Thursday, April 17, 2008

TV Alert! CBS Airs Hallmark Hall of Fame's Sweet Nothing in My Ear

CBS will air the Hallmark Hall of Fame program "Sweet Nothing in My Ear" Sunday night at 9 p.m. ET.  The movie addresses the challenges facing parents with strongly differing opinions on how to raise their son after he loses his hearing.  It stars two outstanding actors, Marlee Matlin and Jeff Daniels.  

For more info visit: http://www.cbs.com/specials/sweet_nothing_in_my_ear/about.

It's getting harder for me to keep up on all this media coverage.  That's a good thing.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

On the Road Again....

After a little breathing room this winter, it's time to again hit the road and spread the special-needs gospel, which means the blogging posts may not be as frequent as they have been lately. Here are a few highlights of some of my Apr/May professional gigs:

Talk/Signing: 'Rolling-Focusing on Ability', Project Advisor/WKAR-TV, East Lansing, MI.  This one is especially dear to me because I once worked at WKAR and had to leave the job I loved to meet my son's needs and ensure his future was brighter. That was tough for me, but a no-choice choice.  My involvement in this event represents a true full-circle moment.  It's a great station with terrific people. I'm proud to be 'back on board' for this one day. / http://wkar.org/more/article/451/rollingevent

Talk/Signing/Author's Reception: New Canaan Library, New Canaan, CT. / http://www.newcanaanlibrary.org/newsletter/authors_stage_schedule.htm

Interview on 'Live with Lisa' Radio Program, Yale University, New Haven, CT (recently featured on Bravo's The Real Housewives of NYC!)/ http://www.livewithlisaradio.com/

Off to NYC-for program/showing/review of the film 'Including Samuel' at the Metropolitan Museum of Art, part of the Sprout Film Festival which highlights developmental disabilities. / http://www.gosprout.org/film/info2.htm

Then home for a couple of days before heading off to one of my fav cities,  Chi-Town!  That trip will include indulging in deep-dish birthday pizza, and doing my best to boost the economy on Michigan Avenue!  If I run into Oprah, I'll say 'hi' for all of us!

I am also pleased to be featured in the April issues of Newsmax magazine ('Who I am Now') and MSU Today magazine, (http://www.msutoday.msu.edu/magazine/08spring.pdf) and recently completed an interview for a Chicago Parent piece on sibs (not yet released).  

Life is hectic, but good!  Hope the same is true for you.

An advocate-author's work is never done...

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Monday, April 14, 2008

Equal Granddoggy Time- Introducing Sir Griff

If you've checked out my blog, you've seen my photo of beautiful shelter Granddoggy Zelda. In the spirit of equal time (and cuteness!), here's my other furry joy, Sir Griff, the adorable, spirited, rescue Granddoggy Corgie, who's always looking for something or someone to herd! Photo courtesy of my talented photog daughter, Jenna, who's a wonderful, responsble pet owner. She makes me proud. They all make me smile.

I know, Griffy! I need to buy you more doggie treats....

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Sunday, April 13, 2008

Simple Advocacy-Day Fourteen

CONGRATULATIONS!  

You've made it through Fourteen Days of Simple Advocacy!
  

Let's count 'em down beginning to end:
-Tell your child that you love him/her, no matter how rough the day, complete with hugs.
-Educate yourself about your child's diagnosis.
-Express gratitude.
-Contact the media.
-Express yourself.
-Sit still.
-Spend one-on-one time with your kids without special needs.
-Learn the law.
-Laugh often.
-Focus on the present.
-Organize your child's records.
-Pay it forward.
-Call a family meeting.

Simple Advocacy-Day 14: (drum role, please!)

Count your blessings. I know, you hear this all the time.  It sounds trite, but it can be remarkably effective.   It's true that you do not need to look very far before you will find someone who has it worse than you do.  As I've traveled the country and spoken to countless families, I've been humbled, amazed, even brought to tears by the tremendous challenges many families lovingly take on daily, including parenting more than one child with significant special needs.  Counting your own blessings has a way of making everything seem just a bit more doable, and worthwhile.  It gets easier with practice.

So before your head hits the pillow this evening, take a moment to reflect upon your day.  Then, in your mind or in a journal, record one thing that your child accomplished today that made you proud, no matter how small it may seem.  Small steps now lead to bigger future gains.

Learning to live with gratitude is a powerful life lesson that can change the quality of your life, and that of your children.  Now, on to facing even bigger advocacy issues...  

Yes, you can!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Saturday, April 12, 2008

Simple Advocacy-Day Thirteen

Call a family meeting. If you have a terrific extended family unit that supports your challenging parenting situation without being asked, consider yourself blessed. The reality is that many families lack such valuable support. But rather than fret and fume and hope people will step up and offer the support and understanding you need, call a user-friendly family meeting or group dinner and tell them. 

Most people can't read our minds.  Big surprise, huh?

Let everyone know exactly what you need and expect from them, while also hearing and responding calmly to their concerns. Help others better understand your child and his/her needs to help increase comfort levels and promote greater understanding and action.  If you wait for relatives to reach out to you first, you may be sorely disappointed. Just because someone is related by blood, does not guarantee they can or will offer the support you need.  Special needs often makes family dynamics increasingly complex, especially if key relationships are already strained.  But charity does (or should) begin at home.

So speak up and ask for what you need.  You might end up with some great new childcare offers for valuable time away, along with a renewed appreciation for the term 'family'.  That's a win-win for all.

It's amazing what a simple phone call can do....

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Random Rant-April 2008. Coulda? Shoulda? Woulda?

If there's one pesky little thing that drives my writer-speaker self over the edge, especially if I'm under deadline pressure or PMS-ing, it's regular, unacceptable misuse/abuse of simple language, especially by supposedly educated people.

This simple act upsets me almost as much as learning new technology. But not quite. For that, my usually mild-manned self has been known to loudly threaten to heave my computer off the roof of my house, along with a few naughty words.

Think of all the credit the tiny letter A gets that rightfully belongs to the word HAVE. That poor little four-letter word is ignored on a regular basis in daily conversations, the media, and over coffee and cell phone chats by otherwise stellar citizens! Over blueberry scones and foaming lattes, the letter A brazenly steals HAVE's thunder with no apologies for the blatant infractions.

Consider the following evidence of popular, daily language abuse by good folk not intending any harm.

I coulda...  I shoulda...  I woulda....

The word should be HAVE, people!  They should all be HAVE! (and not OF, either).

Could have. Should have. Would have. The rampant abuse is shameful.

This week, I challenge you to pay attention to how many times you, and those around you, are guilty of depriving the word HAVE of its rightful place in our language use (but don't ignore your kids).

I bet you'll lose count.

Now, don't even get me started on pronunciation of the word Of-TEN!!! (equivalent to fingernails on a blackboard!).

I shoulda rambled on about this important subject long ago.

Oops.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Friday, April 11, 2008

Simple Advocacy-Day Twelve

Pay it forward. Whenever you find information on special needs that you believe could benefit others, pass it on. Networking and sharing valuable resources and updates is a great way for people to be kept aware of important, timely developments that may interest them and impact their children.

In the spirit of practicing what I preach, here's information about tonight's airing of the movie The Memory Keeper's Daughter on Lifetime (check local listings), complete with a review by my friend Gail Williamson, executive director of the Down Syndrome Association of Los Angeles, and mom to Blair, a talented working actor with Down syndrome.

For more about the book itself, here is the author's website: http://www.memorykeepersdaughter.com.

Be sure to give Lifetime your feedback about the movie, but first, consider sharing Gail's thoughts and the author's link!

Thanks, Gail!
_____________________________________________________________

"I enjoyed The Memory Keeper’s Daughter a Lifetime network original film to air on April 12th. Of course you don’t get time to watch the characters develop like you do when you read the book chapter to chapter, but the screenplay does a good job of representing the original story. The film, in my mind, would be rated PG13; there is reference to unfaithful married partners, not blatant and visual, but obvious; so it might not be a family film for your family. I suggest you watch it first and then decide.

Something very important to me is the casting of talent with Down syndrome and the portrayal of those characters. They were “spot on” in the film. The actors with DS did a wonderful job, I was so proud of them all and the casting directors who found them. The filmmakers did a wonderful job of showing the abilities and not focusing on the limitations of individuals with DS. It was a joy to hear all of the actors with DS speak clearly and see them truly act, playing someone other than themselves.

Have a box of tissues ready; you will need them.

On a scale of 1 to 3 chromosomes, I give it a 3."

Gail Williamson
Executive Director / Down Syndrome Association of Los Angeles, Inc.
315 Arden Avenue, Suite 25
Glendale, CA 91304
818-242-7871 voice / 818-242-7819 fax
gail@dsala.org / www.dsala.org
______________________

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Simple Advocacy-Day Eleven

Organize your child's records. Keeping good updates, especially those involving educational and medical records in accessible, colorful folders or on your computer, helps you more easily put your hands on up-to-date information as needed. The goal? Stress reduction.

This simple act can prove especially helpful during unexpected hospitalizations, appointments with specialists who may not know your child, and during all those nerve-wracking school meetings, including IEPs, when stress levels are running high and accurate updates are critical.

This is one of those things in your life you can control.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Thursday, April 10, 2008

Magical Moments



RAIN

The rain taps gently on the skylight in my office, promising greener grass, budding trees, lush lawns, flirty laced tulips, lilacs and juicy worms aplenty for eager, proud Robins. The familiar seasonal cadence suits my reflective writer's mood well.

Fragrant cup of tea in hand, I forgo tempting e-mail and breathe in nature's annual rite of magic.

For the moment, I am content.

What makes you happy?

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Simple Advocacy-Day Ten

Focus on the present. By addressing your child's most pressing challenges well today, you can help build a more solid foundation for his/her future success. Most parents of kids with special needs quickly learn that it's too overwhelming (even scary) to look too far into the uncertain future, especially when their child has a particularly challenging disability.

Instead of freaking out over future unknowns, save your precious energy and stay on task.

Good rule of thumb? Bite off only what you can chew (take on) today. Facing today's most pressing tasks well, can and does help ensure brighter futures for all involved, while helping parents better meet their child's most immediate needs without burning out.

That's worth today's best effort.

JudyWinter.com
Breakthrough Parenting for Chidlren with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Wednesday, April 09, 2008

Simple Advocacy-Day Nine

Laugh often! Rent a funny movie, indulge in your favorite television program, tell silly knock-knock jokes with your kids, but take time each day to laugh, even if only at the ridiculousness of your current demands.

At the very least, force a smile. Research shows that laughter is a great stress release that has positive impact on your immune system. and your attitude. Plus, it makes you more fun to be around.

So snort your little heart out. Your body and soul (and your family) will thank you.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Tuesday, April 08, 2008

Marlee Matlin and DWTS!

After last night, here's my take so far on Marlee Matlin's weekly performances on Dancing with the Stars, a gig she makes look incredibly easy.

In a word, Remarkable!

You go girl!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Spring Inspiration!


Whenever I write/speak about special needs and the law, however briefly (see last entry), I always feel the need to balance off the discussion with something slightly more enticing, like beautiful flowers!

It's a bit like cleansing the emotional palate after a heavy meal.

Enjoy!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Monday, April 07, 2008

Simple Advocacy-Day Eight

Learn the law. Get yourself a good resource to have on hand that you can refer to time and again as needed to address a particular challenge facing your child (mine are well dog eared!). You can also access the Internet for lots of free info on this topic. Googling will help you find them fast.

If you want to purchase your own books, here's a great website to get you started. Wrightslaw.com, considered a forerunner in providing accurate, family friendly resources on Special Education Law, (and no, they aren't paying me to say this; but maybe they should!). Start slowly, and refer to your resources as needed, including for timely updates.

It's tough to advocate effectively for your child if you don't have at least a working knowledge of the the laws protecting their rights. But you don't need to become an attorney.

Although, there may well be days when you feel like you do.... 

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Simple Advocacy-Day Seven

Spend one-on-one time with your kids without special needs. Take a few minutes each day to connect with them and find out what's going on in their lives. Such actions can go a long way toward helping these kids better handle their challenging roles. Talk about their day, their hopes and dreams, their homework, and yes, their honest take on the daily challenges faced by their siblings and the family unit.

Ask them how they're doing. Don't censor their words, and don't interrupt. Instead, listen compassionately and without judgement so you can learn how to better meet their needs. Their voices need to be heard.

Never forget that these sibs deserve your best parenting, too.

JudyWInter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Saturday, April 05, 2008

Simple Advocacy-Day Six

Sit still. Put down the cell, get away from the computer, stop talking, forget the laundry, and clear your mind. No doubt you're juggling a million different things with your child's schedule, appointments, meetings, research, and daily challenges. Your body and mind may be in danger of overload.

Stop.

Today, give yourself ten minutes to sit quietly, clear your mind and take care of you. Look out the window and observe the birds or budding trees in your backyard, sit in the warm sun, stretch, pet your cat or dog, slowly sip that cup of coffee, or just observe your breathing. You can even take longer in the bathroom, but close the door. The idea is to get away from your demands for a short while and add some much-needed balance and self care back into your life.

Your brain, and you, will appreciate the time off, however brief. Stop problem solving for a few minutes. The world won't end because you take some time for you, and you will most likely return to your challenges refreshed and better able to cope. It's not selfish. It's necessary to go the parenting distance.

Just be still.

Permission granted!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

I'm a Big Fan of ...! April 2008

Here's my April 2008 gush...

I'M A BIG FAN OF JULIA CAMERON!

The multi-talented artist is perhaps best known for her bestselling book The Artist's Way: A Spiritual Path to Higher Creativity, but I find inspiration in her many books. A few of my favorites include: Transitions (which speaks especially well to my life right now), The Writing Diet: Write Yourself Right-Size (I love this fresh take on shaping up by healing emotions through words), and Some People Say that God is No Laughing Matter

Did I mention Cameron has a cool sense of humor?

No matter where I am on my life path as a writer or as a woman, Julia Cameron always manages to inspire and motivate me and get me back on the writer's path, while granting me sacred permission to be wherever I am on this challenging life journey (including having writer's bloc). I think she's a writer's best friend, but you don't need to be a creative soul to benefit from her wisdom and words, or the self validation (and hugs!) her pages provide. As long as she's putting thoughts into words, I'll be buying.

I'm a proud (and grateful) Cameron groupie.

Let me know how this remarkably talented woman has impacted your life.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Simple Advocacy-Day Five

Express yourself! Having a child with special needs usually comes with a wide range of emotions that demand expression. Journaling or talking out your anger, frustration, sadness, fear and, grief (including with a professional if needed) are just two healthy ways to safely release your strongest feelings.

Such honest expression, including through the gift of tears, allows you to better move forward to embrace and love the child you do have. Carrying all that other stuff around robs you of valuable energy you need for the challenging tasks at hand.

Express away, and feel free to blast Madonna on your iPod as you vent.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Friday, April 04, 2008

Reflecting on the 40th Anniversary of the King Assassination


On this, the 40th anniversary of the assassination of Dr. Martin Luther King, Jr., I invite you to pause and reflect on how Dr. King's work for equality and justice matters to all who value their freedoms, regardless of race. I hope you'll take time to read my past tribute to Dr. King on this blog dated January 20, 2008 entitled Honoring Dr. Martin Luther King Day 2008.

I encourage you to visit the resources listed there to better understand Dr. King's work and legacy, and the value they hold for those who care about social justice today. I honor his life today by recognizing the remarkable and effective advocacy that resulted from King's bold commitment to serving as a relentless and compassionate voice for others. I am also reminded of the high cost of such advocacy. It's a reality I came to better appreciate as I fought for a better life for my son, Eric.

Dr. King's lessons in humanity and humility continue to impact my work on special needs issues today and are worthy of our reflection. We can all make a difference in this world. All you need is a dream. Right, Dr. King?

What's yours?

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Simple Advocacy-Day Four

Contact the Media. Inform print, radio/tv broadcast and other media (by phone, email or letter) that you approve of their coverage of special needs issues. Tell them about your child and why such coverage matters to you.

This is great opportunity to let your voices be heard, and yes, it does matter. The awareness and understanding created by such media efforts is priceless and far reaching. It often impacts your family, too.

Here are just a few examples of television programs currently doing a great job of including special needs: Way to go, ABC!

Dancing with the Stars (ABC)
Extreme Makeover-Home Edition (ABC)
Oprah's Big Give (ABC)
CNN (lots of autism programming, including on Larry King Live!)

You can also respond to local media coverage in your own hometown.

Special Note: Coming Up this month:

PBS-'Rolling,' a documentary about wheelchair users airing nationwide this month. Check local stations for broadcast times. Also, watch for the April airing of the PBS program “Hubert’s World,” which focuses on the triumphs and challenges of a man with cerebral palsy.

The Memory Keeper's Daughterr, based on the bestselling book and airing on Lifetime, Saturday, April 12th. (Down syndrome).

Here's the link to share feedback for that movie: http://www.mylifetime.com/on-tv/movies/memory-keepers-daughter


Write on!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Thursday, April 03, 2008

Jenny McCarthy Drops the BS Word on Larry King Live!

Message boards are buzzin this morning about Jenny McCarthy's appearance on last night's Larry King Live and her sometimes emotional responses that included loudly hurling the the BS word. (I do hope her son wasn't watching).

I've often jokingly(?) warned others that when it comes to moms of kids with special needs, you don't want to unlease the beast within, believe me. There's nuclear power in there.

Here's my take on the whole brouhaha from last night. In the past, I've questioned whether, celebrity aside, Jenny McCarthy is the right spokesperson for autism (think clear understanding and presentation of the facts of the diagnosis and our obsession with celebrity expert culture). I still do. But one thing you can't take away from this gutsy mom, She's got people talking about and paying attention to autism, and she just took off the funny-lady gloves and turned it into a much-needed debate worthy of the seriousness of the topic.

Kids lives are at stake here and the numbers are escalating dramatically each and every day. With her outburst last night, I felt that for the first time, Jenny McCarthy seemed like just another frustrated, loving mom, not a celebrity. She seemed human, while finding out firsthand just how tough it is to impact real special needs change, even if blessed with coveted celebrity status that opens media doors and ensures interviews. The result was valuable coverage for a worthy cause we cannot ignore.

Say what you will about her approach (including questionable language use), but that kind of exposure is priceless. It was World Autism Awareness Day after all, and Jenny certainly got our attention. With that, came valuable attention for children and families who need our support now. She just needs to work a bit more on her advocacy skills and facts (and take some really deep breaths) if she's going to continue to have impact where it counts (think political circles). Many people lack full awareness of how politics (and funding) impacts real change at the highest levels. But I think she (and Jim Carey) are up for the task. So bring on the March on Washington, complete with Carey in costume!

Now, if the media would just expand on this heated discussion and include a wide range of special needs challenges facing millions of other families each day (along with more non-celebrity advocate interviews from those living the realities each day and well versed in the facts), I'd be more content, and less likely to release the beast within me.

Autism is important, and so are the challenges facing millions of children and families with many other disabilities worldwide. So enough with the same old questions and guests each time this valuable air-time is granted, (hear that: Larry and others). Mix up the discussion, the topics, and the guests, please!

Producers: If you're reading this rant, I'd love to chat more, and I promise not to swear.


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Simple Advocacy-Day Three

Express gratitude. Take time to send a heartfelt note or card of thanks (snail mail, not email) to someone whose efforts have made a difference in your child's life, and your own.

Good karma has a way of returning to you when need it most.


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Wednesday, April 02, 2008

Reminder-It's World Autism Awareness Day!

Reminder: Today is World Autism Awareness Day and that means major-media coverage and lots of other buzz on the topic, including on CNN. Check out my entry about this ground-breaking day below. Such coverage and discussion does help bring awareness to the bigger issue of special needs, allowing us to build on obtaining broader, much-needed coverage of a wide range of disabilities.

Imagine what could happen if we all joined forces for the overall cause of special needs? You and I can help make that happen. There is power in numbers, and in our voices, as this day helps prove.

Raise yours.


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Simple Advocacy-Day Two

Educate yourself about your child's diagnosis so you are better prepared to face/address the challenges it may present you.

You might just help write some brand new statistics.


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Tuesday, April 01, 2008

Introducing 14 Days of Simple Special Needs Advocacy

When it comes to special needs parenting, one thing quickly becomes clear. If you expect your child to have the best life possible, than you must become their best advocate.

Too often when parents hear the word advocate or advocacy they question their ability to be effective, citing time constraints, lack of knowledge and people skills, no confidence or lack of training and limited finances. They think that to be an effective advocate they must take on a big challenge in the outside world.

The reality is that many parents are just too overwhelmed or too pooped to even consider taking on such a big role. Many are just trying to make it through the next IEP, family gathering, appointment with the specialist or therapists, or survive the bedtime routine. They aren't up for saving the world, just a small piece of it.

So I want to simplify the word for you. Because sometimes, the most effective advocacy for a child with special needs begins with seemingly simple actions taken in the home, actions that go a long way toward improving a child's life, and your own.

I'm talking user-friendly advocacy that anyone can take on, the kind of valuable advocacy that changes lives, too. The kind that can help you take on the bigger stuff.

In the spirit of creating empowered parents who effectively advocate for their kids in the simplest ways each day, I'm introducing 14 Days of Simple Special Needs Advocacy. I hope these helpful, proactive reminders over the next two weeks will prove useful to you and your family throughout the year.

Afterall, April is all about rebirth and remarkable new growth after a long, dark winter...

Let's get started.

SIMPLE ADVOCACY-DAY ONE:

Tell your children that you love them, no matter how rough the da
y, complete with great big hugs. If he/she is touch sensitive, hug more gently and build on the effort each day.

Now that wasn't so hard, was it?


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Monday, March 31, 2008

DO YOU EVER WONDER WHY?-April 2008

DO YOU EVER WONDER WHY...

In 2008, parents of children with special needs must still work so much harder than many parents every single day just to ensure their child's rightful place in this world?

Just rambling...feel free to ramble back.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Judy Winter's FAV Quote of the Month- April 2008

I've got two favorite quotes this month. Since I couldn't decide between them, you get a bonus dose of wisdom this month, along with a smile on your face, I hope.

"Cherish forever what makes you unique,
'cuz you're really a yawn if it goes."
-Bette Midler

"If you think you are too small to be effective,
you've never been in bed with a mosquito."
-Anita Roddick

Now go celebrate differences, and advocate for needed change!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Minute Vacations- April 2008


Judy's Minute Vacation for April 2008

The Bellagio Hotel
Las Vegas


What happens in Vegas, stays in Vegas. Unless you're armed with a camera to capture all those magical moments of pure escapism, as I was at this moment. G Rated.

Enjoy!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

DID YOU KNOW? World Autism Awareness Day is April 2nd, 2008

In addition to bringing us refreshing showers, threatening thunderstorms, gutsy little flowers that boldly stick their fragile little heads out of the mud, and other long-awaited promises of Spring, April 2008 will also include the first ever World Autism Awareness Day. The effort, being held on Wednesday, April 2nd, is the result of a resolution introduced by the nation of Qatar and approved by the United Nations on December 18, 2007.

That recognition, described at www.autismspeaks.org as an "unprecendented global effort...marked around the world with education, awareness and celebration," is expected to continue to raise awareness for autism to a whole new level. CNN is dedicating the day to mass coverage of this important topic with its programming entitled, 'The Myths of Autism.' One in 150 children is now diagnosed with autism, which is four times more common in boys than girls.

For more information on World Autism Awareness Day, visit www.autismspeaks.org, www.autism-society.org or www.cnn.com.

Awareness is key for all disabilities.

JudyWinter
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Spring Has Sprung!


Spring is finally here and that means flowers!!!! I don't care how hard the Weather Channel tries to mess with my mind, including with those threats of late-season snow and single-digit wind chills. Well, I do care, but in less than twenty-four hours the calendar will proclaim that it's officially April anyway, and that means summer can't be far behind, right?

I am ever the eternal optimist- a handy survival tool when living in the Midwest, and when parenting children with special needs.

I LOVE flowers....and kids with/without special needs.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Tuesday, March 04, 2008

DID YOU KNOW? March is National Reading Month

In case you needed a reason to read a book, here it is:

M
arch is National Reading Month!

In honor of that reality, here's a photo of my son while very young sharing a good read with a good school buddy. I love this photo for so many reasons....

I'm a big supporter of reading for all children (and for adults) and I believe the earlier we begin the process of reading to them (think brain development), the greater the benefits. I especially believe in the value of reading to kids with special needs, regardless of a diagnosis (again, think brain development). You have no idea how this kind of effort may impact your child is positive ways down the road. Try to give it your best shot, no matter how tough.

My son and I spent hours reading books from the beginning of his life, from Mercer Mayer to Dr. Seuss, to Sesame Street to Captain Underpants, to books about rockstars and guitars and the solar system. Early on, Eric wiggled and squirmed and seemed unable to be easily immersed in the magic of words and pictures. But with time, persistance, maturity, (and adding lots of fun), reading soon became one of our favorite things to do together.

In fact, once Eric learned that I could do the voices of Elmo, Cookie Monster, Grover and Barney, and also mix up all the crazy Dr. Seuss rhymes and make up great kids' tales, reading became an exciting adventure that was never boring.

To my son, I was the coolest mom in the land.

Eric grew to love books as much as his big sister, Jenna, mainly because we didn't deny him the chance to experience reading because of his cerebral palsy. Today, I believe strongly that our commitment to reading to both of our children had positive impact on their development in many ways.

Plus, it was a great way for us to escape the on-going daily demands of addressing Eric's special needs and just be together, mother and child. I will always treasure those priceless moments and memories reading with both of my children.

Special Note: I know it's tough, if not impossible, to read to your kids if you're struggling with your own literacy issues. The good news is there is help available, so what are you waiting for!! Seek out the support you need; then watch your own world (and that of your children) open up in big ways. There are some terrific resources to help you make that magic happen.

Here's a good place to start: National Institute for Literacy: http://www.nifl.gov/

Now give all those hi-tech gadgets a rest, turn off the TV, and go pick up a book and READ!!

It will change your life, and the lives of your children.

No technology required.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter


Oprah and OCD

Heads up to all those facing the challenges of Obsessive-Compulsive Disorder (OCD). Oprah producer's have a call out for stories for a possible upcoming program entitled: Has Obsessive-Compulsive Disorder Touched You?

To read more program details and submit your story, use the following link or visit Oprah.com and click on 'Tell Us Your Story':

https://www.oprah.com/plugger/templates/BeOnTheShow.jhtml?action=respond&plugId=315500001

Let me know if the show happens and if it includes you.

Good luck!


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Friday, February 29, 2008

What's Your Drug of Choice?

I think that most people, if honest, will admit to having a favorite vice for coping. Yours might be overshopping, overeating, gossiping, hoarding, gambling, drinking, doing drugs, smoking, overworking, cheating on your spouse (including online), or charging another pair of Jimmy Choo shoes you cannot afford, no matter how you do the math.

Did I hit a nerve?

Right now, I've got a major sugar hangover from overindulging in my favorite candy in the world, Hershey Kisses, the brand new Easter 2008 version, filled with yummy coconut creme. I ate the whole bag in one sitting, and now I'm having trouble thinking clearly enough to write this entry. Plus, I can't sit still.

I told myself that I was celebrating Leap Year.

In the world of serious vices, this one might not seem all that bad, unless you have a sensitivity to sugar, which I do, and you're a writer who must express your thoughts clearly, which I must. Sugar short circuits my brain and derails my muse, which impacts my work output and self esteem, leaving me hungover and a tad bit testy.

Still, that chocolate sure does taste good, especially when washed down with an icy Diet Coke, another of my vices.

In the past, food has comforted me during some extra tough life moments, an enticement that I still sometimes battle. But I've discovered that the more I choose to express my emotions in productive ways, the less hold my drug of choice has on me. Regular venting, staying in shape and self-imposed discipline are the best antidotes to my vices.

I admit that yesterday, just say no held absolutely no meaning for me. Like an out-of-control two-year-old, I wanted that coconut-creme chocolate and no parent was there to stop me. Plus, it was snowing outside- again!! But my nest is empty now, so the only one paying the price of my sometimes occasional addition is me, and maybe my loving husband if he comes home before I've slept off the sugar buzz.

I'm adding some humor to a serious subject, but I know that parenting can be incredibly challenging. When your child has special needs, it can be especially stressful. I've been there and learned the hard way that the on-going stress demands release.

I also understand that serious time constraints, the inability to arrange and pay for good child care, and many other tough realities of the role can keep you from making wiser choices: like taking time to exercise, journal, attend counseling or parent-support groups, or arrange regular date nights, and so on.

Yet, it's critical that you do just these things to keep functioning in a healthy and productive fashion. The reality is that what may at first seem like a harmless little means of coping can quickly become a major problem that interferes with meeting your daily demands. It can even impact your health, and that can negatively impact the quality of life for all around you, especially your child.

If you're struggling with a serious addiction, seek out necessary support. Our children deserve the best we can give them and they're far sweeter than any vice, including Hershey Kisses with coconut-creme filling.

That said, I think I'll have an apple for lunch today, right after I finish this Diet Coke...


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Take Note: National MS Awareness Week 2008

National Multiple Sclerosis (MS) Awareness Week 2008 is March 10th thu March 17th.

You can find out more at: http://www.nationalmssociety.org/


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Thursday, February 28, 2008

DO YOU EVER WONDER WHY?-March 2008

DO YOU EVER WONDER WHY?...

So many people who interact with a child or adult with special needs, especially for the first time, automatically raise the pitch of their voice, talk baby talk and/or speak more loudly-- or worse yet, act like they don't even see the person?

Most of us have experienced this phenonmenon at one time or another. I usually chalk it up to a lack of experience, awareness and an overall discomfort with disability that many people still experience in 2008. So let's educate them.

Helpful Hint: Please speak directly to individuals with special needs as you would anyone else, and unless the person (or those with them) indicates that you need to speak more loudly in order for that child or adult to hear you, tone down the volume and pitch. Never ignore them.

-and please, reserve all that really cute baby talk for babies.


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

I'm a Big Fan of...! March 2008


Here's my March 2008 gush!

I'M A BIG FAN OF MARLEE MATLIN!

I am thrilled with the news that this amazing, talented, Oscar-winning actress (who happens to be deaf), has been added to the new season of Dancing with the Stars!

I was fortunate to meet Marlee at the AOL-Dove CEO Awards in NYC in 2006 where she and I were both recognized. Marlee delivered a great keynote. She is funny, talented, confident, intelligent and a great role model for all of us. Marlee made it clear in her speech that she attributes much of her success to the way in which her family raised her to be just a typical kid (parents take note).

Those parenting efforts paid off handsomely. Lucky for us.

You can find out more about Marlee Matlin at: www.marleematlinsite.com.

-And make sure you vote to keep Marlee in each week. Our numbers are mighty powerful when we unite to support a worthy cause. What a statement we can make!

Congrats, Marlee! You've got my vote.

I like this show even more now....

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Minute Vacations- March 2008


Judy's Minute Vacation for March 2008
St. Thomas, U.S. Virgin Islands


Put yourself here and escape, if only for a few moments... minus the sand in your teeth!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Judy Winter's FAV Quote of the Month- March 2008...

"A miracle is a shift in perception."
-Marianne Williamson


Change your thinking; change your life.
-and the lives of your children.

I've done it many times- it works!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Larry King Live and Autism

If you missed last night's 'Larry King Live' program on autism, here's the link for a partial viewing. The program featured Jason J-Mac McElwain, who became a national sensation after scoring 20 points straight during a high school basketball game in 2006. Jason, a charming and well-spoken young adult with higher-functioning autism, went on to win the ESPN ESPY Award for Best Moment in Sports 2006. He has written a book about his life entitled The Game of my Life.

Here's the link to the interview:

http://edition.cnn.com/video/#/video/bestoftv/2008/02/27/lkl.autism.long.cnn

Also on the program, Holly Robinson Peete, Toni Braxton, and Doug Flutie who all have sons with autism. The Doug Flutie Jr. Foundation for Autism provides resources and other support for families facing this challenging diagnosis. Check it out:

www.dougflutiejrfoundation.org


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Monday, February 25, 2008

WKAR-TV (PBS affiliate) and the film Rolling


Megan's Beach
U.S. Virgin Islands



I'm back after a nearly two-week sun-filled excursion to the U.S. Virgin Island where I spent some much-needed time refueling from the craziness of the year, while also honoring the fifth anniversary of my son's death. You never get over the loss of a child, but I've learned that you can live with renewed purpose that does justice to your child's life and legacy, and helps you get out of bed in the morning.

Every so often, I need to stop and remember why I have taken on what I have taken on. My son remains my on-going muse and teacher, and I miss Eric every single day. I remain in awe and humbled by what this young child's life has meant to so many others facing the challenges of special needs throughout the world.

So much for focusing on a child's disability...

Lots has been happening in my absence, and I'll try my best to catch you (and me) up on some of the highlights soon. But in the meantime, here's an April event that I'm thrilled and honored to be part of; be sure to check air dates/times for the film Rolling on your PBS affiliate station. There may be a local effort planned in your own community. Check it out!

I gotta go unpack and do some laundry!
________________________________________

"Rolling Event"
Saturday, April 26, 11 a.m.-5 p.m.
at WKAR

"Rolling" is a television documentary profiling wheelchair users.

FOR MORE INFORMATION ON THIS DOCUMENTARY, VISIT: http://www.thirteen.org/rolling
--------------------------------------------------------------------------------
WKAR Receives Grant for Community Event

WKAR-TV was recently awarded a $4,000 grant by WNET/New York to host a community event focusing on wheelchair use and relating to the public television program Rolling, which will air on the public television station this spring. The grant was one of five offered to public television stations nationwide.

The free event will take place at WKAR on Saturday, April 26, from 11 a.m. to 5 p.m., and include both an extensive resource room and a program featuring several speakers, a musical performance and a preview of the national documentary.

Community partners for this event are the Capital Area Center for Independent Living, Center for Educational Networking, Peckham Industries, MSU College of Music and Community Music School, and MSU’s Resource Center for Persons with Disabilities. Judy Winter, the author of “Breakthrough Parenting for Children with Special Needs,” and nationally recognized speaker and advocate, is serving as project advisor.

The day-long event will include a resource room featuring organizations dealing with wheelchair use, independent living, and special needs, among other related topics. Those attending the free event will be able to pick up information and talk with representatives from participating organizations.

The program will take place at 1 p.m. and include remarks from several leaders on this topic, including Judy Winter, Al Swain of the Capital Area Center for Independent Living and a teen who is a wheelchair user. The program will also include a performance by students from the Music Therapy Program at Michigan State University’s Community Music School and a preview of the television documentary.

Please visit WKAR.org closer to the event date for an updated schedule and additional information.



JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Monday, February 11, 2008

Reminder/Update Re: Dance War & DSALA--Airing Tonight!

A quick update regarding tonight's episode of Dance War: Team Bruno vs Team Carrie Ann.

Members of the Down Syndrome Association of Los Angeles (DSALA) have been informed that they WILL have 60 seconds of fame on tonight's show. (See my Feb. 8 entry for more details). Check your local listings for broadcast time.

First, the PepsiCo Superbowl ad and the inclusion of kids with Down syndrome in the Oprah MLK tribute earlier this month, and now this! It's this kind of continued coverage (in addition to on-going media talk of autism on programs like Larry King Live and Oprah) that indicates valuable progress is being made in creating awareness and acceptance of a wide range of special needs coverage in major media.

Very cool...and long overdue.

Congrats to Gail Williamson and DSALA members for pulling this off! This is great exposure during valuable prime-time on a hot new program! Be sure to watch- and vote!
-And remember to write the network and tell them you approve!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Friday, February 08, 2008

Granddoggy Zelda



I'm a wee bit tired of all the heavy snow of late, but my daughter's furry baby Zelda is simply captivated! The enchantress helps me see the powdery old landscape through brand new eyes...

Kids and granddoggies- life's greatest teachers!

Thanks, Z! xo


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter