Monday, April 14, 2008

Equal Granddoggy Time- Introducing Sir Griff

If you've checked out my blog, you've seen my photo of beautiful shelter Granddoggy Zelda. In the spirit of equal time (and cuteness!), here's my other furry joy, Sir Griff, the adorable, spirited, rescue Granddoggy Corgie, who's always looking for something or someone to herd! Photo courtesy of my talented photog daughter, Jenna, who's a wonderful, responsble pet owner. She makes me proud. They all make me smile.

I know, Griffy! I need to buy you more doggie treats....

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Sunday, April 13, 2008

Simple Advocacy-Day Fourteen

CONGRATULATIONS!  

You've made it through Fourteen Days of Simple Advocacy!
  

Let's count 'em down beginning to end:
-Tell your child that you love him/her, no matter how rough the day, complete with hugs.
-Educate yourself about your child's diagnosis.
-Express gratitude.
-Contact the media.
-Express yourself.
-Sit still.
-Spend one-on-one time with your kids without special needs.
-Learn the law.
-Laugh often.
-Focus on the present.
-Organize your child's records.
-Pay it forward.
-Call a family meeting.

Simple Advocacy-Day 14: (drum role, please!)

Count your blessings. I know, you hear this all the time.  It sounds trite, but it can be remarkably effective.   It's true that you do not need to look very far before you will find someone who has it worse than you do.  As I've traveled the country and spoken to countless families, I've been humbled, amazed, even brought to tears by the tremendous challenges many families lovingly take on daily, including parenting more than one child with significant special needs.  Counting your own blessings has a way of making everything seem just a bit more doable, and worthwhile.  It gets easier with practice.

So before your head hits the pillow this evening, take a moment to reflect upon your day.  Then, in your mind or in a journal, record one thing that your child accomplished today that made you proud, no matter how small it may seem.  Small steps now lead to bigger future gains.

Learning to live with gratitude is a powerful life lesson that can change the quality of your life, and that of your children.  Now, on to facing even bigger advocacy issues...  

Yes, you can!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Saturday, April 12, 2008

Simple Advocacy-Day Thirteen

Call a family meeting. If you have a terrific extended family unit that supports your challenging parenting situation without being asked, consider yourself blessed. The reality is that many families lack such valuable support. But rather than fret and fume and hope people will step up and offer the support and understanding you need, call a user-friendly family meeting or group dinner and tell them. 

Most people can't read our minds.  Big surprise, huh?

Let everyone know exactly what you need and expect from them, while also hearing and responding calmly to their concerns. Help others better understand your child and his/her needs to help increase comfort levels and promote greater understanding and action.  If you wait for relatives to reach out to you first, you may be sorely disappointed. Just because someone is related by blood, does not guarantee they can or will offer the support you need.  Special needs often makes family dynamics increasingly complex, especially if key relationships are already strained.  But charity does (or should) begin at home.

So speak up and ask for what you need.  You might end up with some great new childcare offers for valuable time away, along with a renewed appreciation for the term 'family'.  That's a win-win for all.

It's amazing what a simple phone call can do....

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Random Rant-April 2008. Coulda? Shoulda? Woulda?

If there's one pesky little thing that drives my writer-speaker self over the edge, especially if I'm under deadline pressure or PMS-ing, it's regular, unacceptable misuse/abuse of simple language, especially by supposedly educated people.

This simple act upsets me almost as much as learning new technology. But not quite. For that, my usually mild-manned self has been known to loudly threaten to heave my computer off the roof of my house, along with a few naughty words.

Think of all the credit the tiny letter A gets that rightfully belongs to the word HAVE. That poor little four-letter word is ignored on a regular basis in daily conversations, the media, and over coffee and cell phone chats by otherwise stellar citizens! Over blueberry scones and foaming lattes, the letter A brazenly steals HAVE's thunder with no apologies for the blatant infractions.

Consider the following evidence of popular, daily language abuse by good folk not intending any harm.

I coulda...  I shoulda...  I woulda....

The word should be HAVE, people!  They should all be HAVE! (and not OF, either).

Could have. Should have. Would have. The rampant abuse is shameful.

This week, I challenge you to pay attention to how many times you, and those around you, are guilty of depriving the word HAVE of its rightful place in our language use (but don't ignore your kids).

I bet you'll lose count.

Now, don't even get me started on pronunciation of the word Of-TEN!!! (equivalent to fingernails on a blackboard!).

I shoulda rambled on about this important subject long ago.

Oops.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Friday, April 11, 2008

Simple Advocacy-Day Twelve

Pay it forward. Whenever you find information on special needs that you believe could benefit others, pass it on. Networking and sharing valuable resources and updates is a great way for people to be kept aware of important, timely developments that may interest them and impact their children.

In the spirit of practicing what I preach, here's information about tonight's airing of the movie The Memory Keeper's Daughter on Lifetime (check local listings), complete with a review by my friend Gail Williamson, executive director of the Down Syndrome Association of Los Angeles, and mom to Blair, a talented working actor with Down syndrome.

For more about the book itself, here is the author's website: http://www.memorykeepersdaughter.com.

Be sure to give Lifetime your feedback about the movie, but first, consider sharing Gail's thoughts and the author's link!

Thanks, Gail!
_____________________________________________________________

"I enjoyed The Memory Keeper’s Daughter a Lifetime network original film to air on April 12th. Of course you don’t get time to watch the characters develop like you do when you read the book chapter to chapter, but the screenplay does a good job of representing the original story. The film, in my mind, would be rated PG13; there is reference to unfaithful married partners, not blatant and visual, but obvious; so it might not be a family film for your family. I suggest you watch it first and then decide.

Something very important to me is the casting of talent with Down syndrome and the portrayal of those characters. They were “spot on” in the film. The actors with DS did a wonderful job, I was so proud of them all and the casting directors who found them. The filmmakers did a wonderful job of showing the abilities and not focusing on the limitations of individuals with DS. It was a joy to hear all of the actors with DS speak clearly and see them truly act, playing someone other than themselves.

Have a box of tissues ready; you will need them.

On a scale of 1 to 3 chromosomes, I give it a 3."

Gail Williamson
Executive Director / Down Syndrome Association of Los Angeles, Inc.
315 Arden Avenue, Suite 25
Glendale, CA 91304
818-242-7871 voice / 818-242-7819 fax
gail@dsala.org / www.dsala.org
______________________

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Simple Advocacy-Day Eleven

Organize your child's records. Keeping good updates, especially those involving educational and medical records in accessible, colorful folders or on your computer, helps you more easily put your hands on up-to-date information as needed. The goal? Stress reduction.

This simple act can prove especially helpful during unexpected hospitalizations, appointments with specialists who may not know your child, and during all those nerve-wracking school meetings, including IEPs, when stress levels are running high and accurate updates are critical.

This is one of those things in your life you can control.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Thursday, April 10, 2008

Magical Moments



RAIN

The rain taps gently on the skylight in my office, promising greener grass, budding trees, lush lawns, flirty laced tulips, lilacs and juicy worms aplenty for eager, proud Robins. The familiar seasonal cadence suits my reflective writer's mood well.

Fragrant cup of tea in hand, I forgo tempting e-mail and breathe in nature's annual rite of magic.

For the moment, I am content.

What makes you happy?

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Simple Advocacy-Day Ten

Focus on the present. By addressing your child's most pressing challenges well today, you can help build a more solid foundation for his/her future success. Most parents of kids with special needs quickly learn that it's too overwhelming (even scary) to look too far into the uncertain future, especially when their child has a particularly challenging disability.

Instead of freaking out over future unknowns, save your precious energy and stay on task.

Good rule of thumb? Bite off only what you can chew (take on) today. Facing today's most pressing tasks well, can and does help ensure brighter futures for all involved, while helping parents better meet their child's most immediate needs without burning out.

That's worth today's best effort.

JudyWinter.com
Breakthrough Parenting for Chidlren with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Wednesday, April 09, 2008

Simple Advocacy-Day Nine

Laugh often! Rent a funny movie, indulge in your favorite television program, tell silly knock-knock jokes with your kids, but take time each day to laugh, even if only at the ridiculousness of your current demands.

At the very least, force a smile. Research shows that laughter is a great stress release that has positive impact on your immune system. and your attitude. Plus, it makes you more fun to be around.

So snort your little heart out. Your body and soul (and your family) will thank you.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Tuesday, April 08, 2008

Marlee Matlin and DWTS!

After last night, here's my take so far on Marlee Matlin's weekly performances on Dancing with the Stars, a gig she makes look incredibly easy.

In a word, Remarkable!

You go girl!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Spring Inspiration!


Whenever I write/speak about special needs and the law, however briefly (see last entry), I always feel the need to balance off the discussion with something slightly more enticing, like beautiful flowers!

It's a bit like cleansing the emotional palate after a heavy meal.

Enjoy!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Monday, April 07, 2008

Simple Advocacy-Day Eight

Learn the law. Get yourself a good resource to have on hand that you can refer to time and again as needed to address a particular challenge facing your child (mine are well dog eared!). You can also access the Internet for lots of free info on this topic. Googling will help you find them fast.

If you want to purchase your own books, here's a great website to get you started. Wrightslaw.com, considered a forerunner in providing accurate, family friendly resources on Special Education Law, (and no, they aren't paying me to say this; but maybe they should!). Start slowly, and refer to your resources as needed, including for timely updates.

It's tough to advocate effectively for your child if you don't have at least a working knowledge of the the laws protecting their rights. But you don't need to become an attorney.

Although, there may well be days when you feel like you do.... 

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Simple Advocacy-Day Seven

Spend one-on-one time with your kids without special needs. Take a few minutes each day to connect with them and find out what's going on in their lives. Such actions can go a long way toward helping these kids better handle their challenging roles. Talk about their day, their hopes and dreams, their homework, and yes, their honest take on the daily challenges faced by their siblings and the family unit.

Ask them how they're doing. Don't censor their words, and don't interrupt. Instead, listen compassionately and without judgement so you can learn how to better meet their needs. Their voices need to be heard.

Never forget that these sibs deserve your best parenting, too.

JudyWInter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Saturday, April 05, 2008

Simple Advocacy-Day Six

Sit still. Put down the cell, get away from the computer, stop talking, forget the laundry, and clear your mind. No doubt you're juggling a million different things with your child's schedule, appointments, meetings, research, and daily challenges. Your body and mind may be in danger of overload.

Stop.

Today, give yourself ten minutes to sit quietly, clear your mind and take care of you. Look out the window and observe the birds or budding trees in your backyard, sit in the warm sun, stretch, pet your cat or dog, slowly sip that cup of coffee, or just observe your breathing. You can even take longer in the bathroom, but close the door. The idea is to get away from your demands for a short while and add some much-needed balance and self care back into your life.

Your brain, and you, will appreciate the time off, however brief. Stop problem solving for a few minutes. The world won't end because you take some time for you, and you will most likely return to your challenges refreshed and better able to cope. It's not selfish. It's necessary to go the parenting distance.

Just be still.

Permission granted!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

I'm a Big Fan of ...! April 2008

Here's my April 2008 gush...

I'M A BIG FAN OF JULIA CAMERON!

The multi-talented artist is perhaps best known for her bestselling book The Artist's Way: A Spiritual Path to Higher Creativity, but I find inspiration in her many books. A few of my favorites include: Transitions (which speaks especially well to my life right now), The Writing Diet: Write Yourself Right-Size (I love this fresh take on shaping up by healing emotions through words), and Some People Say that God is No Laughing Matter

Did I mention Cameron has a cool sense of humor?

No matter where I am on my life path as a writer or as a woman, Julia Cameron always manages to inspire and motivate me and get me back on the writer's path, while granting me sacred permission to be wherever I am on this challenging life journey (including having writer's bloc). I think she's a writer's best friend, but you don't need to be a creative soul to benefit from her wisdom and words, or the self validation (and hugs!) her pages provide. As long as she's putting thoughts into words, I'll be buying.

I'm a proud (and grateful) Cameron groupie.

Let me know how this remarkably talented woman has impacted your life.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Simple Advocacy-Day Five

Express yourself! Having a child with special needs usually comes with a wide range of emotions that demand expression. Journaling or talking out your anger, frustration, sadness, fear and, grief (including with a professional if needed) are just two healthy ways to safely release your strongest feelings.

Such honest expression, including through the gift of tears, allows you to better move forward to embrace and love the child you do have. Carrying all that other stuff around robs you of valuable energy you need for the challenging tasks at hand.

Express away, and feel free to blast Madonna on your iPod as you vent.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Friday, April 04, 2008

Reflecting on the 40th Anniversary of the King Assassination


On this, the 40th anniversary of the assassination of Dr. Martin Luther King, Jr., I invite you to pause and reflect on how Dr. King's work for equality and justice matters to all who value their freedoms, regardless of race. I hope you'll take time to read my past tribute to Dr. King on this blog dated January 20, 2008 entitled Honoring Dr. Martin Luther King Day 2008.

I encourage you to visit the resources listed there to better understand Dr. King's work and legacy, and the value they hold for those who care about social justice today. I honor his life today by recognizing the remarkable and effective advocacy that resulted from King's bold commitment to serving as a relentless and compassionate voice for others. I am also reminded of the high cost of such advocacy. It's a reality I came to better appreciate as I fought for a better life for my son, Eric.

Dr. King's lessons in humanity and humility continue to impact my work on special needs issues today and are worthy of our reflection. We can all make a difference in this world. All you need is a dream. Right, Dr. King?

What's yours?

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Simple Advocacy-Day Four

Contact the Media. Inform print, radio/tv broadcast and other media (by phone, email or letter) that you approve of their coverage of special needs issues. Tell them about your child and why such coverage matters to you.

This is great opportunity to let your voices be heard, and yes, it does matter. The awareness and understanding created by such media efforts is priceless and far reaching. It often impacts your family, too.

Here are just a few examples of television programs currently doing a great job of including special needs: Way to go, ABC!

Dancing with the Stars (ABC)
Extreme Makeover-Home Edition (ABC)
Oprah's Big Give (ABC)
CNN (lots of autism programming, including on Larry King Live!)

You can also respond to local media coverage in your own hometown.

Special Note: Coming Up this month:

PBS-'Rolling,' a documentary about wheelchair users airing nationwide this month. Check local stations for broadcast times. Also, watch for the April airing of the PBS program “Hubert’s World,” which focuses on the triumphs and challenges of a man with cerebral palsy.

The Memory Keeper's Daughterr, based on the bestselling book and airing on Lifetime, Saturday, April 12th. (Down syndrome).

Here's the link to share feedback for that movie: http://www.mylifetime.com/on-tv/movies/memory-keepers-daughter


Write on!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Thursday, April 03, 2008

Jenny McCarthy Drops the BS Word on Larry King Live!

Message boards are buzzin this morning about Jenny McCarthy's appearance on last night's Larry King Live and her sometimes emotional responses that included loudly hurling the the BS word. (I do hope her son wasn't watching).

I've often jokingly(?) warned others that when it comes to moms of kids with special needs, you don't want to unlease the beast within, believe me. There's nuclear power in there.

Here's my take on the whole brouhaha from last night. In the past, I've questioned whether, celebrity aside, Jenny McCarthy is the right spokesperson for autism (think clear understanding and presentation of the facts of the diagnosis and our obsession with celebrity expert culture). I still do. But one thing you can't take away from this gutsy mom, She's got people talking about and paying attention to autism, and she just took off the funny-lady gloves and turned it into a much-needed debate worthy of the seriousness of the topic.

Kids lives are at stake here and the numbers are escalating dramatically each and every day. With her outburst last night, I felt that for the first time, Jenny McCarthy seemed like just another frustrated, loving mom, not a celebrity. She seemed human, while finding out firsthand just how tough it is to impact real special needs change, even if blessed with coveted celebrity status that opens media doors and ensures interviews. The result was valuable coverage for a worthy cause we cannot ignore.

Say what you will about her approach (including questionable language use), but that kind of exposure is priceless. It was World Autism Awareness Day after all, and Jenny certainly got our attention. With that, came valuable attention for children and families who need our support now. She just needs to work a bit more on her advocacy skills and facts (and take some really deep breaths) if she's going to continue to have impact where it counts (think political circles). Many people lack full awareness of how politics (and funding) impacts real change at the highest levels. But I think she (and Jim Carey) are up for the task. So bring on the March on Washington, complete with Carey in costume!

Now, if the media would just expand on this heated discussion and include a wide range of special needs challenges facing millions of other families each day (along with more non-celebrity advocate interviews from those living the realities each day and well versed in the facts), I'd be more content, and less likely to release the beast within me.

Autism is important, and so are the challenges facing millions of children and families with many other disabilities worldwide. So enough with the same old questions and guests each time this valuable air-time is granted, (hear that: Larry and others). Mix up the discussion, the topics, and the guests, please!

Producers: If you're reading this rant, I'd love to chat more, and I promise not to swear.


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Simple Advocacy-Day Three

Express gratitude. Take time to send a heartfelt note or card of thanks (snail mail, not email) to someone whose efforts have made a difference in your child's life, and your own.

Good karma has a way of returning to you when need it most.


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Wednesday, April 02, 2008

Reminder-It's World Autism Awareness Day!

Reminder: Today is World Autism Awareness Day and that means major-media coverage and lots of other buzz on the topic, including on CNN. Check out my entry about this ground-breaking day below. Such coverage and discussion does help bring awareness to the bigger issue of special needs, allowing us to build on obtaining broader, much-needed coverage of a wide range of disabilities.

Imagine what could happen if we all joined forces for the overall cause of special needs? You and I can help make that happen. There is power in numbers, and in our voices, as this day helps prove.

Raise yours.


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Simple Advocacy-Day Two

Educate yourself about your child's diagnosis so you are better prepared to face/address the challenges it may present you.

You might just help write some brand new statistics.


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Tuesday, April 01, 2008

Introducing 14 Days of Simple Special Needs Advocacy

When it comes to special needs parenting, one thing quickly becomes clear. If you expect your child to have the best life possible, than you must become their best advocate.

Too often when parents hear the word advocate or advocacy they question their ability to be effective, citing time constraints, lack of knowledge and people skills, no confidence or lack of training and limited finances. They think that to be an effective advocate they must take on a big challenge in the outside world.

The reality is that many parents are just too overwhelmed or too pooped to even consider taking on such a big role. Many are just trying to make it through the next IEP, family gathering, appointment with the specialist or therapists, or survive the bedtime routine. They aren't up for saving the world, just a small piece of it.

So I want to simplify the word for you. Because sometimes, the most effective advocacy for a child with special needs begins with seemingly simple actions taken in the home, actions that go a long way toward improving a child's life, and your own.

I'm talking user-friendly advocacy that anyone can take on, the kind of valuable advocacy that changes lives, too. The kind that can help you take on the bigger stuff.

In the spirit of creating empowered parents who effectively advocate for their kids in the simplest ways each day, I'm introducing 14 Days of Simple Special Needs Advocacy. I hope these helpful, proactive reminders over the next two weeks will prove useful to you and your family throughout the year.

Afterall, April is all about rebirth and remarkable new growth after a long, dark winter...

Let's get started.

SIMPLE ADVOCACY-DAY ONE:

Tell your children that you love them, no matter how rough the da
y, complete with great big hugs. If he/she is touch sensitive, hug more gently and build on the effort each day.

Now that wasn't so hard, was it?


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Monday, March 31, 2008

DO YOU EVER WONDER WHY?-April 2008

DO YOU EVER WONDER WHY...

In 2008, parents of children with special needs must still work so much harder than many parents every single day just to ensure their child's rightful place in this world?

Just rambling...feel free to ramble back.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Judy Winter's FAV Quote of the Month- April 2008

I've got two favorite quotes this month. Since I couldn't decide between them, you get a bonus dose of wisdom this month, along with a smile on your face, I hope.

"Cherish forever what makes you unique,
'cuz you're really a yawn if it goes."
-Bette Midler

"If you think you are too small to be effective,
you've never been in bed with a mosquito."
-Anita Roddick

Now go celebrate differences, and advocate for needed change!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Minute Vacations- April 2008


Judy's Minute Vacation for April 2008

The Bellagio Hotel
Las Vegas


What happens in Vegas, stays in Vegas. Unless you're armed with a camera to capture all those magical moments of pure escapism, as I was at this moment. G Rated.

Enjoy!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

DID YOU KNOW? World Autism Awareness Day is April 2nd, 2008

In addition to bringing us refreshing showers, threatening thunderstorms, gutsy little flowers that boldly stick their fragile little heads out of the mud, and other long-awaited promises of Spring, April 2008 will also include the first ever World Autism Awareness Day. The effort, being held on Wednesday, April 2nd, is the result of a resolution introduced by the nation of Qatar and approved by the United Nations on December 18, 2007.

That recognition, described at www.autismspeaks.org as an "unprecendented global effort...marked around the world with education, awareness and celebration," is expected to continue to raise awareness for autism to a whole new level. CNN is dedicating the day to mass coverage of this important topic with its programming entitled, 'The Myths of Autism.' One in 150 children is now diagnosed with autism, which is four times more common in boys than girls.

For more information on World Autism Awareness Day, visit www.autismspeaks.org, www.autism-society.org or www.cnn.com.

Awareness is key for all disabilities.

JudyWinter
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Spring Has Sprung!


Spring is finally here and that means flowers!!!! I don't care how hard the Weather Channel tries to mess with my mind, including with those threats of late-season snow and single-digit wind chills. Well, I do care, but in less than twenty-four hours the calendar will proclaim that it's officially April anyway, and that means summer can't be far behind, right?

I am ever the eternal optimist- a handy survival tool when living in the Midwest, and when parenting children with special needs.

I LOVE flowers....and kids with/without special needs.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Tuesday, March 04, 2008

DID YOU KNOW? March is National Reading Month

In case you needed a reason to read a book, here it is:

M
arch is National Reading Month!

In honor of that reality, here's a photo of my son while very young sharing a good read with a good school buddy. I love this photo for so many reasons....

I'm a big supporter of reading for all children (and for adults) and I believe the earlier we begin the process of reading to them (think brain development), the greater the benefits. I especially believe in the value of reading to kids with special needs, regardless of a diagnosis (again, think brain development). You have no idea how this kind of effort may impact your child is positive ways down the road. Try to give it your best shot, no matter how tough.

My son and I spent hours reading books from the beginning of his life, from Mercer Mayer to Dr. Seuss, to Sesame Street to Captain Underpants, to books about rockstars and guitars and the solar system. Early on, Eric wiggled and squirmed and seemed unable to be easily immersed in the magic of words and pictures. But with time, persistance, maturity, (and adding lots of fun), reading soon became one of our favorite things to do together.

In fact, once Eric learned that I could do the voices of Elmo, Cookie Monster, Grover and Barney, and also mix up all the crazy Dr. Seuss rhymes and make up great kids' tales, reading became an exciting adventure that was never boring.

To my son, I was the coolest mom in the land.

Eric grew to love books as much as his big sister, Jenna, mainly because we didn't deny him the chance to experience reading because of his cerebral palsy. Today, I believe strongly that our commitment to reading to both of our children had positive impact on their development in many ways.

Plus, it was a great way for us to escape the on-going daily demands of addressing Eric's special needs and just be together, mother and child. I will always treasure those priceless moments and memories reading with both of my children.

Special Note: I know it's tough, if not impossible, to read to your kids if you're struggling with your own literacy issues. The good news is there is help available, so what are you waiting for!! Seek out the support you need; then watch your own world (and that of your children) open up in big ways. There are some terrific resources to help you make that magic happen.

Here's a good place to start: National Institute for Literacy: http://www.nifl.gov/

Now give all those hi-tech gadgets a rest, turn off the TV, and go pick up a book and READ!!

It will change your life, and the lives of your children.

No technology required.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter


Oprah and OCD

Heads up to all those facing the challenges of Obsessive-Compulsive Disorder (OCD). Oprah producer's have a call out for stories for a possible upcoming program entitled: Has Obsessive-Compulsive Disorder Touched You?

To read more program details and submit your story, use the following link or visit Oprah.com and click on 'Tell Us Your Story':

https://www.oprah.com/plugger/templates/BeOnTheShow.jhtml?action=respond&plugId=315500001

Let me know if the show happens and if it includes you.

Good luck!


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Friday, February 29, 2008

What's Your Drug of Choice?

I think that most people, if honest, will admit to having a favorite vice for coping. Yours might be overshopping, overeating, gossiping, hoarding, gambling, drinking, doing drugs, smoking, overworking, cheating on your spouse (including online), or charging another pair of Jimmy Choo shoes you cannot afford, no matter how you do the math.

Did I hit a nerve?

Right now, I've got a major sugar hangover from overindulging in my favorite candy in the world, Hershey Kisses, the brand new Easter 2008 version, filled with yummy coconut creme. I ate the whole bag in one sitting, and now I'm having trouble thinking clearly enough to write this entry. Plus, I can't sit still.

I told myself that I was celebrating Leap Year.

In the world of serious vices, this one might not seem all that bad, unless you have a sensitivity to sugar, which I do, and you're a writer who must express your thoughts clearly, which I must. Sugar short circuits my brain and derails my muse, which impacts my work output and self esteem, leaving me hungover and a tad bit testy.

Still, that chocolate sure does taste good, especially when washed down with an icy Diet Coke, another of my vices.

In the past, food has comforted me during some extra tough life moments, an enticement that I still sometimes battle. But I've discovered that the more I choose to express my emotions in productive ways, the less hold my drug of choice has on me. Regular venting, staying in shape and self-imposed discipline are the best antidotes to my vices.

I admit that yesterday, just say no held absolutely no meaning for me. Like an out-of-control two-year-old, I wanted that coconut-creme chocolate and no parent was there to stop me. Plus, it was snowing outside- again!! But my nest is empty now, so the only one paying the price of my sometimes occasional addition is me, and maybe my loving husband if he comes home before I've slept off the sugar buzz.

I'm adding some humor to a serious subject, but I know that parenting can be incredibly challenging. When your child has special needs, it can be especially stressful. I've been there and learned the hard way that the on-going stress demands release.

I also understand that serious time constraints, the inability to arrange and pay for good child care, and many other tough realities of the role can keep you from making wiser choices: like taking time to exercise, journal, attend counseling or parent-support groups, or arrange regular date nights, and so on.

Yet, it's critical that you do just these things to keep functioning in a healthy and productive fashion. The reality is that what may at first seem like a harmless little means of coping can quickly become a major problem that interferes with meeting your daily demands. It can even impact your health, and that can negatively impact the quality of life for all around you, especially your child.

If you're struggling with a serious addiction, seek out necessary support. Our children deserve the best we can give them and they're far sweeter than any vice, including Hershey Kisses with coconut-creme filling.

That said, I think I'll have an apple for lunch today, right after I finish this Diet Coke...


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Take Note: National MS Awareness Week 2008

National Multiple Sclerosis (MS) Awareness Week 2008 is March 10th thu March 17th.

You can find out more at: http://www.nationalmssociety.org/


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Thursday, February 28, 2008

DO YOU EVER WONDER WHY?-March 2008

DO YOU EVER WONDER WHY?...

So many people who interact with a child or adult with special needs, especially for the first time, automatically raise the pitch of their voice, talk baby talk and/or speak more loudly-- or worse yet, act like they don't even see the person?

Most of us have experienced this phenonmenon at one time or another. I usually chalk it up to a lack of experience, awareness and an overall discomfort with disability that many people still experience in 2008. So let's educate them.

Helpful Hint: Please speak directly to individuals with special needs as you would anyone else, and unless the person (or those with them) indicates that you need to speak more loudly in order for that child or adult to hear you, tone down the volume and pitch. Never ignore them.

-and please, reserve all that really cute baby talk for babies.


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

I'm a Big Fan of...! March 2008


Here's my March 2008 gush!

I'M A BIG FAN OF MARLEE MATLIN!

I am thrilled with the news that this amazing, talented, Oscar-winning actress (who happens to be deaf), has been added to the new season of Dancing with the Stars!

I was fortunate to meet Marlee at the AOL-Dove CEO Awards in NYC in 2006 where she and I were both recognized. Marlee delivered a great keynote. She is funny, talented, confident, intelligent and a great role model for all of us. Marlee made it clear in her speech that she attributes much of her success to the way in which her family raised her to be just a typical kid (parents take note).

Those parenting efforts paid off handsomely. Lucky for us.

You can find out more about Marlee Matlin at: www.marleematlinsite.com.

-And make sure you vote to keep Marlee in each week. Our numbers are mighty powerful when we unite to support a worthy cause. What a statement we can make!

Congrats, Marlee! You've got my vote.

I like this show even more now....

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Minute Vacations- March 2008


Judy's Minute Vacation for March 2008
St. Thomas, U.S. Virgin Islands


Put yourself here and escape, if only for a few moments... minus the sand in your teeth!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Judy Winter's FAV Quote of the Month- March 2008...

"A miracle is a shift in perception."
-Marianne Williamson


Change your thinking; change your life.
-and the lives of your children.

I've done it many times- it works!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Larry King Live and Autism

If you missed last night's 'Larry King Live' program on autism, here's the link for a partial viewing. The program featured Jason J-Mac McElwain, who became a national sensation after scoring 20 points straight during a high school basketball game in 2006. Jason, a charming and well-spoken young adult with higher-functioning autism, went on to win the ESPN ESPY Award for Best Moment in Sports 2006. He has written a book about his life entitled The Game of my Life.

Here's the link to the interview:

http://edition.cnn.com/video/#/video/bestoftv/2008/02/27/lkl.autism.long.cnn

Also on the program, Holly Robinson Peete, Toni Braxton, and Doug Flutie who all have sons with autism. The Doug Flutie Jr. Foundation for Autism provides resources and other support for families facing this challenging diagnosis. Check it out:

www.dougflutiejrfoundation.org


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Monday, February 25, 2008

WKAR-TV (PBS affiliate) and the film Rolling


Megan's Beach
U.S. Virgin Islands



I'm back after a nearly two-week sun-filled excursion to the U.S. Virgin Island where I spent some much-needed time refueling from the craziness of the year, while also honoring the fifth anniversary of my son's death. You never get over the loss of a child, but I've learned that you can live with renewed purpose that does justice to your child's life and legacy, and helps you get out of bed in the morning.

Every so often, I need to stop and remember why I have taken on what I have taken on. My son remains my on-going muse and teacher, and I miss Eric every single day. I remain in awe and humbled by what this young child's life has meant to so many others facing the challenges of special needs throughout the world.

So much for focusing on a child's disability...

Lots has been happening in my absence, and I'll try my best to catch you (and me) up on some of the highlights soon. But in the meantime, here's an April event that I'm thrilled and honored to be part of; be sure to check air dates/times for the film Rolling on your PBS affiliate station. There may be a local effort planned in your own community. Check it out!

I gotta go unpack and do some laundry!
________________________________________

"Rolling Event"
Saturday, April 26, 11 a.m.-5 p.m.
at WKAR

"Rolling" is a television documentary profiling wheelchair users.

FOR MORE INFORMATION ON THIS DOCUMENTARY, VISIT: http://www.thirteen.org/rolling
--------------------------------------------------------------------------------
WKAR Receives Grant for Community Event

WKAR-TV was recently awarded a $4,000 grant by WNET/New York to host a community event focusing on wheelchair use and relating to the public television program Rolling, which will air on the public television station this spring. The grant was one of five offered to public television stations nationwide.

The free event will take place at WKAR on Saturday, April 26, from 11 a.m. to 5 p.m., and include both an extensive resource room and a program featuring several speakers, a musical performance and a preview of the national documentary.

Community partners for this event are the Capital Area Center for Independent Living, Center for Educational Networking, Peckham Industries, MSU College of Music and Community Music School, and MSU’s Resource Center for Persons with Disabilities. Judy Winter, the author of “Breakthrough Parenting for Children with Special Needs,” and nationally recognized speaker and advocate, is serving as project advisor.

The day-long event will include a resource room featuring organizations dealing with wheelchair use, independent living, and special needs, among other related topics. Those attending the free event will be able to pick up information and talk with representatives from participating organizations.

The program will take place at 1 p.m. and include remarks from several leaders on this topic, including Judy Winter, Al Swain of the Capital Area Center for Independent Living and a teen who is a wheelchair user. The program will also include a performance by students from the Music Therapy Program at Michigan State University’s Community Music School and a preview of the television documentary.

Please visit WKAR.org closer to the event date for an updated schedule and additional information.



JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Monday, February 11, 2008

Reminder/Update Re: Dance War & DSALA--Airing Tonight!

A quick update regarding tonight's episode of Dance War: Team Bruno vs Team Carrie Ann.

Members of the Down Syndrome Association of Los Angeles (DSALA) have been informed that they WILL have 60 seconds of fame on tonight's show. (See my Feb. 8 entry for more details). Check your local listings for broadcast time.

First, the PepsiCo Superbowl ad and the inclusion of kids with Down syndrome in the Oprah MLK tribute earlier this month, and now this! It's this kind of continued coverage (in addition to on-going media talk of autism on programs like Larry King Live and Oprah) that indicates valuable progress is being made in creating awareness and acceptance of a wide range of special needs coverage in major media.

Very cool...and long overdue.

Congrats to Gail Williamson and DSALA members for pulling this off! This is great exposure during valuable prime-time on a hot new program! Be sure to watch- and vote!
-And remember to write the network and tell them you approve!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Friday, February 08, 2008

Granddoggy Zelda



I'm a wee bit tired of all the heavy snow of late, but my daughter's furry baby Zelda is simply captivated! The enchantress helps me see the powdery old landscape through brand new eyes...

Kids and granddoggies- life's greatest teachers!

Thanks, Z! xo


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Dance War and the Down Syndrome Association of Los Angeles (DSALA)


My friend Gail Williamson keeps me up to date on all the terrific things she's doing in her important role as executive director of the Down Syndrome Association of Los Angeles (DSALA). Gail also oversees the Heart & Halo Talent division of DSALA and books gigs for actors with special needs.

This woman is a dynamo, and the go-to person for many people looking to cast individuals with special needs for film and television in Hollywood and beyond. Gail's also the parent of a successful working actor with Down syndrome, my good buddy Blair! That's us at my book signing at the Crystal Cathedral in Garden Grove, California. You can read more about the amazing Williamson duo in my book.

Here's another cool announcement Gail just shared with me.

The Down Syndrome Association of Los Angeles (DSALA) hosted a meet and greet with “Team Bruno” of the ABC prime time show “Dance War – Bruno vs. Carrie Ann.”


(Photo by Tony Maddox of Tony Maddox Photography www.tonymaddoxphotography.com)


DSALA members got together to cheer up “Team Bruno” after their second week loss of the public phone-in vote to “Team Carrie-Ann.” DSALA contacted ABC and “Dance Wars” after the initial show introduced Zach a “Team Bruno” member (in grey T-shirt with thumbs-up) who has an older brother Matt who was born with Down syndrome and lives in Utah.

ABC filmed the event and intends on airing the footage on the Monday, February 11, 2008 show. DSALA will not get the final word on their appearance until Saturday, February 9. Knowing we couldn’t let everyone know between Saturday and Monday night we have chosen to let the public know of our “possible appearance” so they can watch just in case we make it.

The DSALA would also like to encourage all our friends and family to vote for “Team Bruno” following the show Monday night.

“Dance Wars – Bruno vs. Carrie Ann”
Monday, February 11, 2008
ABC, check local listings for time
http://abc.go.com/primetime/dancewar/index?pn=index

Down Syndrome Association of Los Angeles, Inc.
Gail Williamson, Exc. Director
315 Arden Avenue, Suite 25
Glendale, CA 91203
818-242-7871 office
818-242-7819 fax
www.dsala.org
info@dsala.org

Hmmm... until now, I was backing Team Carrie Ann......

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Friday, February 01, 2008

I'm a Big Fan of...! February 2008


Here's my February 2008 gush.

I'M A BIG FAN OF SIBLINGS IN SPECIAL NEEDS FAMILIES!

Siblings in special needs families are my heroes, including Rachel (above) with her brother, Regan.

These sibs take on priceless roles in challenging family life situations with little or no voice about those tough roles. Yet, if we pay attention to meeting their needs, too, these amazing young people often grow up to become responsible, caring young adults with a maturity far greater than many of their peers. Many choose to go into helping professions like teaching and various therapy careers, the direct result of their day-to-day real-life experiences. These choices clearly benefit society.

Still, these kids often exchange childhood innocence to lay claim to those valuable lessons in adult maturity. Theirs is no easy role to take on, and I marvel that so many, like Rachel, do it with such grace, dignity, fierce sibling loyalty, and unconditional love.

As adults, we have much to learn from these special siblings.

Recently, I received a wonderful e-mail from Rachel, a college student who took the time to write and tell me how much she enjoyed my book. Rachel also shared her inspiring words of support and love for her brother, Regan, now a high school senior.

With her permission, I am sharing her heartfelt words and the photo of her with the brother she clearly adores.

I hope that Rachel's words of wisdom inspire you as much as they do me.

-Please remember that it's important to take good care of all the kids in your family...that's why I devoted an entire chapter to sibling voices in my book.

____________________________________________________

My name is Rachel, and I am a junior Communications major at Southern Utah University. I recently read your fantastic book, and I am giving a report on it in my parenting class this Friday. I want to thank you for your book. I thoroughly enjoyed reading it! I, like your daughter, was born the first grandchild and I was healthy and happy. When I was 2 1/2 years old, my brother was born with cerebral palsy. My parents and the doctors knew something was wrong but they weren't able to diagnose him for a few years.


Regan cannot walk or talk, but he has a machine called a Pathfinder that talks for him. He also has developed his own form of sign language, which we call "Reglish" that we use to communicate. Today Regan is 17 years old and a senior in high school. He is very interested in the news and film production, and he loves to travel. One of his favorite places to be is riding in the car in traffic on a busy highway! Regan is the most amazing person I know and I am so grateful to be his big sister.

I wouldn't trade my brother for the whole world. I know he was sent to our family to help us learn patience, love, hope, and so many other things. Regan has a message he likes to share with everyone he meets. His message is "Don't be sad if you ever have a child or grandchild with special needs. It is just a different journey so hop on and enjoy the ride!"

When I read the chapter about siblings of special needs children, I found that I can totally relate, and it was fun for me to be able to hear other's stories. It sounds like your son was a pretty amazing kid, and I thank you for sharing a little of him with me. I have a special place in my heart for children like Regan and Eric. I know they are God's special angels and they were sent to this Earth for a purpose. I am sorry for your loss, and I want you to know that I admire your strength and courage.

Thank you again for your amazing book and for your example.

-Rachel


-and thank you, Rachel, for sharing your insightful, loving words with me , and with the world! You inspire me.


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter




DO YOU EVER WONDER WHY? -February 2008

DO YOU EVER WONDER WHY?...

When you make a purchase these days, so often, you're the one spouting those lovely little words hello, thank you and have a nice day? Aren't businesses (or parents) today training employees/children in the ABC's of retail/social basics, or don't they practice them either?

I've tried standing at the counter long after a costly transaction, staring hopefully in anticipation. It doesn't work! All it does is make the employee give me one of those clueless, unnerving what-do-you-want-now looks that makes me want to throw whatever I just bought at 'em, especially the Mackinac Island Fudge Ice Cream that's already seeping through the ripped bag and onto my well-worn UGGS, making them look even uglier.

Please excuse me for asking, but what has happened to basic customer service, simple manners and the sacred mantra that the customer is is always right? More often than not, these treasures of civility seem to be missing in retail action.

FYI business owners: More and more I'm making my spending choices based on good customer service. I can, will and do pay more for this luxury. My husband will assure you that this far-too-frequent customer service snafu is costing you some major bucks!

Perhaps you could you at least try to address this before my next shopping trip?

Please?

Just asking... and thank you in advance!


Parents please take note-- there's little worse than a spoiled child with special needs, no manners and no discipline, unless of course, it's a privileged child without special needs, no manners and no discipline...!

Manners matter, and they should be taught to all children-
and modeled by the adults in their lives.


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raisng the Bar of Expectations
MySpace.com/judy_winter

Judy Winter's FAV Quote of the Month February 2008

"Our time for change has come."
-Barack Obama


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Wednesday, January 30, 2008

Judy Winter's New Website is Up & Running!

Great news, especially for everyone who's tired of looking at the outdated stuff on my old website (including me!). The new design went up this afternoon, and while we will still be tweaking technical issues and making some minor edits for a little while, what you see, is what you now get. There's lots to explore...

I hope you like it as much as I do! The talented design team has been working overtime on this one and it's a big improvement! Your constructive feedback is welcome! But please be patient while we fine tune!

Enjoy the new look and the new site!!


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Monday, January 28, 2008

Minute Vacations February 2008



Judy's Minute Vacations for February 2008
Newport Beach, California


Enjoy the view!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Friday, January 25, 2008

Pepsi, Super-Bowl Silence (gasp!) and Deaf Culture

The yearly Super Bowl ads always generate seasonal buzz and lots of noise, plus spirited water-cooler talk on Monday. This year promises to be no exception.

Except maybe for one. Thanks to those clever folks at PepsiCo (and their ad agency), one of this year's ads features 60 seconds of silence. Not a word, not a sound. Nada. Only American Sign Language (ASL).

When it comes to Super Bowl advertising, Pepsi rarely disappoints, but this time they've gone where few if any Super Bowl ads have gone before- to the topic of disability and the deaf culture, and they've done it with ground-breaking pizzaz.

That's right. A little disabliity awareness with your football, chips and beer- I mean Pepsi!

Right on!

If you haven't already seen the Pepsi Super Bowl ad featuring total silence and actors who are deaf, read on and link to the You Tube site below. Fact is, the special needs community is about to take a huge step forward in public awareness before the largest television audience in the world.

Priceless.

The ad already has tongues wagging, and that helps create awareness and discussion of ability, while challenging outdated thinking and stereotypes. That's progress.

-and people think those cute commercials are for pure entertainment.

Granted, Broussard, who plays Bob in the spot, isn't deaf (two other actors are), but he has a rare sensitivity and appreciation for this culture, and afterall, it was his idea. PepsiCo was just smart enough to run with the idea and deliver a welcome,ground-breaking, refreshing ad about something more than just selling a product.

Although I'm pretty sure PepsiCo hopes to sell product, too.

I raise my bottle of diet Pepsi to you PepsiCo for recognizing the insight and creative talent of your own employees, and for running with the idea during the super bowl of advertising gigs!

Pure genius!

Now, if only Josh Blue was performing at half time...


Check it out on You Tube, where you can also catch the behind-the-scenes production video, which does have sound! And if you like the ad, contact PepsiCo and tell them! Maybe this is only the beginning.

http://youtube.com/watch?v=ffrq6cUoE5A&feature=related


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Monday, January 21, 2008

Catching Jane Austen Fever!

For the past two weeks, I've been hooked on The Complete Jane Austen PBS series. This beautifully produced program brings to life the seven novels of the talented writer in a skillful blending of stunning scenery, gorgeous costumes, skilled period-piece performances, and romantic entanglements that satisfies the senses and nurtures intelligence.

It's the ultimate weekly chick flick, but it's on TV with no commercial interruptions!

If you haven't been watching, it's not too late to catch Jane fever. There are five more Sunday evenings left to help you escape winter's dreary hold and embrace the romance! (check your local PBS listings for air times). You can also purchase the DVD and experience all the sensory magic over and over again.

Check out the details at: www.pbs.org. -and don't forget to support your local PBS station!

Enjoy!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Sunday, January 20, 2008

Honoring Dr. Martin Luther King, Jr. Day 2008

Monday we pay national tribute to Dr. Martin Luther King, Jr. and rightly so.

But as the nation reflects upon Dr. King’s message on this recognized Day of Service, far too many people still view King's dream as one involving only race, allowing them to more easily dismiss the day's significance.

King's ideals serve as powerful examples to all, including to me in my work as a writer, author, speaker and advocate on special needs issues. This timely human rights discussion, one of great magnitude and importance, has been given greater power, understanding and voice because of Dr. King's work.

I parented a child with cerebral palsy, a wheelchair user, for nearly thirteen years. Harsh judgment of Eric’s human value because of disability required me to advocate for his basic rights every day until Eric’s death in 2003 at age twelve. Yet, I am an educated white woman living in the suburbs, complete with a white picket fence.

Dr. King’s words have proved powerful motivators in my difficult walk. ‘I have a dream’ has many times fueled my quest for better life opportunities for my son and others. Mine has been a heartfelt journey filled with both enormous blessings and stinging rejection, along with stellar examples about how spirited leadership impacts human rights from Dr. King and Robert F. Kennedy, another hero of mine.

For more than fifteen years, my tough parenting journey and heartbreaking loss have challenged me to use my voice, talent, and experiences to become a nationally recognized voice on the subject of special needs parenting issues. My son’s life and mine have been infinitely richer because of the gutsy example of Dr. King.

When my son died, I channeled my intense grief into penning a special needs parenting book to help other families navigate the rocky parenting waters a bit easier. I helped establish the annual Eric ‘RicStar’ Winter Music Therapy Camp at Michigan State University, which honors my son’s remarkable gift for music. RicStar’s Camp serves individuals of all ages with a wide range of special needs. We nurture individual ability and serve as an example of successful inclusion in the many communities we serve.

Like Dr. King, I believe strongly that ‘what impacts one, impacts all.’ Only a fine line of circumstance separates us.

Fifty-four million Americans have disabilities; 200 million people worldwide have intellectual disabilities (formerly know as mental retardation). Today, many of these individuals are still undersocialized, undereducated and undervalued. Many face inexcusable struggles familiar to other minorities, making Dr. King’s fire, passion and example critical to my on-going work, and to that of others working for much-needed societal change.

Dr. King's message holds meaning for each one of our lives. Millions of people living with the tough daily realities of special needs understand Dr. King's dream all too well. More than one has taken his/her important place at the forefront of a human rights movement designed to grant millions of children and adults the right to live out their life dreams, too That includes the ground-breaking work of visionaries Eunice Kennedy Shriver, Tim Shriver, and Christopher and Dana Reeve.

Dr. King fought for justice and equality for all. Through my passionate special needs work, I’m proud and honored in 2014 to be living out Dr. King’s dream.

His powerful lessons live on.

The lessons belong to all.

For learn more about Dr. King's work and Monday's Day of Service, visit: www.thekingcenter.com or www.mlkday.org.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Saturday, January 19, 2008

I'm a Big Fan of...! -January 2008

You may have noticed that I've started more than one of my ramblings with the words,
'I'm a big fan of... !'

So, I'm making it an official monthly entry!

Here's my January 2008 gush.

I'M A BIG FAN OF JOSH BLUE!


This super-talented comedian shot to fame by winning Season 4 of NBC's hit show, 'Last Comic Standing.'

Josh Blue also happens to have CP, a reality he doesn't shy away from in his act. But it isn't all he delivers either. He helps fight stereotypes by addressing the white elephant in the room, not by tripping over or ignoring the beast.

When Josh first appeared on the show, I admit I found myself hoping he wouldn't be relegated to the sympathy vote by playing on any audience discomfort with disability.

But the confident young comedian quickly became a crowd favorite (and mine), for all the right reasons, providing a valuable, and hilarious example of ability before an international audience.

Josh Blue won 'Last Comic Standing' because he deserved to win, a reality the audience got, including me.

CP aside, the guy's just plain funny.

Check Josh out- and tell him that I sent you!
www.joshblue.com


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Thursday, January 17, 2008

Don't Miss Oprah's Monday Tribute to Dr. Martin Luther King, Jr.

Be sure to catch Oprah's Monday tribute to Dr. Martin Luther King, Jr. The Dream Lives On- A Martin Luther King Day Special promises to deliver a powerful hour featuring a well-deserved tribute to this remarkable man who fought for the rights of all people. The program will explore the importance of King's legacy for us today.

King's work holds special meaning for those of us who care about the rights of those with special needs, a huge population that in 2008 is at the forefront of its own human rights movement. I'll be sharing my own perspective about all of this right here on Monday, too.

Let's hope we also see some of the great kids with special needs that O producers auditioned for their 'I Have a Dream, Today!' montage. Keep your eyes open! That inclusion would be huge.

How will you recognize this important day?

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Wednesday, January 16, 2008

Celebrating the 2008 Detroit Auto Show!

Another annual rite that says Spring isn't too far off is the 2008 Detroit Auto Show, a.k.a. the North American International Auto Show (NAIAS).

One of my fondest memories is attending this event with with my son during the last year of his life. Eric's wheelchair use granted our family early entry to the event, which allowed my son to enjoy the experience and cars up close before the overwhelming masses and die-hard fans descended.

We had a blast helping our budding-photographer son capture some amazing images, photos I now treasure.

Public admittance is: Saturday, January 19, 2008 to Sunday, January 27, 2008. Show hours are Saturday, January 19 to Saturday, January 26: 9:00 a.m. to 10:00 p.m. No admittance after 9:00 p.m.

Check it out if you can. Word on the street, and in the media, is that it's worth all the automotive hype.

They don't call Detroit the Motor City for nothing!


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Promises of Spring!



The days are getting longer, the sun is getting stronger, and the birds are again warbling sweet early morning tunes!

Have you noticed?


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Wall Street Journal Infiniti Ad & Review of Breakthrough Parenting

In case you're interested, you can catch the profile of my work, and me, in the Infiniti ad appearing in tomorrow's Wall Street Journal on page A 3. Thanks, Infiniti, for recognizing the value of what I do and putting it before such a great audience!

Since the book's release I've been fortunate to continue to receive some terrific press coverage and reviews for my work. I just ran across a recent review in Durham Parent that I especially like, so I'm sharing the link here in case you'd like to check it out.

Editor Kevin Mackinnon gets my work better than most and his review reflects that, especially as he connects my work to that of five-time Ironman Champion triathlete Heather Gollnick, who also has a child with cerebral palsy.

I've often said (and written) that special needs parenting is much like running a marathon without the necessary training.

Mackinnon is a well-known former professional triathlete, a coach/trainer and frequent contibuter to the Canadian Broadcasting Company who is covering the Ironman World Championship in Hawaii this month.

His Nov. 17th, 2007 review of my book appears at DurhamParent.com.

Here's the link: http://www.durhamparent.com/uppingtheparentinggame.html

More great awareness for the cause of special needs!


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Tuesday, January 08, 2008

DO YOU EVER WONDER WHY?-January 2008

DO YOU EVER WONDER WHY?...

When people ask us how we're doing on the roughest days, we often fake a funky grin and respond with that all-too-familiar four-letter word, 'FINE.'

You're fine, you say? Sure you are:

...You just got back from a midnight run to ER with a kid who's been running a 104 temp and who's still vomiting non stop on your one clean shirt. FINE!

...You've been up all night with a screaming toddler, while struggling to stay out of bed with the nasty flu bug because you have to meet your child's on-going, never-ending health-care needs. FINE!

..You're preparing for another nerve-wracking IEPT meeting with your less-than-friendly neighborhood school district in the morning and you aren't the least bit prepared. FINE!

...Your family is eating crusty, leftover mac/cheese for the fourth night in a row and there's no sign of clean laundry (or uncurdled milk) anywhere within 100 miles of your house. FINE!

...Your insurance company just denied your claim for the medication needed to improve your child's health, behavior and well being (and yours!). FINE!

...You don't remember when you last took a hot shower, styled your hair, brushed your teeth or changed your underwear ('cause the laundry hasn't been done!). FINE!

You're FINE! FINE! FINE!

But are you?

If you insist on pretending you don't need support from others when you clearly do, then FINE, but don't be surprised if you burn out. When you choose to remain silent about your true needs because you don't want to bother others with overwhelming life demands, you and your family pay a high price.

When it comes to parenting, especially for a child with special needs, it's okay and healthy to ask for help.

So here's an effective tactic I've learned through trial and error (there's lots more tips in my book!). The next time someone asks how you're doing, try answering honestly and tell them what you need. (i.e.: childcare for some time away, a hot meal one night a week, help with all the laundry, a cleaning lady who will scrub the toilets for you, a litle time shipwrecked on a tropical island with no cell phone, time to cry in private, and how about a brand-new-stinkin life!).

The world won't end because you utter these bold words.

True, you might scare a few people away with your new-found freedom to spout freely, and some of the questionable requests will go unanswered (complete with those have-you-completely-lost-it? stares). But then again, you might just get some of your most pressing needs met, including the need for clean underwear.

...and wouldn't that be just fine?


Just asking...


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations.
MySpace.com/judy_winter

Friday, January 04, 2008

Minute Vacations January 2008



Judy's Minute Vacations for January 2008
Lahaina, Maui


I know how hard it can be for parents of children with special needs to find time to get away from their demands and refuel. I also know there are times when you'd like to run away from home, for good! To help keep you from abandoning your kids, I'm starting monthly Minute Vacations on my blog. I hope some of my travel photos will allow you to escape, refuel, and daydream, if only for a short while.

It's amazing what even a little time away can do for your mental health!

Enjoy!


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Motivational Autism Statistic

I'm a big fan of early intervention for most children with special needs. But in case you've been on the fence about seeking out an early diagnosis for a child with autism, here's an important stat that may motivate you to act sooner rather than later. (2008 is all about 'New Beginnings', right?).

According to the Austism Society of America, 'the cost of lifelong care for someone with autism can be reduced by two-thirds with early diagnosis and intervention'.

That's one solid vote for taking action now.

You can learn more about this terrific resource at www.autism-society.org.

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations

MySpace.com/judy_winter

Friday, December 28, 2007

Judy Winter's FAV Quote of the Month January 2008

MY FAVORITE QUOTE FOR JANUARY 2008!

"I've seen and met angels, wearing the disguise
of ordinary people, living ordinary lives..."
-Tracy Chapman


Me, too!

Have you?


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

New Beginnings January 2008

Did you know that the Romans named the first month of the year after Janus, god of beginnings? That according to the Jan '08 issue of one of my favorite magazines Traverse: Northern Michigan'as Magazine (traversemagazine.com). For pure creative visual inspiration I also love Santa Barbara magazine-(sbmag.com). Both provide pure escapism that's healthier for the eye and soul than most reality tv!

But I digress.

I like the possibilities in that simple calendar action taken by the Romans as I face the discovery of my own life goals for 2008. Let's face it, talking new beginnings sure beats talking tired-old resolutions! And writers are all about working hard to find new ways to say the same old stuff.

So what 'New Beginnings' will be on your list of goals for 2008?

I'm still working on mine...

Happy New Year!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Thursday, December 27, 2007

Catch my Interview with Timberly Whitfield on Hallmark Channel

If you want to catch my interview on the program 'New Morning' with Timberly Whitfield that aired on the Hallmark Channel this a.m., here's the link. After today, you'll have to search their archives. It's one of the interviews I did recently in NYC. Timberly was terrific!

http://www.newmorningtv.tv/todaysshow.jsp

Enjoy!


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Saturday, December 22, 2007

Judy Winter's FAV Quote of the Month #2 December 2007

During this sacred season too often overshadowed by excessive materialism, I've chosen to end this month's blogging as it began, with a favorite quote. Simple words worth thinking about as we face the tremendous challenges of realizing peace and justice and a healthier planet for all in 2008.

MY FAV QUOTE #2 for DECEMBER 2007!

"If everyone demanded peace instead of another television set, then there'd be peace."
-John Lennon


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Friday, December 21, 2007

Holiday Blessings to All!

As we close in on one of the biggest holidays of the year (got your shopping done yet?!), I offer huge thanks to all of you for your continued support of my work, especially when it involves improving the lives of children with special needs. Your positive feedback and great stories fuel me on each and every day. I have such respect for what you do 24/7 for your children. Please give them all big holiday hugs from me, and send me your holidays tales!

I wish each of you a blessed holiday season, whatever and however you celebrate. For those who celebrate the sacred day of December 25th (that''s me!), have a very Merry Christmas, and don't forget to water the tree!

Get ready for new adventures, and even greater awareness of special needs in 2008! I plan to continue to do my best to stir things up, for the good of our kids, of course!~ Much work remains.

Peace on earth to all, and yes Virginia, it is possible...or at least that's my grownup Christmas wish. But I'm a hopeless optimistic, forever focused on life's possibilities. To me, the glass is always half full...

Blessings!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Tuesday, December 04, 2007

Oprah Show Looking to Cast Pre-Teens with Down Syndrome for Tribute to Martin Luther King!

Here's another opportunity from my friend Gail Williamson for kids with special needs (Down syndrome) to have a shot at stardom- this time on Oprah!

Deadline for submissions is this Friday, Dec. 7th!

OPRAH needs 10 - 11 year olds with DS

10 to 11 year olds with DS and good speaking skills, the Oprah show is looking for you to say a line for their Martin Luther King episode. They will be filming in San Diego on Dec. 19th, (subject to change). The line is currently "I have a dream today." They already have someone deaf doing it in sign, so our talent submissions have to be able to articulate the line. All filmed will not necessarily be in the completed montage. If you are interested please send your child's name, age, your name (parent) and contact number along with a jpg of a photo of your child (just one photo) to this email address with Oprah in the subject line. All submissions have to be received by Friday, Dec. 7, 2007. No work permit will be required, there is no pay for this project.

Gail Williamson
Executive Director
Down Syndrome Association of Los Angeles, Inc.
315 Arden Avenue, Suite 25
Glendale, CA 91304
818-242-7871 voice
818-242-7819 fax
gail@dsala.org
www.dsala.org

Gail also shares this information:

Actor Nick Weiland, who has Down syndrome, will be a guest star on “ER” this Thursday, December 6, 2007. According to Gail, Nick has been training at Performing Arts Studio West , an adult day program in Inglewood, CA that trains actors and performers and helps facilitate employment for many of their students.

Nick will also appear on SAVING GRACE, Monday, December 10, 2007 on TNT. The guest star on the episode is Nick Daley also a student at Performing Arts Studio West. There will be several other actors with DS from DSALA Heart Halo Talent as background performers including: Briana Barlow, Elliot Orenski, Bahareh Saviss and Shannon Dieriex.

For all those wanna-be actors/models with special needs out there, here are two valuable industry resources!

www.DSALA.org (DSALA Heart & Halo Talent)
Performing Arts Studio West: http://pastudiowest.com/

Break a leg!!

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Sunday, December 02, 2007

'Including Samuel' From Filmmaker-Dad Dan Habib

One of the really good things about the Internet is how quickly you can connect with others who are doing important work with their lives.

Award-winning photojournalist/filmmaker and dad, Dan Habib, is one of those people.

After hearing Dan's interview on NPR recently about his efforts for inclusion for his son, Samuel, who has cerebral palsy, I contacted Dan. We e-mailed back and forth about our mutual efforts to more positively impact the world of kids with special needs. Dan's son is similarly challenged to my son who passed away in 2003.

Dan's passion, commitment, and his deep love for his child resonated with me. We are made of similar parenting cloth. I like what Dan is doing a lot. So I've listed his two websites in my FAV resources for 2007/08. But he's worthy of another shout out here.

Check out this terrific dad and find out more about his powerful documentary, 'Including Samuel' at:

http://www.danhabib.com/ or http://www.includingsamuel.com/.

Dads like Dan are true VIPS!

I love sharing great resources with you!


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Judy Winter's FAV Quote of the Month December 2007

MY FAVORITE QUOTE FOR DECEMBER 2007!

'In the practice of tolerance,
one's enemy is the best teacher.'
-the Dalai Lama

Good food for thought...

JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter

Giving Thanks for All Your Children!

While traveling a bit more slowly than usual yesterday on an ice-covered highway near a major city, I was struck by the following message on a holiday billboard. It read:

Give Thanks for All Your Healthy Children!

The wording got me thinking (again) about how many people believe that having a child with any kind of health challenge or disability is a fate worse than death (it's not), and how often our media messages help support this kind of limited thinking.

My first reaction was to stop the car, get out, climb up the billboard and X out the word healthy, making the message read:

Give Thanks for All Your Children!

Though tempted, I didn't go that far in my advocacy (except in my mind), but you get my drift. Fortunately, my level-headed husband was behind the wheel and he's a stickler about safety on the road. That includes not stopping in response to my highway whims at a moment's notice!

Plus, we were on our way to a wedding and I was sporting four-inch heels!

If you are blessed with healthy children, you should give kudos to the universe, and to God, for these gifts. But we should also remember that all children are valuable and worthy of our thanksgiving, including millions of children challenged by health issues and a wide range of special needs. Our public messages can and should better reflect more inclusive content.

Healthy or not, they are all our children.

I, for one, am thankful for each and every one of them.

And for flat, comfy shoes....


JudyWinter.com
Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations
MySpace.com/judy_winter